My sister is 31 weeks pregnant and her baby has been diagnosed with Diaphragmatic Hernia

[trumphy]

Has anyone else experienced this? I am so worried for her. It's her third baby. She's been told the baby will need an op after birth. I've been looking up info on the internet, seems quite hopeful, but it's still a serious condition. Anyone been through it and had a positive outcome?

My apologies, I have posted this in the wrong section. I can't figure out how to delete it. I don't want to offend anybody.

I think there was a one born every minute that featured this? You could try 4OD?

Yeah I wouldn't watch that.. The baby died I think

Hi there
We have moved this thread to our general health topic
All best to your sister...
Thanks

I did watch that episode of One Born Every Minute a few months ago. So I feel very worried for my sister. Just wondered if anyone has any personal experience of this problem and what was the outcome?

hi there, my daughter was born with a diaphragmatic hernia, and is now a healthy, lively toddler. her hernia wasn't detected before she was born, so she had to be transferred to a bigger hospital, where she could be ventilated, but when your sister gives birth there will be specialists standing by to give her baby the help it needs straight away.
my daughter had a six hour op when she was two days old, which was terrifying. she was in intensive care for a week and got out of hospital when she was 2 weeks old, and has been fine since
there's a charity that deals with it, think its called CDH cherubs, you could maybe contact them for info and support

hope all goes well for your sister

ClosedAuraOpenMind, thank you for your reply. That is encouraging to hear. I will let her know about that charity. I'm sure she would like some info and support.

trumphy, if you saw one born my daughters case was very like that - she had a right sided hernia that her liver and bowel had gone through. her lungs, especially her right lung, were underdeveloped and her heart was displaced. but despite being a teeny tiny 4lb 10oz she was incredibly strong and the care she received was amazing
fingers crossed all goes well for your sister and her little one

A distant family member went through this, so I'm a little sketchy on the details. Baby spent a long time in hospital but is now a perfectly fine little one, no apparent effects from what he's been through. Sorry I'm not much help, but hopefully that gives you some hope it'll be all ok in the end.

there's a reliable and helpful site called CDH UK.
a friend's little boy has just celebrated his 1st birthday...and is fighting fit after a rough start

Hi All

Just to keep you updated, my sisters baby lost her fight for life only 1 day after she was born. We are all struggling to come to terms with it. Thank you for your input. I do appreciate you all commenting.

So sorry to hear that, my thoughts are with you, your sister and her family.

I'm so sorry. My thoughts are with you.

I'm so sorry. My thoughts are with you all too.

Sorry for your loss

Thank you everyone. I saw some photos yesterday my sister had taken, after she had passed, but she was wrapped in a blanket and just looked like she was sleeping. I would have wept, but didn't want to set my sister off. I soooo regret not getting to the hospital and cuddling her before she died. I don't think that will ever leave me. Such a beautiful little baby. I sit here now, wondering how to cope with all this grief. I feel so awful for my sister and brother in law and their kids. I feel bad for me because of my personal tragedies lately. It all feels so hard and yet I don't want to burden my family anymore. Lets hope this next year is a little brighter.