Never heard of this before yesterday, when I was out for a drink with a guy who has this, and I think I may have it too. I have very stretchy skin (I always assumed everyone did!) and I can pull out at least an inch of skin from my elbows, the backs of my hands, face and neck as typical of the symptoms. I also bruise very, very easily. I've got very hypermobile joints - I can shake hands with myself behind my back and rest my palms flat on the floor with both knees fully extended, and I can pop my hips and shoulder blades. I have the typical flat feet and hypermobile kneecaps which move around. Really, I had no idea that EDS existed and I thought I was just a bit bendy!
I want to see my GP about it because I understand there a type of EDS that affects your organs. Does anybody here have, or know anybody who has EDS? How did you go about getting a diagnosis?