Horrendous day in A+E with dd - knee/hip injury ??? Viral something?

[Piffle]

8 am dd wakes up screaming
Cannot weight bear say left knee is sore
Calpol and think shes banged it on her bed (she said that) and she'll be ok in an hour or so
Nope so ring GP - he says A+E as not weight bearing is not good.
A+E Xray broken for 24 hrs. I wish they had told me before I had sat in a 4x6ft room with one very sore and bored 3 yr old for 6.5 hrs
Finally got see orthopaedic hap, said he thought is was dds hip, some post viral condition, but without xray could not rule out crack or fracture.
So sent me off to paediatrics FINALLY to see a paediatric ortopaedic chap.
He says the same, he says dd has deffo hurt her knee, he thinks crack of one of the knee bones or greenstick fracture of the femur.
He says coem back tomorrow at 9 am for an xray
Of course
They will have an enormous backlog so am thinking of asking to go to another hospital even if it means travelling another half hour
Me and dd were so knackered....
Just had to vent
Anyone ever heard of post viral hip inflammation btw?
Am scared at thought of tiny dd in a leg laster though
She has been SO BRAVE!

ps dd would be very ill with high temp etc if it was osteomyelitis, its quite hard to get. As a radiographer i use to mainly see it in post op patients. So try not to worry too much, although i know its hard not too

I know she has not got any bone infection as she is otherwise very well - the post viral would fit as she had double ear infection last week - but irritable hip would not fit as it always involves painful hip!
They say it is not a pulled muscle as with a pulled muscle she wold attempt to walk and to weight bear
dd refuses entirely to put any weight on her left leg at all - they say this is more consistent with femur fracture or hip problem as keeping the knee bent and off the ground is the kindest position...
The radiographer said that dd showed no signs of any hip issues as her motility in it was so good, and no signs of fracture as no pian on touching, no swelling no bruising
Whats next
fracture clnic Monday although I'm confused as if there is no fracture why the clinic???

I am tempted to take her for a 2nd opinion, she has a genetic condition called Noonan Syndrome which she has mildly and no real bad problems from. But it does have a bleeding problem and some on my NS suppirt board have suggested an internal blood clot on the knee...
I'm just in bits really I guess...

I read somewhere whilst looking up Perthe's that it has been linked with clotting problems, so maybe it is connected.

I would seek a second oppinion in your shoes I think. Who ever you are seeing is stuck on the idea of fracture when it seems obvious there is no fracture.

I hope this gets sorted out for you and for your poor little DD. Poor hunni, she must be so fed up. Give her a hug from me and tell her I am thinking of you both xxxxx

I'll be back on tomorrow with news of what the orthos say about DS

I've left a message with our geneticist at Nottingham, hopefully we'll get asked to go over there where they have a proper paed service, its a teaching hospital too and damned good.
Should have gone there first really but its just too far for a quick drive.
DD dame today also got sore wrists from crawling so is staying very still.
5 days now...
Hope your ds is doing ok CH...

piffle glad you contacted the geneticist and I am sorry to hear your dd is in more pain now with wrists. 5 days is a long time.

Ch if you are here hope your ds is ok too

xx

Hello!

Well we are home from hospital and DS has been discharged from the ward - HOORAY!!! However we have to go back to orthopaedic clinic in 2 weeks for review. The consultant has diagnosed irritable hip for now with the intention of regular monitoring for Perthe's.

I am relieved that we don't have to go back to hospital for a while, but I still feel I have no real answers. I have also been told to keep DS off school for the next 2 weeks - NO WAY!! He is in his first SATS year so will take him back on Monday with very clear instructions to his teacher that he is to do nothing but sit. He really can't miss anymore school.

Piffle, your poor DD. Her wrists must be agony. I hope you have some luck with Nottingham - you deserve answers now. Give DD our love and best wishes and I am thinking of you too hun. xxx

I'm glad he is home CH and a little peace for now. But it must be horrendous to be in such limbo.
I suspect we'll get the same gen next monday...
Wil your school allow you to leave painkillers for your ds?

I'm not sure what he protocol is with medicines at DS's school. I know a friend of mine had o go to her DS's school every lunch time to give him his antibios once :( But I'm sure if I give him his bufren just as he leaves for school, it will last til he comes home.

Hope you get answers next Monday Pifle - How are DD's wrists? Poor little sweetie. I feel so sorry for her.

ch and piffle :(:(:( sorry to hear whats been going on.

ch - glad your ds is home now.

piffle - if you suspect blood clot won't they see her straight away? does she have a cardiac specialist who would see her straight away? also my little brothers friend had a broken hip but it was only spotted on ultrasound scan as all the xrays came back normal, apparently it's very rare but it can happen.

Ch & Piffle sorry to read about your children.

I had an arthritis type reaction to a Strep infection - very painful in the hands and knees but it can just affect one joint. It should show up in bloods as inflammation I think. Piffle - has your dd had anti-b's for her ears or does she take them prophylaticly for anything else? It could show false results in any bloods she had done. Mine took a few weeks to go with anti-bs, anti inflammatory and pain killers. Wsa agony in the mornings though.

