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Protopic cream for eczema now on NHS

14 replies

bunny2 · 27/11/2003 19:23

Anyone with a child plagued by eczema might be interested to hear we got an NHS prescription for Protopic yesterday. Last time we got Protopic (v effective alternative to steroids) it was on a private prescription from Grt Ormond St hospital. Its £90 a tube so imagine my delight when, yesterday, at a check up with my ds and the paediatrician, we were told I could get it on the NHS now. I dont know if this varies from region to region (we are in East Dorset) but it might be worth asking about it locally. I hate using steroids on ds every day and Protopic gives us a chance to have a break from them.

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misdee · 27/11/2003 19:31

its been available for a while now i belive. i know it was available here since last year/year before, but getting it is a nightmare. might ask about it agin soon. is it available from the gp or just specialists?

princesspeahead · 27/11/2003 20:09

its been available for a while, weve got it on the nhs in london and now wilts

CountessDracula · 27/11/2003 20:10

What is protopic cream? My dd has mild ecezma, I hardly ever use steroid cream but hate doing it when I do. Could this be appropriate or is it really reserved for kids with bad ecezma?

AussieSim · 27/11/2003 21:09

I was excited to read about Protopic here and had a look on the website and it appears that the cream is not recommended for under 2 years old. The website is Protopic.com

bunny2 · 27/11/2003 23:36

CD, tacrolimus cream (brand name Protopic) is a non-steroidal cream for eczema. It has beeb licensed for a few years in USA and Japan but difficult to get here. It eases the itchiness of eczema after a few days use and has had good results where steroids havent. I have been refused NHS prescriptions (I'm sure due to cost) for over 2 years so am very happy to finally get one. It works, it doesnt have long term effects and its FREE!!! Ask for a prescription, you might get one and it is a great alternative to steroids.

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CountessDracula · 27/11/2003 23:38

Thanks bunny, will ask but if it's £90 a tube I don't want to use up the funding for someone who has it badly. Will enquire.

bunny2 · 28/11/2003 19:24

Good point CD, they prob wouldnt prescribe for mild eczema anyway.

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misdee · 28/11/2003 23:10

i think its for modertae to severe ezcema. dd1 eczema has started to get better, so dont think we'll be needing it anyway unless it gets really bad again.

bunny2 · 29/11/2003 21:38

Great to hear your dd is healing Misdee.

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AussieSim · 01/12/2003 12:20

My ds's dermatoligist gave us Protopic today (he just squeezed some into a little plastic cup) for us to try for the next week. I told him I thought it was only for 2yrs and up and he said it is safe from 3mths (my ds is 10mths).

bunny2 · 01/12/2003 21:49

I think it has only undergone extensive trials in overs-2s but is still often used on younger children. Ds was prescribed it at Gr Ormond St when he was 17 months. I have been using it on his neck for 4 days and the skin is beautuful now (previously, sore and itchy even with steroids)

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AussieSim · 07/12/2003 15:23

The protopic didn't work on my ds. Back to steroids and a different regime.

bunny2 · 09/12/2003 10:16

Bad luck Aussiesim, I cant stop raving about Protopic but sadly it doesnt work for everyone. Hope the new regime is more effective.

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anniethenannie · 11/12/2003 15:43

Try a free sample from Elenas Nature collection for eczema. Not easy to get on the NHS but possible with patience and perseverance if your GP is alternative thinking.

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