no sleep/always ill please help

[kinky1]

my son wont sleep he has a behaviour problem from being in hospital with asthma/bronchilitis i need help

How old is he?

he is 13 months been admitted 2 hospital 4 times from the age 4 months

Dont think it is a behaviour problem at that age, have your tried CC??

Would it make him ill to do cc?

what is cc? our health visitor told us its a behaviour prob

Rubbish, it may be because he has no real routine due to the stays in hospital. CC is controlled crying

I assume you have tried cuddles, bath, warm milk, before bedtime each night, he may just need to learn when it is time to sleep.

Your hv is talking crap.

Ive been a nursery nurse for 8 years and I know alot about ' Routine!' My son has a strict routine during the day/evening regardless of his stays in hospital. Ive recently had his asthma nurse specialist and health visitor observing him during 'HIS ROUTINE' and they both have replied that my son is suffering with symptoms such as me leaving the room, extreme crying and frustration due to staying in hospital for such a long period of time in his life. Tried cc but due to his asthma and long term breathing difficulties I find all he does is get extremely weezy to the point where he's fighting for breath! Ive been recommended lots for during the day which isnt now as bad but the night time just isnt getting any easy and its disturbing my other child. Only getting about 3-4 hrs sleep every night so im feeling very run down but most of all so useless to my baby!!!

Not sure what to suggest then, but still would'nt describe it as behaviour problems.

Is he crying through the night or just awake, my sister has a 2 yr old who only sleeps 6 housr out of 24, it is just unfortunate that that is all he needs, as you can imagine she is exhausted.

have no concerns about his development yet. But the constant crying is so draining. He has inhalers and is on steriods which does seem to be controlling the weezing, up until he gets so upset which is during his sleep pattern. He wakes every hour screaming. mostly concerned about the length of crying, being sick alot of the time (sometimes due to coughing so much) and lack of sleep. Before his addmition to the childrens hospital his was the perfect baby- he would eat everything and anything, he would sleep through the night and he would smile all day long. It upsets me incredibly to have seen this change in him- i miss his smiles dearly

sounds like your ds son has separation anxiety, which is not uncommon for babies who have chronic illnessess.
I wouldn't class this as behvioural prob, most babies get it to some extent.
Have you tried burning laveder in an oil burner before he goes to bed?
Whats your night time routine just noe?

have tried lavendar, sudafed, and a vapouriser none of all has been successful. He now sleeps back in our room in his cot due to waking up my other son constantly when they shared a room. so annoyed at how bad his asthma really is due to my partner and I being non-smokers, we have no pets and the house is generly dust -free as it can be!
His night time routine is as follows:- 5:30 dinner, 6:30 bath, 6:50 quiet time i.e reading a book to eldest, 7:05 medicines/inhalers/teetha etc whatever needed. 7:10 cuddle down with fleece blanket/ bear, 7:15 milk whilst craddled in arms, asleep by 7:30pm (but not always settles this quickly!)

What happens once he is settled for the night? It sounds as though the hospitl visits may have left him feeling a little insecure.

Hiya kinky im not sure if i can help at all but this sounds alot like my ds1 he has had very bad asthma and has been in and out of hospital a few times from about a year old really and he was put on inhalers (beclamethasone and becotide) he is now 5 and has had ALOT of behavioral probs we have been to see child psychologists from a referal from school as he has been so bad, and i spoke to an asthma nurse recently where we decided to ditch the blue beclamethasone inhaler and just give him the brown one as apparently the blue one has cide effects that make you feel very shaky and jittery - this affects you in different ways and as a result made my ds very hyper, moody, forgetful, and he NEVER slept, he has now been of the blue for 4 weeks and he is truly a different child! he's good at school, he eats really well he sleeps really well and we have no trouble from him anymore, well, no more than the normal you'd expect from a 5 year old anyway! Im very aware that some kids asthma is so bad parents wont, shouldnt and darent change medication and im not suggesting you do anything without checking with GP first of course, but i just thought it might be something worthwhile considering?? I hope you manage to sort things out soon!!

its putting such a strain on our relationship.as soon as we put him down he goes beserk i cant get anything done im so depremn ssed

Agree with one of the other posters, the ventolin (blue) will make him feel uptight, anxious etc. Would it be possible to give him his blue inh, before bath quiet time. It actually works better if you give the blued on first and then the brwon on later on as it means his airways are opened and the steroid inh works beter.
Once his wheezing etc is under control, then you can think about cutting out the blue one and using the maintainance brown one.
Continue to use lavender and try homeopathic chamomile powders.

his wheezing isnt that bad just his behaviour im convinced the original bout of bronchilitis has scared him the doctors have said he has weak lungs we just cant win its so draining

Don't want to sound patronising, but what do you understand about his medication, do you know what each of them will do??

yes we do understand his meds. im thinking about taking him 2 a specialist 2 see if there are any new meds or ideas about how 2 help him.

Great! Really really dont want to be patronising, it is easier for you to try and control and stay in control when you've got a good understanding of the medication.

It must be so hard for you.
my friend ds is 4 and when he gets an attack and has to up the blue inh he is sooo badly behaved!
I would think at this point though, your babys memory is short he would not remember the bronciolitus, although you very much will.

Am really sorry I cant be of much more help, but definately have a chat to your dr about reducing the blue inh before bedtime.

Even a referral to a sleep clinic?

Hope you get a good night soon

we have tried 2 reduce the blue inhaler b4 and it makes him cough loads and wheeze even more

Nightmare!!!
Am so sorry I don't have any other ideas but will ask around at work, get yourself refferred and
I really really hope you get a break soon

we had a good nite 0n wednesday night he slept all the way through but after oh my god back 2 usual with a vengence im losing patience with him

Poor you, how frustrating.
Sometimes think its worse if you have a nights sleep going back, you always feel worse!
At least you know he's capable of it... but it doesnt help knowing that when hes up at 3am.