Ds's heart test is due soon and I'm becoming a right mess worrying about it.

[macwoozy]

On Tuesday my ds has an appt at GOS to see if he's developed a hereditary heart condition. He has a 50% chance of developing it. I'm a complete and utter nervous wreck waiting for this appt, and I can't bear the waiting any longer. I've gone through the internet trying to find all I can with regards to children with this condition, and the statistics of sudden death are just scaring the hell out of me. 6% annual mortality. This might not sound a lot, but that's equivalent to all the children in my ds's class not surviving past 5 years. Please someone tell me to pull myself together, he hasn't even been diagnosed with it yet FGS, but I just need to sort my head out before the appt in case the outcome is not so good on Tuesday.

My ds is only 5, so that might sound a bit premature to be worrying as much as I have been, but although uncommon, children can get it in the first decade of life, and so of course I've convinced everytime he has a check up that he's already developed it. He's had 4 checkups already, and they don't get any easier.

I know it's really hard but please have the courage to make that appt soon, if you ds is showing that he indeed has DCM, then at least he'll be carefully monitored which could help to prevent any future complications should they occur. I know that's easy for me to say now my ds has just had his appt, but I do wonder if my ds's appt hadn't already been set up a couple of years ago, wether I might have put it off, for fear of hearing bad news.

I really do feel for you and know how very difficult it is making that appt. I pray that you'll recieve good news.

Thinking of you too Sally. Agree with Macwoozy - bite the bullet and make the appointment - at 11 they are starting to go further afield and doing their own thing. You need to know he's OK for your own piece of mind.

Great news!

Glad you had good news