Fuck Fibro

[floralsanddresses]

I am done with this shit. It's never ending. I'm ultra rapid cycling bi polar with fibromyalgia and arthritis and it's just pain. Always. I wake up from the pain, I can't get back to sleep, I don't sleep for 2 days and then sleep for long periods of time. Even on good days it is moderate pain but I push on and then it's a fucking flare up and I'm completely reliant on others (DH usually) to tend to the DC's.

I'm on 1200mg Gabapentin, 30/500 co codamol, cod liver oil, vitamins, lithium, amitryptaline plus other pills for reflux and ibs.

I'm young. I am just so low and so pissed off. I'm laying here crying and if I had the energy I'd punch a wall.

I've jsut seen this too! . poor you. I know exactly how shite you are feeling. I don't have bi-polar though, I do suffer on and off with depression in various forms. My main thing is the Fibro. I posted on the other thread you're on about the pain I was in last night. It's not actually eased much today. Someitmes the pain is so hard to deal with - although I do realise I am lucky in that I can go a good few days between flare up (although they are more severe when they do happen)

I feel lucky that I don't have a terminal illness and despite the pain I am still here for my DC's. I am angry as I am young and this debilitating condition has a knock on effect with my moods which can make everything much more difficult. I just want to be normal. Sleep well, no constant pain, no flare ups, no violent mood swings, not having to apply for disability when I should be working to support the family I've created. I can't walk most days without aid, fall frequently, get anxiety attacks around people, my joints click every time I move and are so stiff and painful it brings me to tears to stretch. I mean...fuck!

I feel the same, and had the crappiest doc appointment ever today, he looked at me as if it was nothing, that for the last 10yrs i've had a jolly old time, falling over, walking with sticks, not being able to walk at all!!! I can't sleep properly, if i do i can't get up, i have to drive the smallest trip to nursery to drop/off collect my son, cause i can't manage it! It depresses me!!

Are you on any medication. According to the doctor I'm on quite a high dosage but it never really seems to touch the pain, just take the edge off.

Oh christ yes, Gabapentin, Amitriptyline, tramadol, paracetamol, now he has said he wants blood tests to rule out vitamin D deficiency (i've had loads of blood tests, never yet have i had this!

Same they said i'm on a high dosage and they can't "do anymore" he said

he wont send me back to my neurologist, even tho i have functional weakness to boot, and i have private physio, he said i will get better!! Yet i have been the same more or less for the last 10yrs!

I'm not on Tramadol but I am on the others (cocodamol instead of plain paracetamol). What dose of Amitryptaline and Gabapentin are you on? Do you claim disability?

Amitriptyline 20mg a night with a view of getting up to 70mg which is NEVER going to happen, i would never get up! Gabapentin is the same as yourself.

Yes i claim DLA but i also have Plantar Fasciitis and Tarsal tunnel, along with the fibro and Functional weakness, so all adds up to crapness lol!!

I've just applied for DLA. I hope to get both components as I can't walk 5 out of 7 days without aid. They're going through my medical files right now so it's all a waiting game. I have a volunteer to help one day a week from a charity due to my illnesses - would this be worth adding to the application to help my case?

Add as much information as possible!!

I'll call them tomorrow and include the fact I have a walking stick instead of a crutch due to my arms hurting and the volunteer.