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Psoriasis information

11 replies

PeppermintCream · 16/06/2012 18:38

I've had guttate psoriasis for a long time and used a variety of coal tar treatment and then steroid creams.
I had a course of light treatment a few months ago that really helped. Unfortunately, it's come back worse than ever. I'm covered.
Went to see the nurse earlier in the week and she has asked my GP to prescribe some antibiotics. Do I wait until I next get a sore throat or just start the course straight away?
I'm also having some bloods done so that I can discuss going into methotrexate - any advice or experience or general support would be appreciated.

OP posts:
nicki1978 · 16/06/2012 19:41

Sorry i don't have advice on this type of psoriasis, but didn't want t read n run. I have plaque psoriasis and have been on all sorts of lotions and potions, i had UVB a few years ago but that just burnt, I'm now on PUVA which seems t be mostly helping. This is my last resort before i end up going down the cyclosporine route.

Good luck with it and i'm sure someone will be along soon that may offer advice. Xx

Ohyoubadbadkitten · 16/06/2012 22:50

Start them straight away. That's what my derm says for guttate. It's a bugger to treat isn't it. Little dots that take gazillions of years to play dot to dot with creams.
Avoided mtx. Though I've considered it as I also have psoriatic arthritis. I know someone who has found it sUperbly helpful, but the side effects for me I think might outweigh the benefits.

PeppermintCream · 17/06/2012 08:03

Thanks both. I've started the antibiotics today. You are spot on saying it feels like playing dot to dot.
I try really hard not to let it get me down too much; I know it just a skin condition. Sometimes the endless cycle of applying creams and covering myself up is a bit frustrating.
Methotrexate worries me and I have concerns, just not sure if I'm over reacting or if my concerns are founded.

OP posts:
Ohyoubadbadkitten · 17/06/2012 19:54

I feel the same about methotrexate - if I was suffering constantly, then I think I'd try it, but I tend to have decent periods when its in remission. One thing I dont do though is cover myself up. I am not ashamed of it (apart from the scalp psoriasis which looks like the worst dandruff ever). It is up to other people how they react, I dont consider it my problem.

PeppermintCream · 18/06/2012 19:26

Thanks kitten I know that I shouldn't cover myself up, and know that I should maximise the amount of sunshine on my skin, but I really do hate how my skin looks Sad.
Glad to hear you have some good periods of remission.
Good news, only two days of taking the antibiotics and I can already see a slight improvement. Fingers crossed, it might clear up for a while.

OP posts:
Putthatbookdown · 01/07/2012 17:02

I have had it all my life with a 15 year remission
I was under the St Johns Institute at Barts London and the local hospitals just do not compare with it ie the Gp burnt my skin and there were no inpatient services when I was covered So if I were to take Meth then I would only do so at St Johns as you need real experts monitoring a rather invasive medicine
They have all the latest info there best in the Uk
Meanwhile no smoking and just a little alcohol Do you keep your skin moisturised ?
For the best Support join the Psoriasis Association who also have all the latest info

sashh · 02/07/2012 03:13

Methotrexate worries me and I have concerns, just not sure if I'm over reacting or if my concerns are founded.

I was on it for about 10 years, the side effects do get less, but I got fed up with knowing one day a week I would be a zombie with nausia.

Ohyoubadbadkitten I have PA as well, do you find most people say, 'I've never heard of that?'

Earthymama · 02/07/2012 03:44

Hi I am hoping to get a diagnosis re psoriasis plus arthritis; I am scared to do too much research.

I have awful plaque psoriasis on my feet and ankles, creeping up my legs.

My daughter has been breastfeeding for nearly 2 years and has, therefore, seen some rubbishy TV including somebody called Kim Kardashian, who had the same and discovered Sally Hansen Leg Make-up
It is fab!!
It made me feel more confident at my Civil Partnership though I am usually happy to wear sandals and get some sunlight on my skin!!
Good luck with your treatments.

sashh · 02/07/2012 13:04

Earthymama

Don't google, but you know that.

They can only diagnose what is already there. PA is quite a slow progressing form of arthritis.

Ohyoubadbadkitten · 02/07/2012 16:45

sashh - yes! Plus people will then rub their knee ruefully and say 'I think Im getting arthritis', which of course I have full sympathy for them but it demonstrates a lack of understanding of the systemic nature of PA.
Am getting plaque creeping up my arms from my elbows. Only had one child go ewwww so far though Grin

runnindownadream · 02/07/2012 17:11

I have severe plaque psoriasis mainly and taken methatrexate, ciclosporin and Entercept over the last 10 years. currently on humira (biologic drug)

Didn't really have any side effects with metho or ciclosporin other than rebound reaction when I stopped taking it. I took ciclosporin throughout pregnancy too (mine is fairly horrendous) as I have had far too much uvb and uva over the years and a malignant melonoma scare. Had bad reaction at injection site with Entercept.

I guess I try not to think too much about the future - I'm on a register now so the medics will follow me until I depart to look for long term health problems. It's a tough decision because they don't really know what the future holds but with my history my treatment options are limited and my psoriasis is out of control on its own.

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