HELP! MMR troubles

[kreamkrackers]

just got dd's blood results through to see whether she's allowed the mmr (she has digeorge syndrome) and the results are borderline so the paediatrician says yes to giving them but it's borderline and i'm scared.

she needs her hib repeating as she has a very very tiny trace of ever having that as well, then 4 weeks after having that done they're going to check whether she has any more memory to that.

ARGHH! this is all too much. i don't know fully what would happen by giving her a live vaccine when she's borderline. it's hard to decide what to do as she'll be more prone to catching these viruses yet she could have a bad reaction to them but i'm not sure what type of reaction. also we definetely can't afford single vaccines as i'm no longer able to work with looking after her full time as she has many other health problems.

was hoping you lovely lot could give me some much needed advice on what to do as i have no idea. by the way, dd is 22 months old. thankyou in advance.

KK, so sorry you're going through all of this, it really is a worry. borderline but MMR is OK? I wouldn't be too comfortable with this. its cases like yours which make me so angry singles are not available on the NHS, even if just for special cases. is there any way you could raise the money for singles? I know it must be very difficult, but surely coping with one live virus at a time would be easier for her system. i hope somebody else has some more useful advice but best of luck.

i can't see any way of getting any money for the single jabs. my head's all over the place with this. it's such a worry. i would love dd to have single jabs but we would have to win the lottery to afford them.

would the paedatrician not help you get singles sme way? If she's borderline he must understand your concern. They always say its not available but i've found if you push and there are special circumstances more can be done than you think.

i will try to ask but i doubt i will get any where :(

if they admit she needs single jabs then other parents could argue this even though dd's condition is rare. i can't see them being much help.

But it would'nt be broadcasted, no need for other parents to know.

yes sometimes they can offer a choice, as an understanding between parent and doc, if there are special circumstances. You do have to push tho, and it does depend on how understanding the paed is. Fight your corner. Very hard for you, but i am surprised they are so blithe about it when they've admitted she's borderline.

I wonder if you could look into a charity funding the single jabs, or talk to one of the private docs that does it (rather than someone like direct health). Maybe they would do it a cost price?

The other thing I would do is email Andy Wakefield and ask his view- if yoyu type visceral into google or thoughtful house you should find some sort of contact details.

There's also Paul Shattock at the ARU in Sunderland (who is lovely). Again maybe able to pass you onto someone who could help mre with the digeorge issue.

I wouldn't be happy with a boderline result without looking into alternatives or getting a 2nd opinion. It is tricky though isn't it. If she's having problems producing immunity to hib is she any more lilkely to produce immunity to MMR?

good ideas JJ.

i'm going to try to wait until monday to sort this out more. dd's having a cardiac appointment so i will ask her consultant there for more advice.

if that doesn't work i will speak to my health visitor as she phones the dr who is dealing with this and can get through to him better than i can.

i will also try to contact maxappeal as this is the charity that helps to give information on digeorge syndrome to parents. hopefully they can advice me on any other borderline cases.

also i will try to research the possible side effects that might occur from her having the mmr with borderline poor immune system from other places like you listed jimjams. i want to know whether it will be worth giving the mmr as she doesn't have much of a memory to having the hib.

if the goverment was a bit more flexible to parents wanting single vaccines this wouldn't be as much of a problem for us. what charities might help us to fund this? i will try asking if i could get the jabs at cost price but i doubt anybody would do this for us.

didn't sleep very well with worrying about this. contacted the maxappeal charity via email so hopefully i will hear back from them soon.

i was in panick mode when i first heard this yesterday, still am! but managed now to get my head around some of the first steps we should take. thankyou for your replies they have really helped me get my head together and i will sort this out for my dd.

julie wootton from the max appeal website has just emailed me. she is going to speak to our paediatrician and give him contact details for dr kumararatne from cambridge who wrote the guidelines for children with digeorge syndrome being allowed the mmr.

she said building no memory isn't an issue it's more of the issue about giving her a live vaccines which could make her have the disease. she also said that mumps doesn't work as well in the single vaccines so for most cases they are better having the combined mmr. she said this was something to do with the strain that it is derived from.

she's sending me more leaflets through the post on this issue so hopefully it will all be sorted soon.

glad you've got somebody who really knows what they are talking about. Best of luck with it all.