Eczema...advice sought plse!

[marz]

I have 2 dd's with eczema, dd2 is currently only under control??!! with hydrocortisone and diprobase while we wait for referral to Royal Free, (where dd1 is , who has Protopic)
Questions....
How do I get the diprobase ointment out of dd2's clothes? I use Persil non bio and even on 60 degrees it is still everywhere. Have tried soda crystals and 60 deg. which works better but still not completely non greasy.....also are soda crystals safe for her already bad skin??
Then....can anyone please explain wet wraps....this is probably the only thing we never tried (or were offered) for dd1 so I wonder if it is worth a try for dd2 (5 months)..thing os, her eczema is all over body...can I wrap her whole body??!! ( Just want to be more informed when I get to hospital appt...and then can ask for what I want instead of being soley in their rather incapable hands.....am consideing asking for referral to GOS ...have just joined NES too....my eczema on my hands is so bad now...(due to stress...it got really bad with dd1 until we got her under some sort of control.
Sorry for the ramble...I am just pretty desperate and fed up and so so tired too...need some sympathy too I guess!
thanks in advance......

aqueous cream do u use that as you would normally use soap.

sorry to be a pain

yeah just rub it on, then rinse it off. i find it prett crap as a moisteriser but is good in the bath.

thanks i'll try that then.

MY DS's thumbs are in dreadful shape. He has eczema, but not atopic, and the sucking on his thumbs makes them flare up. He has just embarked on his next round of teething and his fav thumb got so painful he swapped to the other one and it is now red raw so he is starting on fingers. He only sucks him thumb in bed to get him to sleep. I've giving him a dummy but he doesn't seem to know what to do with it. Friends have suggested putting gloves on him (good idea? what sort?). My dermatologist just has me putting cortisone and antibiotic creme on them. Please please help.

No suggestions but lots of sympathy. The hands have got to be the worst place to get eczema as they are so hard to treat.

aussiesim how old is your ds? thumb sucking will unfortunatly make ezcema worse as it dries the thumbs out after the sucking period. can u try the pj's i recommended further down? they also do t-shirts with fold back mittens, which my dd also has and wears on days when her skin is sore and just folds the mittens back when she needs her hands.
if u are putting creams on his hands then he is sucking them then its not going to be plesent. but thumb sucking is a comfort, so its hard to deal with.
if he is quite young still, then try putting long socks on his hands under his pj's.

Sorry, I should have mentioned that my DS has just turned one. His sore thumbs wake him up good and proper in the night now, as usually when he came into a light sleep he would just suck his thumbs to get back to sleep properly - now he wakes up screaming and I'm getting hell from the inlaws and lots of concerned comments from friends. I am in a quandry because sucking his thumb is such an important part of his sleeping. Do they do the T-Shirts/PJ's for 1 year olds? DS uses his hands all day long with exploring everything and I don't think would be very understanding of not being able to access them day or night. HAs anyone tried to get a thumbsucker onto a dummy?

They do the t-shirts/pj's from a very young age. i cant find my catalogue atm to check and the site seems to be under some kinda construction.

i can help with the thumbsucking dummy thing, but dd1 has a dummy, if she cant find that then she sucks her thumb but she has only started that recently.

HAd antoher night mare night last night with dd- bless her i just don't know what to do.

FD how old is your dd? Has the GP said anything about an antihistamine?

fairydust, when my dds ezcema was at its worst, in conjunction with the steroids and baths and etc my dermatologist told me to give her Vallergan. It is an antihistamine, but he said it wouldn't really help with itching because eczema itching wasn't histamine based. but it also acts as a sedative - so he told me to give her I think only 0.5tsp before bed, and it knocked her out a bit so she didn't scratch so much in her sleep and so it would allow her skin some time to recover. Maybe you could speak to your gp about that? Perhaps in conjunction with gloves etc that would work? You could always but gloves on her once she is asleep and with a bit of sedative in her system she wouldn't look for her thumb so much nor scratch her face etc so much. Just a thought.

dd is 22months

Misdee, that website is down at the moment and the e-mail address I got from there bounced back when I requested a catalogue.

I am going to a different dermatologist this week looking for a second opinion as I am just getting desperate. I like my dermatologies though and he is well regarded, so I feel guilty, but I just can't sit around watching DS's eczema spread over his whole body.

The Dr says it is not atopic or connected with food or allergies, but I am still not clear what type of eczema that means that it is. He has said that it looks like psoriasis but is eczema. I've tried looking up different types on the internet and the closest I came across was Nummular eczema - it kind of looks like it, but it is supposed to be more prevalent in oldies, so I am not sure that is it. I guess this is an example of the communication breakdown given my language difficulties here in Germany, and how busy the doctor is. Can anyone suggest what other kind of eczema it might be. It is in concentrated spots that come up like bumps under the skin and when not healing thy weep and look just terrible.

THIS IS VERY INTERESTING AUSSIESIM AS IWAS TOLD MY DD1 HAD 2 TYPES OF EZCEMA ATOPIC AND SOMETHING ELSE (LINKED TO MIGRAINES???) BUT I HAVENT BEEN ABLE TO REMEMBER THE NAME OR FIND ANYTHING ABOUT IT.

Oops, sorry bout the capitals

visted the doctors this afternoon and she was prec Vallergan and flucloxacillin so fingars crossed things should be better

this company also make very good sleepwear. Ds has used the printed sleepsuits, they are extremely comfortable.

FD, I hope the Vallergen works well, we often gove ds a dose of Piriton before bed to help him sellte if he is itchy.

sorry about the spelling mistakes

AussieSim ... I'm an Aussie too, also living in Germany (Stuttgart) with a 29mth DS and 39mth DD. My son and husband suffer from eczema, have you tried Emu oil? It's a natural anti-inflammatory, also great for cuts, bruises, burns and muscular pain. If you can't get any let me know, I can send you a URL in the States. Alternatively, try Jergen's Ultra Healing Lotion, it helps the skin heal.