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Pfizer limiting supplies of Neurontin?

29 replies

CouthyMow · 29/08/2012 19:07

My pharmacist has been unable to gain a supply of Neurontin as Pfizer, the manufacturers, are apparently restricting supplies because there isn't enough to go around?

I have phoned the only two other pharmacies that are accessible to me, and they are saying the same thing.

I have roughly 8 days worth of medication left.

When I take other brands of what is essentially Gabapentin for my epilepsy, I end up having breakthrough seizures, as the half-life of the active ingredients is different.

I am starting to panic a little. And none of the pharmacists can tell me when they will get the rest of this months meds in, or whether I will have this problem next month too.

How would I go about finding out if what I am being told is true, or of it is my (notably crap and almost bankrupt) PCT trying to limit use of Gabapentin to other, cheaper generic brands? I'm already on a generic as it gave me the best seizure control, but chopping and changing messes with that and I can't have that!

Can anyone help me to sort this out?

OP posts:
RunningOutOfIdeas · 29/08/2012 23:22

This is a very real problem with epilepsy meds. The OP is right to make sure that the drug she gets is absolutely identical to what she usually takes.

CouthyMow · 30/08/2012 00:14

Been dealing with epilepsy for faaar too long now. After nearly 9 years, and finding out that I get no control at all from Lamotrigine, Epilim makes my liver start to fail, Tegretol I am severely allergic to, Topamax gave me MH problems until it was discontinued AND permanently damaged my eyesight (have lost all my peripheral vision because of it), Gabapentin is the only one that works.

And after being put on various different brands when pharmacies/PCT etc have decided cheapness wins out, and ending up in status Epilepticus each time, I am averse to opening myself up to that risk now!

I know what works for me, and that is sticking to Pfizer Neurontin 300mg. Even taking 3 x 100mg doesn't work for me!

It's already cheaper than the 'original' Gabapentin, so why I have to have what little seizure control I do have risked for what is probably a fairly small difference in cost?

OP posts:
RunningOutOfIdeas · 30/08/2012 09:55

Hope you get something sorted out today

OddBoots · 30/08/2012 17:14

I hope you've been able to get hold of the correct medication for you now.

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