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Q&A about the ethics of using new IVF techniques to prevent children inheriting incurable genetic conditions - ANSWERS BACK

4 replies

RachelMumsnet · 01/10/2012 11:44

We're running a Q&A this week with the Wellcome Trust about that, if approved, could stop children from inheriting severe diseases by replacing faulty DNA with genetic material from a donor. It's an amazing scientific breakthrough but also a controversial one - there have already been headlines about so-called 'three-parent babies'.

The new technique has been developed specifically to prevent mitochondrial disease, an umbrella term for a number of severe medical disorders caused by genetic mutations in mitochondria (the 'batteries' that power every cell in the body). These disorders include muscular dystrophy, ataxia - and Leigh's disease, a disorder that has killed every one of Sharon Bernardi's seven children.

Scientists at Newcastle University are developing the new technique. It uses IVF technology to transfer genetic material between the mother's egg and a donor egg, to ensure the child won't develop the disease. Only a tiny proportion of the child's DNA - less than 1 per cent - will come from the donor. But some people argue that it shouldn't be permitted because a child born this way would have 'three parents'.

The government has launched a public consultation so that everyone has a chance to share their views about this. And they would particularly like to hear what Mumsnetters think: should doctors be allowed to use this technique to treat affected families or not?

The Wellcome Trust, a medical research charity which is funding the Newcastle scientists, has invited experts Doug Turnbull (who is developing the technique at Newcastle) and Susan Golombok (a University of Cambridge expert on the impact on families of using techniques such as IVF) to answer your questions.

Post your questions to Doug and Susan before end of Friday 5 October and we'll link to their answers from this thread on 18 October.

RachelMumsnet · 03/10/2012 16:40

Thanks for all your feedback. A reminder that we do have experts Doug Turnbull (who is developing the technique at Newcastle) and Susan Golombok (a University of Cambridge expert on the impact on families of using techniques such as IVF) on hand this week to answer any questions you may have about mitochondrial diseases, the breakthrough IVF technique and any issues about its usage. Do send your questions to Doug and Sue before the end of the week.

RachelMumsnet · 08/10/2012 14:25

The Q&A is now closed. Thanks to everyone who joined the discussion and we'll be sending the questions over to Doug and Susan and linking to their answers from this thread on 18 September.

RachelMumsnet · 08/10/2012 16:28

@AMumInScotland

Or even October Wink

Blush you're right Smile

RachelMumsnet · 18/10/2012 17:26

The archived Q&A is now ready. Read Doug and Sue's answers to your questions.

Watch this thread for updates

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