surport thread for any one with hearing trouble, or just starting out with tests

[trace2]

hi i have started this thread as found there is a few of us just starting out with hearing tests adults and children welcome, and those who already gone through it help us understand and hold our hands

here you go

thank you for explaining looks painful how old is your dd?

Trace the nhs aids are very good, just make sure you get regular ear moulds done as these need to be tight to not let any other sound in. Have they referred you to a teacher of the deaf ?

she's 6. It was a real shock as we had no idea it could be genetic.

Oh Trace sorry it wasnt the news you were obviously wanting xx

Still no further with DS ive chased the childrens hospital up, to see when he is likely to be seen by ENT, but the consultant hasnt even looked at his referral yet im trying not lose my rag with them, everything is held up by this now! and in the mean time poor DS is as angry and frustrated as ever, because we cant understand what he is saying .

hatchypom there's no moulds its a tiny little thing they just send for it and fix to how her ears can hear , sorry can not remember the name. and yes they giving us a deaf teacher we met a lady today but ours is a man but they work together, she tried to explain lots to me regarding school and what will happen now they gave us results too ,

swearytramp havE you got same genetic syndrome then?

3cutedarlings i would push it i did and they was saying today how quickly we have been seen, am so glad pushed it, keep us informed with it all !

Ill keep pushing, all im actually wanting is to know which doctor he'll be under as i can then make it known to the appointment clerk that should they get a cancellation we can see them a short notice, should they get any.

I am tempted to speak to his Neuro pead to see if she can give them a nudge.

whos his neuro? ours is dr ritty are you going to childrens?

We're under Sue Gentle at Ryegate for his development, which is part of the childrens but its at a different site.

The ENT and audiology is at the main childrens, think its just bad timing by the sounds of it, half the consultants in that department are on their jolly holidays.

I just feel like i am wasting everyones time, he is due to be seen at Ryegate again in a few week, i might as well just cancel the appointment because i know that they will (rightly so) want to see how he get on with the ENT doc.

we was under dr bateman at ENT at childrens he was very good then we saw an other can not remember him but both was very good dr bateman took out her tonsills we have been to rygate to many times u know we not very far from each other?

So when you we're under the ENT at sheffield they never thought to test your DDs hearing?

DS's notes are currently with a Dr Ray (i think ) but i think they will be passed over to someone else hopefully VERY soon! as Dr Ray is of sunning his sen on a beach somewhere!! so is of very little used to us atm!!! .

Yes i know your not far at all from me Trace, im your side of sheffield too, i live close to the wednesday football ground , you probably would have drove past the bottom of my street to get to Ryegate.........small old world innit? .

they always asked is her hearing ok we just we just shrugged and i bet they thought she under so many doctors they must know , but am thinking that she under so many they all think some one must be dealing with it and her speech ,, i have passed your end very often still do every few months lol

i really hope you get it sorted i know how i felt not knowing[sad[

Too many cooks spoil the broth!! but these are bloody professionals!! GRR

Anyway it looks like my constant phoning has paid off the postman has just delivered DS appointment is for the 24th of this month YAY!!!

My gut feeling is that DS just has glue ear, tests did indicate this but they also said until we have seen ENT they cant be 100% sure!

How you feeling today trace?

sorry, yes, we both have unilateral microtia - basically, one ear each

3cutedarlings way hay so pleased you now more nearer to finding out

swearytramp just tried reading about its very hard reading sorry to ask but have any of you got deformities on the outer ear?

am feeling better thanks we think dd is getting worse in only a few weeks from doing the test and putting both graphs together you can see is worse wondering if the ear infection made it worse? i just hope they manage to get her a pink one cos she telling everyone and lets hope we can get her to wear it ?

Im sure they'll get he some pink aid trace, be silly of them not to!!. Regarding keeping them in, i know its a little different, but both my DDs wear glasses now DD (ASD) was a nightmare to get her to keep them on (she threw several pairs of the car window!!!) but she has one good eye! so she can actually manage quite well without.

Now DD2 on the other hand, has really bad vision and we never had any bother with her keeping them on, she can barely see without them (she's very crossed eyed without them on). I think you'll find that once your DD has got used to how much better and easier for her the aid will make things, that she'll wear them, in theory anyway.........fingers crossed!.

Failing that im sure we can come up with some good old fashioned bribery to help .

Now DS > i think his hearing is a little better, his speech has come on a little this week (jumps up and down excited!!) he seems a little less jumbled up and there is more gaps between words IYSWIM. He is still saying WHAT!!... WHAT!!...WHAT! every 10 seconds, well HOT! actually rather than what, but i know what he means, but i think thats could well just be habbit !. Its the frustration thats the hardest to deal with and although most of the time i can understand him, the times when i cant, he will stand there repeating the same sound over and over, so it obviously means something to him!, any enough of my rambleings, you know this parenting lark is bloody hard at times!.............pours more wine, tis the weekend after all and the sun is (sort of) out .

hi hows every one?

we received our letter today saying she as high frequency sensori-neural hearing loss dropping of at 3000Hz at 25 dB on the right down to 95dB for 8KHzon the samw side and on the left there is slightly more pronounced from 25 dB FOR 2KHz down to 100dB for 8KHz and physical examination revealed non-ventilated middle ears bilaterally therefore may be a conductive over lay to this loss , no idea what all this means?

Have you got a Teacher of the deaf who could run through it. Otherwise you need to google speech banana and see what level of loudness and at what frequency you need to hear speech etc. if you can't get anywhere call the NDCS helpline and they will get someone to explain and call back. My 5 week old gets his aids next week - have no idea how to get them to stay on

Can I join? My DS has been referred for hearing assessment by gp, he's 5 and the school nurse picked up a potential problem with hearing at his school check. I'd asked at nursery and his school whether they thought there was any issue with his hearing as it's so bloody hard getting his attention! His speech is clear though so no-one thought there was an issue up to now. I have no idea what happens next, can anyone help?

hi sorry not been around we been pretty busy! dd still not got her aid:( still waiting for teacher of deaf to contact us, hi Brandnewbrighttomorrow cause you can join dont know if i will be any help though just starting out our self, i think they will first send him for some tests different hearing tests to see if its related to glue ear or not , then maybe send you to ENT doc.