Postnatal SPD - Support thread.

[hermionestranger]

Posted on the latest SPD sofa thread, but wondered if there were any others out there still suffering? DS2 is coming up 1 and still in daily pain. FINALLY, FINALLY got a referral to the orthopedic triage team, who I saw today. Am being sent for an MRI and referred to the pain management team. consultant I saw today was quite shocked it had taken this long to get a referral.

You and I sound very similar. I have really good weeks and really shocking weeks.i also struggle in hills and slopes, ds1s school is a walk down a hill so that's fun! I managed a weekend at Disney Paris last weekend yet not too long before I couldn't manage a full day at the railway museum! I feel like its a daily gamble on how bad it'll be.

It's v difficult to judge isn't it. Even on a good day if I do too much it wipes me out but on a bad day I can do v little.

I still think you should apply for a Blue Badge. They take account (or should do) that you have good days and bad days. I honestly don't know how I would manage now without mine. It's worth trying isn't it? :)

Hello, I'm new to the thread, hope somebody's still about! Have a beautiful 4 month old daughter, and severe spd.

First of all, Herbietea, I'm devastated for you. I wish I could help. Have you checked there is nothing Quentin Shaw can do for you (isn't he the top guy for spd)?

I'm making an 8 hour round trip every week to see a specialist osteopath so there's every reason to be hopeful, and I'm so lucky to have been able to get some good advice on all this early on.

Here's the tough stuff: It's been six months now of being disabled and I'm going out of my mind with loneliness. My heart goes out to everybody here. Can't lift the baby (GP is convinced I just don't want to), can't leave the house because can't walk/drive/push buggy (those buggy brakes were designed by someone with a special hatred for people with spd I'm thinking). Not even entitled to a blue badge apparently so not much incentive to be able to drive. OT followed GP's lead and told me I should just try harder. Have a wonderful mobility scooter but obviously can't clap the carseat on it. If I could lift the carseat...

Quickly going broke so DH's returned to work (in the office downstairs, so lucky but still, he's working) and we're entitled to sweet nothing except, possibly some vouchers for nursery care. The thought of sitting looking out the window while the baby is cared for in a nursery breaks my heart. But the thought of her being able to crawl is enough to spark a panic attack, because I won't be able to keep her safe. Even now, I think she finds the world very dull and spends her days yelling with frustration because it's her and me on a bed, mostly. This is a long-awaited baby and I think of the years of gruelling treatment and don't know how to make sense of any of it.

And I'm scared stiff I've done lasting damage to my back trying to lift the baby. Have had X rays and MRI done - all show misalignment and mild ossif-thingy but no significant diastasis (gap 10mm at widest point).

So ashamed I'm not coping better, but the truth is I'm getting hysterical. And this is while taking antidepressants (which I've taken in the past and had dreadful reactions to).

I'm sorry to go on. Any talkings-to gratefully received.

Been looking for you. Marking my place as its took me loads of searches to get here

Hello nothingsoextraordinary just offering my support. I'm 11 years down the line with this horrible condition. Unfortunately had much the same reaction with most nhs practitioners who seem to know so little about it. I've had many say to me 'just do more exercise' and 'try harder'.

You don't need a significant diastasis to make it bad, it's also as much to do with the misalignment as anything else. Although 10mm would be considered abnormal. Have you been in touch with the pelvic partnership yet? They've got lots of great advice and contacts. I would highly recommend a specialist physio who's in the Cotswolds who I got in contact with through them. I've also seen Quentin who was fab but just too far away from me to make the journey. He said he would want to see me twice a week for about a year to make a difference which is just not do-able. I've also been to see Prof.Giannoudis at Leeds Infirmary who is a specialist surgeon, he is excellent but obviously only offers major surgery as a solution, but at least he understands what you're going through unlike other orthopeadic drs.

I have found that acupuncture really does help; it's worth giving it a go if you've not already. I've had about 6 sessions now and it does give me about 2 days pain relief and my mobility is improved for a little bit. Anything that helps has got to be worth it. I don't take strong painkillers as I am intolerant to just about everything so acupuncture has been a real lifeline for me.

Take care, come back and tell us how you're getting on.

Can I join too. DD2 is now 2.9 and I have suffered since her birth. You all have my sympathies. Herbie I am so sorry for how you have suffered.

IN the last year I have significantly improved with cranial osteopathy and physio.

I had many appointments with an osteopath with no success and significant cost when one week he tried manipulating my head which was initially agonisingly sore in my pubic bone but has really improved it and I think he realigned it.

I followed this with ongoing regular physiotherapy (NHS thankfully) which has also helped enormously. This has been going on for 6 months and is continuing.

dd2 also requires much less lifting and pushchairs which I think contributes,

So I have gone from weeping with the pain and frustration of what I can't do to leading quite a normal life. I have days when it still hurts and there are some things I can't do but I can now run around and play with dds, walk long distances and even have s*x on top!!! (sorry if tmi). I have definitely ruled out another pregnancy though which is very sad but I think it would be the end of my pelvis!

I really don't mean this to come across as bragging and I know this wouldn't work for everyone. Just to give some hope really.

Lol at sex on top. Sat on dh knee last week to kiss him& ended up yelling & couldn't get off