The clot/bleed thing is worth checking too I think. Dd's heart issues cause her leg pain but more generalised, not joint specific.

Coathanger - glad your ds is out and hopefully on the mend.

Piffle hows dd today?

Am fuming at the doctors Kept me and dd waiting 5 hours just to tell me I'm a paranoid mother and dd is fine.
To give her calpol and nurofen regularly

OH REALLY? Liek I@ve not been giving her it all sodding week.
They say def post viral - without actually examining her or anything
If this turns out not to be post viral someones head is on the block.
He laughed out loud when I said blood clot or that they missed something on the xray and said why are mothers never wanting to hear the good news.
The paed ward nurses were appalled
F**CK Off
I am never going there again, stupid provincial smug gits.
DD can not even rest her leg on the floor.
I was led to believe post viral synovitis thre would be pain present, dd only gets pain on putting weight on it.
Back to sq 1
Am so cross............

And yes dd did take ab's for her ears last week, she finsihed them on Tuesday morning.
Saggar when you had the reaction was it painful without you moving it? Swelling or any other signs?
They have refused to do bloods or untrasound, say its a self resolving condition that requires no further attention.
dd's heart condition is mild and should not have any bearing, although with Noonan Syndrome the clotting might be a factor.
I'm unsure as to what symptoms a blood clot would cause though?

We are seeing a consultant orthopod on Monday anyway. I was just hoping that something could be done over the w/e...
DD also has her paed review on Thursday and will sound off there if needed - Paed is SUPER lady.

How did your ds get on at school CH?

Piffle - no outward signs, swelling or otherwise. Very stiff and painful first thing in the morning and with any movement (couldn't even lift the kettle or turn on the taps) - but if doing nothing not too bad.

When you say her wrists are sore - is that def from crawling? My wrists and hands were awful.

I'd be a bit annoyed that they assume viral without bloods - the inflammation would show up even if the infection didn't so to me would be worth doing for you.

Not sure of clot symptoms - sorry - but would think maybe more general in the leg rather than just the knee?

Oh Piffle, they really are not being sympathetic at all and they haven't got very good patient manners if talking to you like that. I too would be F'd off and really annoyed. And to keep you 5 hours totally awful you have gone with a child illness they really should have seen you sooner is there something in the patients charter that you can complain on regarding the wait? I hope the paed apt gives you some answers and that the calpol etc are making it a bit easier for her.

She is not any worse on waking etc
She is not sore crawling on it, bending it kneeling on it
It is just the weightbearing and say if she is lying down and I'm putting trousers on her, she cannot push that leg through to get the trouser leg on IYSWIM as if its weak, infact she just has not strength in it, it just falls, same with walking.
Instinct is telling me something else is up
I'd just about bet my life on it, I'm not a person who would take a dd to a hospital on a whim.

I knew someone on another site whose 1 year old suddenly stopped walking because it hurt - ( I think it was his knee ) - it lasted a couple of weeks - they never found anything wrong as far as I can recall and it was decided it was a post viral thing.

I could dig out her contact details if you would like to get in touch.

Sorry to hear about this sounds like a nightmare. My wee sis had an odd thing as a toddler, agonising pains which moved from joint to joint depending on the day, couldn't weight bear or bend her joints without screaming.

My mum thought it was toddler nonsense for a few days as sometimes it didn't bother her. Turned out to be fleeting arthritis caused by (honest!) salmonella poisoning. It took many hospital/docs appontments before a diagnosis was made mainly due to no visible signs a lot of time.

It doesn't sound like the same thing but I just wanted to say stick to your guns, mums do know best! It took my mum 4 weeks of endless docs before a diagnosis was made.

Oh yeah and no visible signs either no swelling redness etc.

Hope you get it resolved.

piffle - with blood clots i think they check the pulses. my dd always loses her foot pulse after a cardiac catheatre proceedure and has to be given heparin and then they move on to something else which i can't remember the name of but when she's moved on to the next stuff her foot pulse returns. also her right foot is always colder than the left foot after these proceedures.

the only blood thinners she's on now is half an asprin a day. we have a lot of trouble in the chemists trying to get the asprin for her even though it's from perscription as their computers tell them not to give it to under 16 year olds and she's been on it since she was discharged from hospital as a baby.

could you try going to another hospital to ask for a second opinion? was it a children's hospital or one with just a children's ward as children's hospitals seem to be much better than just children's wards.

How's things Piffle?

DD seems much better today, she is finally standing but will not walk without support and can only manage a few small steps before falling over.
She seems a little better when dressing her as well, so yippeee looks like she is on the mend!!!!!!!
Maybe I was a paranoid mother after all

great news piffle that dd is getting better. You are a good mother wanting answers for your poorly daughter so don't start saying things like that.

Piffle- Jasper's DD had the same last year.. and it was viral and it went... but it was a bit scary at the beginning.