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Any other Crohns sufferers?

4 replies

porridgewithblueberries · 21/03/2013 21:52

I have been quiet about mine for too long I sometimes think. I suffer from Crohns and most of the time am able to control it quite well through diet. However, from time to time it flares up. At the moment I'm in a bad way. I'm in a lot of pain, and embarrassingly I also trump loads. They aren't noisy but the smell is awful, however if I kept them in I would be in so much pain Blush I do pity the people around me though! It's awful when you can see people pulling faces and muttering!

If I go through a bad patch I go on a diet of prepared packs (porridge soup and shakes) but in itself this is a bit embarrassing as I get questioned about it at meals and social occasions.

I wish I had the confidence to say "look, I have Crohns, it isn't my fault." Unfortunately while most of my colleagues are lovely some are bitchy and gossipy and I don't want my bowels to be the subject of school gossip (secondary school teacher!)

Any other sufferers?

OP posts:
Sitdownnexttome · 21/03/2013 22:23

Family member , not me, but sympathise.
Hope you feel better soon.
Can you rest the bowel with modulen ?

dreamingofthefuture · 22/03/2013 11:43

I have Crohns too. Was only diagnosed after having the perforated bowel, blockage and ending up with an illeostomy bag.

I have had the reversal now.

I get petrified because I keep thinking I won't recognise a flare up and will end up in the same state as before.

i don't get the passing wind too much (too scared to as not sure if just wind, sorry t.m.i). My problem is erratic bowels, the urgency of having to go and the amount of times each day (up to 10).

do you find a certain diet helps, I have never even seen a dietician so every thing is trial and error.

It is a horrible illness that is embarresing to explain to people, I feel like holding a plaque saying "I have Cronhs", I am always saying why could I not have an illness that it is not so embarressing!!!

NotAsNiceAsMyMum · 22/03/2013 11:49

I have Crohns.
I take tablets which usually keep it under control, but recently have not been so effective.

What foods do you avoid? I'm struggling to figure out what the triggers are.

Can I also rant about all the 'toilet brush' threads on here. And threads about not wanting guests to use their toilets. I basically have to avoid houses where I worry that I won't be able to sort myself out IYKWIM Blush

dreamingofthefuture · 22/03/2013 12:10

It makes my blood boil too all this not wanting people to use their toilets, it is uncomfortable enough as it is wondering if you will be ok, checking for toilets, etc everytime you go somewhere. I wish we had the ability to be able to wait and only use our own toilets.

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