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If you had headaches like these would you be worried?

59 replies

souvenir · 01/04/2006 22:13

I've been having headaches for over 6 months after previously never being prone to them, even when quite poorly. I've done a stack of research into headaches and seen the GP a couple of times for blood tests etc. and it would seem most likely that I'm having tension headaches. Except that mine don't follow the pattern of them exactly.

I have headaches for at least 3-4 days a week, sometimes so bad they make me feel really sick others they just wear me down. It's a tight feeling over my head and neck and some of my shoulder area which is classic tension headache. But my vision is always affected too - it's like my eyes want to close there's so much pressure behind them and I can't focus on anything like putting make up on or looking at someone's face while they talk to me.

Anyhow, does anybody else have anything similar? Or any advice for me?

TIA

OP posts:
Chapsmum · 05/04/2006 23:25

then insist, part of the process of dealing with pain is to understand where it comes from. if you do ont understand then go back again and a gain till you do.

liquidclocks · 06/04/2006 19:14

Hi souvenir, I hope you're having a good day. Firstly - with regards to your original question about whether you should be worried about your headaches - I think it'd be unlikely that there's anything sinister causing your headaches. If there were some underlying cause it would be likely that it would have shown on a scan and there would be other symptoms not associated with the headache. I'm sure your doctor in a basic check would have asked the right questions to uncover any concerns but again, if s/he didn't reassure you, go and see a different one. The carbon monoxide headache is unlikely as you don't have it every morning on waking and other people in your household would probably be affected too. The other thing people have mentioned is headache because of your eyes - if this was the case it would be absent when you wake and get steadily worse through the day, it's also pretty unusual to get this kind of headache but it was over diagnosed in the past by doctors.

Do you think you could answer a few questions for me? They're just to try and see if there were any triggers that started you off and a bit about your background, don't answer any if you don't want to.

About you & family:
How old are you?
Kids (how old)/parner/spouse?
Any other medical conditions/prescribed medications (inc. pill)
Does anyone else in your family have trouble with headaches?

About when headaches began:
Can you remember roughly when the headaches started?
Did you start a new pill or vitamins or discover a new food?
Did you have a particular period of illness or injury?
Did anything life changing happen - good or bad (eg, house move, loss of loved one, relationship problems)?
Is there anything you do that know sets them off or makes them worse?

About your symptoms:
How long does each headache last?
What are the symptoms and are they the same each time?
Is the pain mainly on one side, if so, is it usually the same side?
On headache-free days, do you feel 'normal' or are you still tired/mind a bit foggy?
What can you still do, if anything, during the headaches - eg can you still get up, work, drive etc?
How are you feeling at the moment, are you managing to stay positive or are they really getting you down, or is something else making you feel down?

Also, have you been to see anyone other than your doctor about the headaches or tried any other remedies apart from over the counter painkillers?

Sorry if that seems like a lot of questions. If you're not happy to talk about that sort of thing here it shoud at least give you an idea of what sort of questions should be asked by any health professional or doctor you go to see. If you weren't asked those sort of questions by your doctor you should definitely see a different one.

About the kind of headaches I get after going a bit heavy on the paracetamol (if you can call 2 days worth too much!):

General pain stiffness in my neck & shoulder
Feeling like I have blurred vision in one eye but not blurred when examined by optician. I also just want to close my eyes all the time.
Phonophobia - aversion to loud noises - difficult with toddler around!
Throbbing headache that makes my head feel heavy, usually onesided but different type of pain to proper migraine (hard to pin down why)
Feel weak generally, tired, yawn a lot but find it difficult to sleep because of pain.
Occasional nausea

They're different from migraine because they're slightly less severe but they last a lot longer and change from one side to another. Afterwards the inside of my head feels bruised and I don't feel right for at least 2 or 3 days. When I was having them a lot I had constant neck pain and problems with my back because the constant pain, and fear of when the next one would come, made me so tense.

Sorry I've gone on again but I really want to help you out if I can :)

souvenir · 07/04/2006 11:39

I really appreciate your interest and concern, liquidclocks. I'll try to answer your questions - see if you can diagnose me! Smile

I'm 35 with a 40-year-old dp and 1 daughter who's 4. The only other medications I take are for asthma which I've had since a baby. I think my father used to get migraines.

