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I'm into my 4th week of cystitis, 3rd lot of ABs and now I have a cold; the next person to suggest "are you run down?"....

44 replies

KatyMac · 08/10/2012 21:59

...will cause me to burst into tears

It's only the hope that I might die that is keeping me going

Nothing can hurt this much Sad

OP posts:
ScampiFriesRuleOK · 11/10/2012 14:19

You don't mention any other infections, but if you're getting anything else such as repeated ear infections etc it may be worth asking for a fasting blood glucose test, just to rule out underlying diabetes (one of the first symptoms of diabetes can be repeated infections). If you have increased thirst, urination, and/or unexplained weight loss, deffo rule out diabetes.

KatyMac · 11/10/2012 15:47

I have regular urine tests for diabetes, I drink lots and wee lots; I wake up at night to drink rather than wee Wink

OP posts:
doinmummy · 11/10/2012 17:49

Have just come out of hospital Sad . I tried to sort out wee infection myself but ended up on IV gentomicin. I still feel uncomfortable down below though, sort of itchy/sore and feel as if I need a wee.

peterrabbitismyfriend · 11/10/2012 21:55

This reply has been withdrawn

The OP has privacy concerns and so we've agreed to take this down.

magoosmom · 11/10/2012 21:58

Waterfall D Mannose is excellent for curing and preventing cystitis, I had a phase of recurring cystitis for about 2 years, bought some and never get it now. It also could be food related, candida can cause cystitis-like symptoms.

hiddenhome · 11/10/2012 22:32

My recurrent cystitis was caused by tea, coffee, fruit juice and alcohol. All I can drink now are herbal teas, water and milk.

I was prescribed course after course of antibiotics, but it wasn't an infection that was causing it in the end.

doinmummy · 12/10/2012 00:32

That's interesting Magoo, I have wondered if diet has an affect. Is candida a fungal type thing? It would explains itchy sore feeling. Also what would make my wee smell 'sweet' a bit like hay?

FrustratedNovelist · 12/10/2012 12:25

Another Waterfall D Mannose convert here, it really does work.

I know lots of people swear by it but cranberry juice always made me feel worse. I've found that the Mannose plus being a bit obsessive about not getting dehydrated (I'm that girl with the giant bottle of water on the train/downing pints of water in the pub) has done the trick.

Sorry you're suffering OP x

magoosmom · 13/10/2012 15:11

yeah doin candida is an overgrowth of yeast in your gut. If you are prone to headaches, skin rashes, thrush or bloating it could be a problem for you. Waterfall D Mannose really worked for me but I think it can be stress related too

DinosaursOnASpaceship · 13/10/2012 15:16

Poor you Sad

Lots of sympathy from me - I've been in pain with a kidney infection all week and have also got thrush from the antibiotics. Not fun at all.

CoteDAzur · 13/10/2012 15:28

Yeast in your gut has nothing to do with thrush in your vagina, for the simple reason that they are two separate organs with no connection between them.

magoosmom · 13/10/2012 20:32

cote I was just pointing out that she may be prone to yeast overgrowth, can ocuur in the gut (Candida) and in the vagina (thrush)

CoteDAzur · 13/10/2012 21:40

Sorry if I have misunderstood. It seemed to me that you were talking about candida infection in the gut causing thrush - if diet has an effect on thrush etc.

tedhutchinson · 13/10/2012 21:49

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magoosmom · 13/10/2012 22:15

ted thanks for that explanation, after suffering for years I went to a GP who is also a herbalist and as well as a herbal remedy she also recommended a high dose of Vit D daily so maybe thats why Ive been fine since.

magoosmom · 13/10/2012 22:20

also stay away from Cranberry juice-too acidic IME, cranberry tablets are great tho

theodorakis · 15/10/2012 12:48

Her original book in the 90s gave me a lot of help.
www.amazon.co.uk/Patients-Encyclopaedia-Infection-Interstitial-ebook/dp/B003BWL0QM/ref=sr_1_1?ie=UTF8&qid=1350301653&sr=8-1

noddyholder · 15/10/2012 12:52

You really need to isolate the bug and determine whether it thrives in acidic or alkaline urine.I was plagued with cystitis and we worked out the bacteria i was prone to couldn't survive in acidic environments. Once I was clear of the bug I started a strict regime of drinking at least 2 litres of water a day and taking a triple strength cranberry tablet last thing literally before I turn the light off. This keeps the bladder acidic for the longest time. I haven't had a UTI since august 2011 and was getting them every fortnight previously. HTH

noddyholder · 15/10/2012 12:52

I am also on vit d

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