Anyone else with endometriosis willing to offer an opinion?

[FrozenNorthPole]

I had stage 2 endo diagnosed during a lap & dye in 2007, the surgeon ablated the stuff on my ovary and uterosacral ligaments but left the bowel because she didn't want to risk perforating it. Since then I've had two children and pretty much breastfed throughout, hoping that this would help delay the return of pain.

Now my cycles are back, so is the pain My question is this: did your endo pain ever just change suddenly? I'm suddem;y experiencing a lot of pelvic floor discomfort, to the point that I couldn't actually sit down squarely during one day of my last period. During ovulation the pain is worse than ever, and it seems to set in a day or so earlier than it used to. I'm getting increasing amounts of pelvic floor pain that seems to spread through my bowel / rectum

Can you think of anything to try before I go back to the GP? I really don't like discussing this kind of thing IRL, I get horrendously embarrassed and feel really claustrophobic. DH is a GP and he locums periodically for the surgery I attend, so this makes me feel even more embarrassed about going (I'm not just an anonymous patient any more). I don't want to talk about my bowel movements and painful sex with someone I'm likely to see for Christmas drinks this year

Anyhow, massive ramble but feels good to get it off my chest. Any advice or solidarity would be greatly appreciated ... thank you x

Hello, not sure whether I have anything useful to share but wanted to give my sympathy and empathy. I had moderate to severe endo, horrible horrible pain for my whole life, in fact I found labour and delivery a breeze in comparison!

Amazingly - and it really feels like a miracle - since giving birth to dd (3) I have been cured. Its amazing but now when I have periods I literally only take 2 paracetamol for the entire duration of my period!

Before having her though, I tried lots of treatments: had the lazer surgery, then 9 months of hormone treatment (zoladex) which put my body into artifical menopause. Have you tried that? I also had quite a bit of success with alternative treatments: osteopathy, homeopathy and the 'endo diet'. Have you explored any of these avenues?

I understand your embarassment but please try not to feel that way - I'm sure your DH has told you they see bums and hear about the most intimate things every day of the week and will not be judging you. Also I found GPs not the most knowledgeable on endo, so how about going back to GP and requesting a referral to the surgeon you saw before, or another gynae with specialist knowledge of endo?

Ultimately I had a mirena coil which stopped my periods for 4 yrs - although not everyone's periods stop with it. Again, might be worth exploring as an option?
Good luck, endo is a rotten, nasty little beast of a disease.

Froze north Pole...trust me when i say it can improve. I rejected my consultants offer of drugs after a laparoscopy/hysteroscopy. I chose to go the nutritional route. I went back to basics and found eliminating wheat reduced my pain substantially .indeed my endo had disappeared on last inspection. I am saying it's a miracle cure but diet is certainly worth investigating. It will improve have faith x