It's rubbish, isn't it!
Last year I was diagnosed after suffering from labrynthitis. I think this was part of the PVF and not the start if it. I'd had Bell's Palsy the year before
After lots of blood tests performed by GP, being admitted to a general health department at the local hospital (where I had a CT and MRI of my brain) and a private visit to a neurologist, I was basically told that there was nothing wrong with me, that was I anxious and a learned behavioural family pattern was the culprit (my dad has been bed bound for twenty years with a chronic illness).
A year ago, I was feeling very anxious. I'd lost a close friend to bowel cancer and I became increasing worried that I had a terminal illness because of the muscle twitching and weakness I experienced constantly. The fatigue, night sweats, tingling and numbness amongst other things bothered me night and day.
A few weeks before seeing the neurologist I started to feel better. The fatigue left me and I returned to work. My muscles still hurt occasionally but I seemed to be on the road to recovery. For six whole months I was absolutely fine. I went to work and did intense exercise twice a week.
Then last week, my left leg began to twitch again and aches constantly. The twitching has reduced now and comes and goes. I've also had fleeting muscle twitches in other parts of my body, as well as an eye twitch and a few bouts of dizziness/spaced out feeling without fatigue. I haven't seen the GP- I know I'll be fobbed off again - the neurologist said at the end of my visit that I had PVF like fibromyalgia.
A very long post. Please excuse typos. I'm posting from my mobile.
If you're still reading, come and share your stories. I'm particularly interested in why relapses happen as I assume that's what I'm experiencing now.
And Whelk, if you read this, please let me know how you are.