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Pls ignore if already done,but to all these that love life[and even those who dont]....

22 replies

ebbie22 · 22/02/2006 21:47

INew kind of Breast Cancer - DO NOT DELETE

Please forward to all of the women in your lives -- Mothers, daughters, sisters, aunts, friends, etc.

In November, a rare kind of breast cancer was found. A lady developed a rash on her breast, similar to that of young mothers who are nursing.
Because her mammogram had been clear, the doctor treated her with antibiotics for infections. After 2 rounds, it continued to get worse, so her doctor sent her for another mammogram. This time it showed a mass.

A biopsy found a fast growing malignancy. Chemo was started in order to shrink the growth; then a mastectomy was performed; then a full round of Chemo; then radiation. After about 9 months of intense treatment, she was given a clean bill of health.

She had one year of living each day to its fullest! Then the cancer returned to the liver area. She took 4 treatments and decided that she wanted quality of life, not the after effects of Chemo. She had 5 great months and she planned each detail of the final days. After a few days of needing morphine, she died. She left this message to be delivered to women everywhere.

Women, PLEASE be alert to anything that is not normal, and be persistent in getting help as soon as possible.

Paget's Disease: This is a rare form of breast cancer, and is on the outside of the breast, on the nipple and aureole. It appeared as a rash, which later became a lesion with a crusty outer edge. I would not have ever suspected it to be breast cancer but it was. My nipple never seemed any different to me, but the rash bothered me, so I went to the doctor for that. Sometimes, it itched and was sore, but other than that it didn't bother me. It was just ugly and a nuisance, and could not be cleared up with all the creams prescribed by my doctor and dermatologist for the dermatitis on my eyes just prior to this outbreak.

They seemed a little concerned but did not warn me it could be cancerous. Now, I suspect not many women out there know a lesion or rash on the nipple or aureole can be breast cancer. Mine started out as a single red pimple on the aureole.

One of the biggest problems with Paget's disease of the nipple is that the symptoms appear to be harmless. It is frequently thought to be a skin inflammation or infection, leading to unfortunate delays in detection and care. What are the symptoms?

  1. A persistent redness, oozing, and crusting of your nipple causing it to itch and burn. (As I stated, mine did not itch or burn much, and had no oozing I was aware of, but it did have a crust along the outer edge on one side.)

  2. A sore on your nipple that will not heal. (Mine was on the aureole area with a whitish thick looking area in center of nipple).

  3. Usually only one nipple is effected. How is it diagnosed? Your doctor will do a physical exam and should suggest having a mammogram of both breasts, done immediately. Even though the redness, oozing and crusting closely resemble dermatitis (inflammation of the skin), your doctor should suspect cancer if the sore is only on one breast. Your doctor should order a biopsy of your sore to confirm what is going on.

This message should be taken seriously and passed on to as many of your relatives and friends as possible; it could save someone's life.

My breast cancer has spread and metastasized to my bones after receiving mega doses of chemotherapy, 28 treatments of radiation and taking Tamaxofin. If this had been diagnosed as breast cancer in the beginning, perhaps it would not have spread...

TO ALL READERS:
This is sad as women are not aware of Paget's disease. If, by passing this around on the e-mail, we can make others aware of it and its potential danger, we are helping women everywhere.

Please, if you can, take a moment! to forward this message to as many people as possible, especially to your family and friends. It only takes a moment, yet the results could save a life

OP posts:
Lawksamercy · 22/02/2006 21:57

just done a quick search on Paget's disease - it is a bone disease not a new form of breast cancer. Looks like this email is a hoax, ebbie.

ebbie22 · 22/02/2006 22:09

Oh ok,but i guess if it helps one woman to see her children and loved ones for one extra day it would be worth it xx

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CountessDracula · 22/02/2006 22:09

NO paget's is also a form of breast cancer but it isn't new

getbakainyourjimjams · 22/02/2006 22:10

There are 2 diseases by the name of Pagets- one is breast cancer- looks similar to eczema in early stages. Always get any breast changes checked.

CountessDracula · 22/02/2006 22:10

here you go

picnikel · 22/02/2006 22:11

It's not a hoax, just there are more than one "Paget's disease". Pagets Disease of the nipple IS a form of breast cancer though it's not "new".

ebbie22 · 22/02/2006 22:12

Yeah sorry my mum emailed me it and said she didnt think it was a new form,but never the lessx

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CountessDracula · 22/02/2006 22:13

Surely everyone knows that if you get breast changes you should get them checked out

goldstarlover · 22/02/2006 22:14

i wouldn't... not if it was just a excema type thing.

so thanks for the warning!!!!!

picnikel · 22/02/2006 22:15

Yes, but this can be just mistaken for eczema so people may not realise it needs checked.

CountessDracula · 22/02/2006 22:15

Really?

I have eczema but nevertheless have been and got checked out if is on breast.

goldstarlover · 22/02/2006 22:16

yeah really! but then i am a bit funny about seeing doctors!
i do tend to think i can deal with stuff myself until it gets very bad...

ebbie22 · 22/02/2006 22:20

No u must get it checked....I wish i had of with my cyst in my ovary when i was 17,BUT the year b4 last i still diddled and daddled when had cyst in boob,thankfully it was all ok BUT to think that i could of not been here today is just not worth thinking about it....

OP posts:
RedTartanLass · 22/02/2006 22:28

Most of my close female relatives (maternal and paternal) have had breast cancer so I thought I was quite clued up on checking. But to be honest I think I would have probaby have ignored a small rash.

Still thread that raises the profile and gets women checking can't be bad!

ebbie22 · 22/02/2006 23:04

..

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brimfull · 22/02/2006 23:15

I have an itchy aereola at the moment with flakiness have had it for a month or so...so thanks for this thread,I'll phone the gp tomorrow {shock]

ebbie22 · 22/02/2006 23:20

If it helps one person take notice,keep on bumping,i need to sleap..lol

OP posts:
ebbie22 · 23/02/2006 08:56

incase anyone is interesrted...

OP posts:
RedTartanLass · 24/02/2006 10:16

ggirl how did you get on at docs?

ebbie22 · 24/02/2006 16:26

Did u go???

OP posts:
brimfull · 24/02/2006 16:52

no,I haven't been yet.Couldn't get an appt with my (female ) dr today.I am going to phone again on monday am, They don't allow you to book appts ahead of time,only on the day.

Thanks for your concern.In the meantime I'll try some fo ds excema cream.

ebbie22 · 27/02/2006 23:24

how did u get on?

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