The headaches started a year last November but they were very intermittent. I had my first migraine EVER in that month which totally freaked me out. Then they steadily became more frequent (the headaches, not migraine, I've had very very few migraines, maybe 5, in my life)I can't think of any change in my life when they happened. I've been quite stressed with various relationship / financial things for some years but no different when the headaches began. I can't work out what makes them worse. I've tried linking them to all kinds of things including stress, periods, food. But no pattern so far.

It's hard to say how long the headaches last. I feel as though they're lurking in the background all the time and then sometimes break through into real pain. Usually I have a headache of some sort or other every day. The symptoms are always the same but vary in degree. So, for instance, one day my eyes will be so heavy that I can't focus on anything but another I'll be able to work around it. The pain is rarely one-sided.On headache-free days, I always feel tired/mind a bit foggy / eyes heavy. I get on with most things while I have the headaches unless they're really really bad which I guess happens every couple of weeks. I don't drive anyway and I only work part-time. Most of the time I'm looking after my daughter who hasn't started reception yet. The headaches DO get me down. Mainly I think because they worry me that there might be something sinister going on that I'm not taking seriously. But also because I can't relax or enjoy things.

Is that helpful?

Thanks again.

OP posts:
liquidclocks · 07/04/2006 16:19

Hello again, thanks for replying, it's been a bit helpful but I can't and wouldn't give you a diagnosis without seeing you or a medical history. What I ca do is tell you what I think and what sort of things you can do.

As I've said before, I don't think it's likely that there's anything sinister going on behind the scenes from the symptoms you've described. I do think talking to a doctor about your concerns might help reassure you. If that seems daunting, or you're the sort of person who goes with all the questions in your head but clams up when you're in the room, write down your concerns and get the doctor to read them instead. They're very valid and you need to know and be reassured that the doctor has taken your headaches seriously and considered all options.

Working on the assumption that there's nothing that can be identified as an underlying cause there are a few things that can happen next. Ideally you want a definitive diagnosis, it probably won't change much in the short term but knowing what something is can make you feel better emotionally which will help you cope with the pain. You could also discuss alternative medications with your doctor and tell him you are concerned about overuse headaches.

If you think your neck and shoulder might be involved your pain, it's unlikley but could be an outside possibility, go and see an osteopath. It wouldn't hurt and you'd probably get a nice massage out of it at the very least. They's also be able to check the bones and muscles around tyour neck to make sure there isn't anything going on to make things worse. If they are tension headaches you might also get a bit of relief for a while.

Once you have a diagnosis, or have been reassured by the doctor that nothing else is going on, there are some things you can do to help yourself day to day. Unfortunately, there will come a point where you have to accept that this is something that has happened and it's unlikely that it will just go away. Unless it's migraine there's no magic cure for chronic headaches and the way forward is 'management' rather than 'treatment'. You'll need to accept that there are some lifestyle changes to adjust to and you'll need the support of your partner with somethings (it drives my husband nuts sometimes how strict I am with my routine but if I don't get enough sleep, eat at regular times etc I'm no good to anyone!)

Alternative therapies have been trivialised to an extent by the media but they can be incredibly helpful for headache sufferers. Acupunture, reflexology, neck/shoulder massage would probably help you ans so would taking a course in relaxation techniques. Once you've learned how to relax properly taking 20-30 minutes a day to yourself just to have some quiet chilled time can have a really positive effect. I'm sure there are loads of things you'll read about on the internet but pick and choose what you try and make sure there's research to back up it's effectiveness so you don't waste time and money.

Regular excercise can't be emphasised enough. Vigourous excercise is ok when you're feeling good but when you have a headache and for now while they're pretty constant (obiviously not if you're bed-ridden though), yoga, tai chi and pilates will be good for you and they'll help your neck ad shoulder too.

