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thinking the worst....and a bit scared...possibly TMI...

41 replies

motherwifeteacheretc · 21/05/2012 17:57

Just wanted to write this down and see if anyone else has any similar experience/thoughts/wisdom/etc.....

Basically 3 weeks ago I went to the GP as for about 6 weeks I have been having bowel trouble :( in summary - Loose stools/Diarrhea - whenever I go, an urgency to go, going up to 4 times a day, pain in my lower tummy, bloating, gross offensive smell to the stools, mucas...and blood both in and separate to the stools, as well as feeling sick and generally fed up -

The gp was great found no obvious reason for bleeding (after an examination) and ordered full bloods and celiac test -

over the last 3 weeks, while waiting for the bloods, have googled and convinced myself it is Bowel cancer - as the symptoms fit - except the one symptom the sites kept saying was a low iron count which I did n't know I had - then today the GP said - well most things on the blood work look clear, except a low iron count and I want to refer you to the hospital.....- When she pressed my stomach today I felt instantly sick, I gag and know I am stressed/worried -

although hubby knows I've been unwell, although we have a great relationship, I have n't gone into any info re: bowel trouble or told him anything, we just don't do that type of talk...anyway I digress - I'm sure the appointment will come through and I know it could be chrons/UC etc but I am worried.....

Has anyone had a similar experience?

OP posts:
seenitallbefore2012 · 27/05/2012 21:25

thenight...totally agree, not impossible, just less likely than IBD

There are well known familial bowel cancers and rarer types like carcinoid as well as just being plain unlucky x

thenightisyoung · 28/05/2012 08:44

motherwife thanks :)

seenitall yes, I think I was just unlucky, though in other ways lucky as it was discovered in the early stages which not many are as they tend to be asymptomatic for the longest time

motherwifeteacheretc · 06/07/2012 22:00

Just updating this thread as I feel a bit back to square one, I had my colonoscopy today and before I went in the consultant was sure it was going to Chron's or UC and said he would start me on steroids today if it was found...but when I came round the consultant was a bit sheepish, didn't come and see me and the nurse just told me that 4 biopsies were taken and I'm now in the wait for results....

So obviously back to thinking the worst...

Since my op gp and consultant kind of convinced me it was going to be Chron's or inflammation but also wanted to rule out anything sinister....now I'm left with just thinking the sinister...

Anyway up to a 2 week wait now...Sad no real point to my update except wanting to write it down....

OP posts:
numbertaker · 06/07/2012 22:02

Dr Google will see you now, the diagnosis: always cancer.

numbertaker · 06/07/2012 22:04

I would put no store in anything until you have the results. Only bank on what you know, not what you don't know. Plan something to take your mind off the wait.

numbertaker · 06/07/2012 22:06

Take it from me, I have been to see Dr Google so many times, and its always worst case scenario, you just have to not google. In one week I had four cancers, a rectal/vaginal prolapse.

motherwifeteacheretc · 06/07/2012 22:18

Thank you, I love you bank what you know saying...luckily I think we have so much going on in the next two weeks house move/holiday/new kitchen but just a bit flat to have symptoms and still no answer 5 months on....

OP posts:
motherwifeteacheretc · 06/07/2012 22:22

Your not you

OP posts:
numbertaker · 06/07/2012 22:23

I hope all goes well for you, and you get the right treatment and results.xx

Crumblingslowly · 06/07/2012 22:36

I hope this helps, but I had very similar symptoms to you some years ago & also had a colonoscopy for diagnosis.They couldn't see much at the time & always do biopsies as a matter of course,so this doesn't automatically mean they suspect cancer.
As it happens, it did turn out to be Crohn's Disease,but they could only see it once scruitinised microscopically IYSWIM.It was "mild" Crohn's (altho I was permanently on the loo!!) so I guess that's why they couldn't tell me at the time of the colonoscopy what it was as there wasn't much to see.
Often the consultants who perform these procedures don't always comunicate clearly what is going on as it's so "day to day" for them ....it's quite possible that he's not particularly worried & just rushed off to the next person on his list.
The main thing is you are doing something very positive about sorting it out,not ignoring it & the Doctors are "on the case" to get you sorted & well again.
I hope that helps a bit....
My Crohn's Doc said to me only today that I was due my check up again.....oh deep joy picalax here I come!!

motherwifeteacheretc · 07/07/2012 06:09

Crumbling - thank you your post helped a lot, I did nt realise they biopsy for Chrons and presumed it would be seen as it were.

All a bit clearer now, thank you.

OP posts:
Crumblingslowly · 07/07/2012 12:49

No problem at all.Am glad to help.....I think the symptoms don't always reflect what they can see via the 'scope...so you can have rampant diarrhoea etc etc with not a lot going on to see in the gut.What the biopsies do is take a section through the gut (sorry if TMI) so they can look at the next layer where (I believe) the inflammatory bit may lurk....or just the inflammation is too "fine" to see with the naked eye.
I am of course talking about CD...I don't know too much about other gut disorders.
I have had colonoscopies where not much to see....then others where the Dr likes to gather students around the scope/monitor to show them all what CD looks like ......lovely,thank you.
Best piece of advice I was given by the nurse when I was given the diagnosis (bit of a relief in some ways)...don't go looking this up on the internet for a while.
Google is great at times but can be overwhelming too...if you are like me & rush off down the catastrophy path,it can be too much.
Support like mumsnet is great,more down to earth.
BTW.....just practical advice,avoid too much roughage....that really irritates the gut when it's making you rush to the loo frequently...it gets hyperactive!,also alcohol (sorry) & chocolate (eek!).....altho that may just be me.
HTH

LilQueenie · 07/07/2012 13:12

I had exactly the same symptoms and for me the cause was a very large ovarian cyst and endometriosis which had attached to my bowel causing a block. doctors kept me wwaiting 9 months telling me to eat more fibre...

Crumblingslowly · 07/07/2012 18:52

Gosh you poor thing Lil....so good that they finally managed to sort it out in the end I hope.
Smile

LilQueenie · 07/07/2012 23:58

yes but it cost me. removed a tube and ovary and part of the other. Thankfully after 2 more cysts I had ivf and now have our daughter. A&E told me on 2 occaisons it was probably a water infection!

Crumblingslowly · 08/07/2012 13:53

Oh my goodness Lil,what an ordeal.
Am glad to hear that the IVF was successful & you have your daughter,but I know from my own experience that that is a stressful (understatement) path to follow.
Trouble is I think IME most specialists tend to focus on one small area only (obviously that's why they are specialists!) & you have to be a bit persistant when you feel least able to be assertive.....when you are ill.
Coincidentally I also had massive cyst removed (they took everything out as I am an old git & well past reprod age) & the Crohn's has improved as a result.

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