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ANA 1:1280 - wtf???

6 replies

Witchathulu · 08/11/2011 05:04

Sorry, I couldn't face posting on one of those health forums. i think I need a bit of mn common sense and mothery.
Long time suspected auto-immune shit going on, since I had glandular fever at 6 really, but started kicking off big style after DS3's section, and took a dive again after DC4's section.
Finally saw neuro last month. He thinks I'm pretty straight case for ME, but has done a set of bloods and a MRI "for reassurance" Hmm.
Only had the head MRI late last week, so still waiting for those results, but on the letter to my GP he's written a P.S. that says the bloods that came back were positive for ANA, with a 1:1280 titer of homogeneous pattern. FBC, U & E's, ENA, anti-DNA, ferrous, VIT D, (and a couple of others I can't remember offhand,) all negative/clear.
Anyone know wtf this is about? I know it could possibly signify lupus, but wouldn't the ENA and the anti-DNA need to be positive as well? Only odd things of late have been not being able to breathe deeply, itchy/tender patches that I can only assume to be lymph glands, and a feeling of bruised ribs on the rh side, again, assume this is lymph related.
Chatting to GP on phone tomorrow, but could do with some sensible kick up the bum guidance. I know a lot will probably be told from the MRI, but I just wondered whether you could have a straight high ANA and it be lupus, or whether that suggests some other inflammation going on? Any help appreciated - TIA!

OP posts:
Iamseeingstars · 08/11/2011 06:08

I just did an internet search and was all set to copy and paste, but I think you need to wait to speak to the doctor, because it is a whole range of tests that will give the answer, not just one result.

I know I have searched for specific results and am starting to realise that one specific result will not give an overall answer
Sorry I cant be more helpful.

Good luck for when you speak to the doctor

Witchathulu · 08/11/2011 08:25

thanks for trying anyway! :)

OP posts:
Iamseeingstars · 08/11/2011 08:58

Its so frustrating isnt it!. I keep being tested for a particular problem and they keep coming back negative. However, just got a copy of hospital reports and whilst all the tests are negative it says on it that I do have this condition, yet the doctors keep telling me I dont. Also just done a translation on my anemia and the internet says its because I am low on iron, yet my iron levels are through the roof, so it is all very confusing.

I check and analyse all my results to build a general picture but it has taken me a long time to realise that it is just a general guide and that the results can change rapidly on a day to day basis for many of the tests.

Hugs to you

shitmagnet · 08/11/2011 09:08

This reply has been deleted

Message withdrawn at poster's request.

Witchathulu · 08/11/2011 09:36

Thanks, magnet - I have a copy of a summary of my medical history which I asked for recently - the surgery weren't happy, but it was tough titties. I did see the rheumy back in 2009, who diagnosed me with fibro & vit d deficiency after a bone scan and some bloods, but I flared up again after having DC4 in Dec '10. GP referred me to the ME clinic this year, so I thought I was all done and dusted, but then when my brain started playing up I thought it was time to be a bit firmer. In all fairness the GP I saw about it was brill, and sent me to Brighton, knowing that the neuro in Eastbourne wouldn't want to treat me, but bounce me to psych! And that's still kind of happening - the Brighton neuro suggested that if my test comes back clear I should go to psych, so I think that's a bit Hmm, as does my ME OT. Trying not to brick my pants, but 'tis quite tricky not to!

OP posts:
Iamseeingstars · 10/11/2011 07:44

Did you get any answers from your GP?

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