Lifestyle changes are the most difficult to make and it took me years to take them seriously. You'll hear/read lots of things about diet, routine, alcohol etc. and the truth is no one thing helps everyone. They way I do it now is making sure I eat regularly as rises and falls in blood sugar affect me, I sleep for the same amount of time at the same time every night - this was really hard when I got married but my husband understands now though it can limit your social life - a night off now and then is ometimes worth it but I always get a headache. The hardest thing has been learning that things that make me excited and happy can be just as bad as things that make me angry or stressesd. This doesn't mean I never do things that make me feel good but it's like you have to keep a lid on things which can be hard. You could try keeping a diary for 3-4 weeks to see if you can spot any definite patterns with your day to day activities, events, food etc.

Once you've found your triggers, try to avoid them but not to the detriment of your happiness. For example, I love boiled eggs and soldiers (silly example I know but true!) - they make me feel ill but just sometimes, it's worth it - I make a trade. More important things too like going to the cinema where the flickering gives me a migraine, or even a club every now and again, just occaisionally it's worth it to have a good time. I hope I'mm not making it all sound horrendous. On the whole I have a happy, headache free life that I really enjoy and looking back I can't believe there were times I felt so crap. It is worth learning to manage, however hard it is.

Here's a few websites you can have a look at to get you going - the key is understanding, once you understand them, you'll learn to control them, not the other way around.

www.migraine.org.uk/ (Have a look at migraines without aura, you can have both types and it might worth asking doctor if you can try migraine treatment to see if it works, there are side effects though so think carefully before starting a course of medication)

www.bash.org.uk/ (the publications section is intended for health professionals but might be helpful for you)

www.patient.co.uk/showdoc/343/ (links to lots of other sites)

I really hope this can help you out, I know I don't have all the answers but maybe some things I've said can be of use. Let me know what you think, and it would be good to know if it does help.

liquidclocks · 07/04/2006 23:52

Hello, just been chatting to a friend of mine. She told me about this site to do with headaches that are in fact referred pain from the neck/shoulder: \link{http://www.cinn.org/news/cervicogenicheadache.html\cervicogenic headache}

Thought it might be worth considering.

souvenir · 10/04/2006 22:01

Thanks liquidclocks. All you mentioned does make sense and I will look at it all seriously. And the article you linked to is very interesting.

I've had a horrible gastric flu bug all weekend and peculiarly had NO headache whatsoever! Shock Having said that, given the option, I'd go for the headache. Tummy bugs are the pits.

To go back to your list, I'm not against alternative practises at all. I did go to see a chiropractor acutally but the treatment was quite extreme and left me with non-stop ringing in my ears. Plus it was way beyond my budget as he needed to see me 3 times a week (£50 a session) to complete his treatment ...

OP posts:
Surfermum · 10/04/2006 22:21

I suffer with tension headaches on and off. If I get a really bad one it can make me feel just like you've described. The only thing I've found that works is Syndol. Have you tried them?

queenrollo · 11/04/2006 09:19

i'd second Syndol....but i use them mainly if i have the opportunity to sleep a headache off, as they can make you drowsy.
i had some Reiki, and didn't have a severe headache for two years after.......but each to their own where that kind of thing is concerned!

when i was referred for physio i was sat in front of a mirror and the physio pointed out that my head leans to the left ever so slightly, and when he straightened my head up the tendon running down the side of my neck was like a tension wire. he said i was 'leaning into the pain' to try and ease it and it was just giving me tension all over my neck/shoulders. when i get a particularly bad head i do notice that i feel a dull ache 'behind' my shoulder blade.
have to go as ds is crying..........

i do hope you get sorted with these headaches......i have real sympathy for you.

liquidclocks · 11/04/2006 18:44

Hello - all's been quiet from me as I'm in the middle of writing a 5000 word essay - fun!

About the chiropracter - ridiculous to suggest you see him 3 times a week and £50 a session is way over the top. Osteopaths are generally considered similar but they are different from chiropracters and have different areas of focus in treatment. I went last year after having my baby as I hurt my back just after he was born - I paid £45 for the first session and £30 for follow ups. They're also quite sympathetic if you can explain that you're coming to see them as a one off for advice and can't afford to come regularly - my osteopath taught me some methods of self treatment I've found really helpful in 'clicking' my neck and back into place.

I wonder if you didn't have any headaches last week because your body wasn't absorbing something you normally take or eat? Just a thought... agree with you though - I'd rather have had the headaches, I hope you're feeling better now.

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