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Aortic heart valve replacement

16 replies

Fluffpuff · 22/02/2012 08:01

Anyone out there had their aortic valve replaced.Did you opt for tissue or mechanical valve and if mechanical how are you on the warfarin? If tissue why did you choose this option? Also how was your recovery? I would be grateful for any input on this.

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NK346f2849X127d8bca260 · 22/02/2012 09:32

My mum had hers replaced at the age of 72 she chose
a bovine valve as she already takes alot of drugs for her Rheumotoid arthritis and didn't want to add Warfarin to the equation.
She had a bit of a rough ride afterwards with a wound infection and a lung infection that required draining and ended up staying in hospital afterwards for 3 weeks.

It is now coming up to 4 years since her op and she is back to her old self before she became ill, last year she even replaced the roof on her shed!!!

diamondsonthesolesofhershoes · 22/02/2012 09:43

My dad had a mechanical valve fitted 10 years ago when he was 41. As far as i remember he wasn't a suitable candidate for the tissue one (the reason for the op was an aortic aneurism). Unfortunately his condition has meant he's needed further operations on his aorta but the original valve he had fitted is going strong! He manages his warfarin fine but I think he supports it with watching what he eats too.

diamondsonthesolesofhershoes · 22/02/2012 09:46

Ps: he's recovered brilliantly, after his last op he was in hospital nearly 4 weeks, at home taking it easy at 6 weeks and plying golf at 12 weeks :)
The only way anyone would even know is a gentle thumping you can hear if everybody's quiet!

CokeFan · 22/02/2012 09:55

My mum had this about 6 years ago in her mid sixties. She really needed a hip replacement but then they found the heart problem on the day she should have had the hip operation (pre op checks hadn't picked it up and she'd never had any symptoms). The surgeon said he'd be happy to do either mechanical or tissue in her case.

Since she knew she was going to have another major op, she went with the tissue option. She's recovered well and only needed warfarin for a couple of months. I think it would have been a bit of a pain for her to be on warfarin permanently because she would have kept having to go back to the hospital to have the dosage altered.

As far as recovery goes, it did take her a few months to get back to her old self and regain her strength. I think they gave her a lot of anaesthetic and she also had an epidural afterwards.

She has a check up every year and they haven't found any problems with it.

nubbins · 22/02/2012 10:34

my DH had the Ross procedure almost a year ago. He had a tissue valve because he hated the idea of warfarin and all the hassle that goes with it.

His recovery was great amd straight forward, but that had a lot to do with his attitude, age and a very understanding employer.

Now he is better than ever and back to 6 monthly checkups.

Fluffpuff · 22/02/2012 19:43

Thanks so much for your comments,I have been advised a mechanical valve as due to my age of 49 would need more ops in the future as tissue valves don't last as long. I am also extremely active and would wear out a tissue valve quicker. However very worried about the restrictions of taking warfarin. Such a difficult decision.

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Fluffpuff · 22/02/2012 19:51

How old was your dH?

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Fluffpuff · 22/02/2012 19:56

How old was your dH? Which hospital was the procedure undertaken? I was told about the Ross procedure, probably need to research it more.

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AmazingBouncingFerret · 22/02/2012 20:02

My DH had a replacement last year.

He went for the mechanical one and his recovery was amazing. He was in hospital for 8 days and was back at work 6 weeks after the operation. He manages fine on the warfarin, it has easily become part of his nightly routine.

He runs every other day and is currently in training to do the Freedom Trail in a few months for charity.
He is fitter than he's ever been and it isnt even a year since he had the op!
He's 29.

nubbins · 22/02/2012 20:02

Dh was 41, on the old side for having the Ross I think they said, might be worth asking about anyway especially if you are fit and healthy.

If you google it, there is lots of information. When his consultant mentioned it we had never heard of it before, but it became a no brainer.

pm me if you want all the details, i won't waffle on on here!

Madsometimes · 22/02/2012 21:44

I had an aortic valve and root replacement nearly three months ago, at the age of 39. My aortic root was dilated to 4.8 cm and I also had a bicuspid aortic valve. I went for mechanical, because I wanted to reduce the risk of a re-op. When you have a graft, the risk of re-op is much greater than a straight valve replacement, because the graft also has to changed. Also, I knew that my family was complete, and I do not want any more children.

Warfarin therapy is still all over the place for me, but it is early days. I have bought a coaguchek xs machine, which costs £299, so that I can check my INR from home. The strips and lancets are available on prescription, which is great because they are very expensive. I haven't been signed off for home testing yet, but will hopefully in two weeks. Going to the hospital anti-coagulation clinic is time consuming.

My operation took about 4-5 hours, and I woke a few hours later in ICU. I felt fairly alert as I came round, and having the breathing tube did not bother me. I was not in any pain. Over the next hour or two I bothered my nurse with scribbled notes, and then the breathing tube was removed so I could talk. That was a little uncomfortable, because the tube was suctioned but it only took a few seconds. I spent that night and the next day in ICU. That evening my surgeon said I was well enough to go to the normal ward, so the chest drains were removed. That felt peculiar, but was not painful.

I had a few complications after surgery, and needed a pacemaker a week later. That probably upset me more than the operation because I was not mentally prepared for it. My perception of pacemakers was that they were for old people, and not for busy mothers. However, once it was fitted I was able to have a shower Grin - You are only allowed a shower once your temporary pacing wires are out. For most people that is 3-4 days, but as I was pacemaker dependent, it was 7 days. I was allowed home a few days later. My hospital stay was 12 days, but 7 days is average for this operation.

As I have a connective tissue disorder, I will need lifelong monitoring. I also have atrial flutter, and will need treatment for that. My pacemaker means that my flutter is symptom free, and my heart rate is normal. Now I love my pacemaker.

All the best for your operation. It is daunting for patients and their families, but is what cardiac surgeons do every day. My surgeon and her registrar were fantastic - only the other day I had some weird visual symptoms and was fast tracked to a neurologist without needing to go through A&E.

Madsometimes · 22/02/2012 21:50

My periods on warfarin are not too much fun, but are manageable. My cycle used to be 30 days, but is now 25 days. Days 2-3 are heavy, but tbh my periods were not good before.

nubbins · 23/02/2012 08:30

Hi again, DH went to St Thomas'. The care was excellent. Surgery a little longer than a straight valve replacement.

Just as a reference, 2 months before the surgery we went to a party and he could not make it more than 10 seconds on the dance floor. 2 months post surgery and we went to another party where we danced all night. the difference was evident incredibly quickly.

For months after the surgery he wished he hadn't bothered, however now, he would go and have the valve replaced without a second thought, but I am hoping it wont be neccessary for a good while yet.

Fluffpuff · 24/02/2012 16:37

Thanks for that, sounds like he made the right choice for him Was he given the option of a Ross Procedure as he seems very young to have a mechanical valve. The main worry is the warfarin but it seems like your DH is managing it really well.

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Madsometimes · 25/02/2012 11:41

Fluffpuff - When I told a friend that I was having a mechanical valve, the first thing she said was to go on to home INR testing as soon as possible. It is very similar to the kind of machine that people with diabetes use. My GP does not do warfarin, so I have to use a hospital based anti coagulation clinic, with the associated long waits and difficult and expensive parking. I have my home testing training on Friday, so hopefully that will cut down my hospital visits to a twice yearly calibration of my machine.

Fluffpuff · 25/02/2012 18:04

Thanks for the advice on that, not sure if my health centre does the warfarin clinics, must find out as it is a bit of a trek to nearest hospital and parking is a nightmare plus very expensive.

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