Hey guys, I happened to stumble across this post when searching for the book.
I've read all your comments and felt compelled to join and make a comment, I've never really heard other people discuss eczema like this. It's great, I know this is an old post so I'm hoping some of you guys comment again and let us know if anything has changed. Here's my 2p worth
I'm a dad of two, married 31yo
I suffer from atopic eczema and have suffered since my teens, although it got worst about 11-12 years ago, like every one I have suffered the agonising taunt of the GPs with you need to moisturise and the constant steroid creams for flare ups. About 4 years ago I think it got too much for me and I visited a dermatologist in the Glasgow royal infirmary, they started me on light treatment, worked for the time I was having the treatment, but as soon as the treatment stopped the crazy itchy skin, sores on legs arms neck face and torso came back with a vengeance.
I was put on an immune suppressant called cyclosporine which dampens your immune system, but it comes with a price it is a drug which is given to transplant patients to allow the body to heal without reflecting new organs. It requires constant monitoring, weekly bloods, appointments and tests. This seemed to work for all of the inconvenience I put up with on my daily life, career and family with the appointments and drugs. But this drug has a life span 12 months max, I was on this for 18 months when I was called by my go and told that my kidneys and liver may have been severely damaged due to the drug, so I was told I was not able to take that any further...
Back to the drawing board I went.
My dermatologist explained there was another drug which could be taken long term but was a nasty drug. If you haven't heard of methotrexate then you might want to research it. I started on this drug with slow increases in dosage, after about a month I took very badly to the side affects and with into a very dark depression, with notions of killing my self thinking it was a better option and would be better for my family, now I'm not a half is glass empty kind of guy so with some help from my wife I realised this was. It me but the drugs talking.
It's amazing how something people view eczema as a contagious disease. I for one have had the self esteem issues everyone talks about with flare ups being that bad I just want to hide under my duvet and sleep all day.
Fast forward through many hospital visits and gps creams and various treatments.
To now, about 9 months ago my wife had a sit down with me and said you need to talk to someone, because of my skin I was being short with her and the kids snapping and shouting being a very horrible person to live with, I never had thought that my skin had effected me mentally, but it has majorly!
Living with eczema really is a disability which I feel should be recognised more.
I was diagnosed with severe depression, and advised to have a course of CBT cognitive behavioural therapy, and take Prozac daily.
It is a hard struggle to take yourself out of an equation and look in from another angle but.
Since managing my depression, I do have bad skin, but I'm mentally better equipped to deal with it, I have not been on immune suppressants for a while now and I'm glad I didn't continue with them they are very dangerous drugs and I wouldn't recommend them to anyone.
I'm now looking into the itching as I feel if I can get a handle on that then I'll hopefully allow my skin some relief.
Also I read up there, about getting that bad that you scorch your skin with hot water. I thought I was the only one who did this... I also went down the route of burning my skin with a hairdryer when I got out of the bath or shower, simply to feel the sensation to get a simple release from the innsessant itching to help sleep or deal with my skin.
I know I've rambled on abit so I apologise
But I hope you guys have found some release with this book.
Thanks for reading