Guillain-Barre syndrome/Peripheral Neuropathy

[weegiemum]

This will be very short as typing is hard.

I am just out of hospital after an attack of atypical variant GB syndrome. It has left me with no sensation in my legs below the knees or arms below the elbows, including hands and feet and the lower part of my face. i can do practically nothing for myself.

until 6 weeks ago i was fit and healthy physically. now im a little old housebound lady shuffling about, reliant on other people for everything. cant walk, cook, hold a book, even feel my childrens skin against my lips when i kiss them.

it could be a lot worse i know, but today its getting to me. i wondered if mn had any other peripheral neuropathy sufferers who understood a bit?

Hi, I'm a nutritional therapist and as part of my CPD studies, I've just finished reading a book called "Could it be B12?" by S Pacholok. It mentioned that anyone with GBS / peripheral neuropathy should have their serum B12 measured and also their urinary MMA levels checked, plus their homocysteine. These three measurements when looked at together can confirm or rule out any underlying B12 deficiency. Apparently it's not enough just to look at possible anemias on a complete blood count as a deficiency can exist without anemia if it's an absorption issue. Might be worth discussing this with your medical people? B12 deficiency, when it exists, can usually be sorted out with injections fairly rapidly and cheaply