Well, it would appear that I have fibromyalgia, rather than Teitzes.

[OracleInACoracle]

for the last 3/4 years I have been in pain. swelling joints, specifically around the ribcage. lately it has started to affect my extremities, my hips are stiff and swell up, my back is agony and my fingers seize up. I also get migraines, my digestive system is shot and I am depressed again

went to pain clinic, finally, and he (and the doctor) think that the initial diagnosis of teitzes was inaccurate, and I have fibromyalgia instead. which would account for a lot. what do I do now? back to GP on friday.

Bog all, basically.

I've got fm. It's really all about managing it. I have Amitriptyline which I take at night and I take painkillers too. Although you have to be careful with that.

It's about knowing it, knowing how you are, trying to rest (ha!)

At the moment I am in pain everywhere and just knackered all the time. I've just got to the stage where I accept it. In the end, it's really all you can do.

Exercise is supposed to help. And getting more sleep.

although exercising when you hurt everywhere and getting sleep when one of the problems is - erm - getting sleep is difficult!

You're also advised to stay away from tea, coffee and alcohol. Stay away from coffee?

ok, my mum has FM, which is why I mentioned it in the first place. i already take shitloads of regular painkillers and am back on fluxeotine(sp). I start a course of acupuncture next month and have some exercises to do.

Im just in so much pain all the time. when were you diagnosed?

A few years ago. It was a relief actually, to finally have an explanation for everything. I felt better able to deal with it once I knew what it was.

I felt like I was going mad! I suffer quite badly from what they call 'fibrofog'

ive just been reading about that and it all seems so familiar. DH and I have been joking for ages about how early my senior moments ahve come upon us. Ive suffered with depression since having DS, but have had EDs since I was very, very young. I thought I was depressed because I was in pain, I didnt think they were linked so clearly.

there is also a likelihood that I have endometritis.

Yes, it's a bloody awful thing. Sorry about the endometritis too.

You really do feel like you're losing it. I find I'm having a conversation and just stop because the word I am looking for has gone. And it will be something like 'chair' nothing difficult. I have to sit there and wait for it to come back to me. Or I'll mean to say chair but I'll say goat instead or I'll suddenly stumble over my words so badly they jumble and I have to stop, take a deep breath and start again. And by the time I've got to the end of a conversation, I've forgotten how it started

All you can do is laugh. Stressing about it makes it worse.

Do pester the gp if a drug isn't helping after taking for a month, I rely on amyl and nap radon as well as tramadol and codeine phosphate to get my thru the day.

I have found taking my amyl at 5:30pm not 8pm as advised with an expected in bed time of 10:30/11 to be good and if I can, am in bed by 10:15 and can drop straight off, going to bed later often means no sleep until sparrow fart o'clock.

The fibro fog is such a downer and can make everything feel much worse.

thank you!

Friend has Fibromy : went through Gp Specialist the lot and no good Then she went for acupuncture- it really helps her.