Underactive thyroid levels going up!

[Ninablue]

Hi I have been on thyroxine for about 4/5 months now, started at 50mg and now on 100mg. Each time i have a blood test my levels have gone up and its doing this every 6 weeks. Im told each time to come back for a blood test by my Dr but i can feel when my levels have changed so go along for the blood text and lo and behold my levels have gone up again.

Why is this happening when Im on thyroxine? Is it because they havent got the dosage right yet? Im feeling so poorly aching joints, hangover feeling, bad tummy every mng so i have to sit on the toilet for what seems like hours :( I have also started to get a bit of vertigo. Ive checked and this is another side effect of thyroid?

But my Dr was having none of it. He says that its not and i should only be feeling tired and a little achey? What? I don;t know what to do now....

My levels are now T4 - 14 TSH -5.3

Thanks

Could you give me a link to the Understanding Your Thyroid book please? I am on 125mcg and still feel dreadful, unable to lose weight, and last time I saw my GP he told me that I just had to think positively as thyroid symptoms are often all in the mind.

Omg Biscuitnibbler "think positively as thyroid symtoms are often in the mind"? Ive heard it all now, ridiculous!!

Clarella - Thanks for all that extra information really appreciate it!!

Merci - how come you know so much? I really struggle to understand alot of stuff on the internet about T3 T4 etc etc....Fuddled mind!

Well, thanks all for sharing my rightous indignation. I do feel these levels of TSH and T4 are not really on the right end of the scale. Biscuitnibbler, it seems we have the same GP - it was suggested to me that having two young kids and a full time job would be enough to make me feel permanently washed out and I should just get on with it!!

It was reading the Understanding your Thyroid book that persuaded me that I should stand up for myself and go back to the GP and demand action. MY SIL is a GP so I'm not scared to give them lip as I realize they are far from infallible.....

Wonder why they bother studying for so many years when 'it's all in the mind' anyway!

Oops, book is actually called 'understanding thyroid disorders'
www.amazon.co.uk/gp/aw/d/1903474191/ref=aw_d_iv_books?is=l
You can buy it in chemists, boots, sainsbury's as well as online and order it from the library. I like it as it's easy to understand but very 'GP friendly' as it's part of the BMA series and written by a specialist
Check out page 88 and page 41-43 for hypo, page 44 for subclinical
Awwww Ninablue, thanks, that book teaches you lots and thyroid uk

In as much as they make your mind mush! What load of crap! I have never had a more clear experience of how it affects you going from 1.5 tsh to 5.5 in 4 weeks (even with 25 mg extra) and then to tsh11 five weeks after that - I started to feel it steadily getting worse at the 5.5 (but thought just pregnancy) and could not function cognitively at all until I had been taking an extra 50 for 6 weeks until 18 weeks. I really saw the difference over a short period of time and I was off work for other reasons so couldn't blame work. After that I felt loads better (but then began suffering from stress from other things and as baby not using my thyroxine so much now I need to drop down as definately on too much currently, Im not sleeping much for a normal person let alone a pregnant lady!)

Not in the mind, though you begin to fear the discussions, battles and I have a phobia of tiredness and probably my thyroid after years of struggles from time to time, which adds to the low mood. But my ability to sleep (too much), function, think, exercise and go to the loo is never affected by my 'mind', only my thyroid.

Sorry don't know the link, I thought you used to be able to buy it in boots?

www.amazon.co.uk/gp/aw/d/1903474191/ref=aw_d_iv_books?is=l

Sigh

Try again with link ...

I've learnt lots from joining the btf and attending a couple of meetings. Actually the pregnancy one explained how it all works in the best detail.

Go gettem willpenn and nina!

Thanks very much. I'll order that now.

I'm due my yearly check up, so dreading the whole "no, we won't be increasing your dose" conversation again.

Ordered! I'll read this before I see the "all in the mind GP" again. Thanks for your help.

A GP needs to know a little about a lot of diseases and issues, so I also think that if I have researched this one particular condition that I personally have in detail, I might actually know more about it.