Just something iwas chatting to Peter about earlier.....

[misdee]

i was asking about on the other vad patients, he was due to have his VAD removed, but his heart went further into failure, so is now on the list as well. We were talking about how much harder that must be, to have all your hopes pinned on the machine saving you from needing transplant, but then having to go onto the list anyway. peter was never in that position. we knew from the outset of his illness he had a 33% chance of needing a transplant within 15yrs of dx. he got 3 years. we knew at around 2.5years post-dx that he was detoriating and that transplant was inevetable sooner rather than later. when he had an echo done, and the cardiologist said 'right we were are referring you to harefield to tranplant assessment' we just went 'oh ok then' the lady doing the scan looked a bit shocked that we didnt seem too bothered. we wuickly explained we knew what was coming before that appointment. VADS were virtually unheard off, and even tho they were mentioned in the early stages at harefield, it was crossed off the list quickly as he was stable. when VADS were mentioned again before the op, we knew he'd still need a transplant, no quiestion, tis was just buying us time.

must be so so hard for the bloke we were talking about. but he seems a lot more cheerful now he knows he is on the list. i guess he now has hope again.

[chicagomum]

Misdee, I have followed your threads frequently since joining mn almost a year ago. I've never really had anything constructive to add, but would like to take this opportunity to say that I think you must be a very special person, with enormous strength of character to keep going day by day with all that is thrown at you. I hope you and the dd's are all feeling better today and I (as always) have my fingers crossed that Peter's situation will improve and he will be home once and for all in the near(ish) future.