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DH has a 5cm tumour on his epididymis, PLEASE if you have experience come and tell me about it

59 replies

petrifiedperson · 18/09/2012 13:29

Ultrasound today - it's a total shock as his gp said it was definitely a hydrocele and nothing to worry about

we are terrified and of course I have been googling and found out all about metastasis etc

please, if you have any experience of this come and talk to me

I am an oldie but have namechanged for dh's privacy

OP posts:
petrifiedperson · 25/09/2012 10:00

dh seeing urologist this morning - I don't know what to expect, will he be able to tell us anything? dh thinks not but I am clutching at straws. He had to take a urine sample in, but they can't tell anything from that can they?

am sitting by phone biting my nails

OP posts:
Sparklingbrook · 25/09/2012 10:13

He will hopefully have something helpful and reassuring to say petrified. Hope the call comes soon. x

CMOTDibbler · 25/09/2012 10:40

The urologist will probably outline what is going to happen now, so don't expect any answers today. The urine sample is just standard at the clinic.

difficulttime · 25/09/2012 10:46

petrified I don't have experience of what you are specifically going through, but DH had a tumour earlier this year which was very serious and made him extremely unwell. My world basically fell apart and the weeks and months surrounding that time were awful as we did not know if he was going to make it and if he did if we would have any kind of a normal life afterwards.

I think it can sometimes almost be harder if it is not happening to you, you are on the sidelines and watching something that is out of your control and it is happening to the person you love most in the world.

However in spite of being very ill DH is now on the mend and whilst things will never be quite the same for him healthwise, we can have a normal life and there have been a number of positive things that have come out of it - we have re-evaluated our priorities, we know just how much we love each other, and we know we can handle just about anything together.

The biggest lesson I learnt is to just take each part of the process through diagnosis and treatment one step at a time and as other posters have said be kind to yourself and make time to be together. Also as others have said the fact that he is fit and healthy is a very good thing, best case scenario he has something entirely benign, and if not then he is in the best possible shape to get through any treatment he has to have. The human body is quite remarkable in its powers of recovery!

(PS I've been on mumsnet for a long time but namechanged for this as it could be quite identifying.)

Bladderama · 25/09/2012 13:50

Thinking of you today petrified x

Sparklingbrook · 26/09/2012 10:09

You ok petrified?

petrifiedperson · 26/09/2012 14:00

Thanks for remembering and asking how I am x

DH saw the urologist and he said he had only ever seen three of these growths in 40 years! He said it is very unlikely to be malignant although he couldn't say for sure. He is going to do day surgery very quickly, probably in about a week's time. He found a hernia as well and is going to fix that at the same time Shock

So no guarantees, but I feel a lot better and so does dh. It's probably good news and it's being dealt with very quickly which really helps - it was the waiting that was killing me.

OP posts:
Sparklingbrook · 26/09/2012 14:02

Oh petrified that sounds great. Surgery in a week too. Brilliant.

AmeliaEarhart · 26/09/2012 16:14

Good news petrified.

If your DH is anything like mine, he'll feel relieved just to know the tumour has gone, even if you have to wait for a histology report.

Keep us posted.

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