Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Does this sound like Fibromyalgia?

8 replies

Beauregard · 02/11/2011 21:33

I have had a few threads in health before regarding my symptoms and i am now putting all the pieces together and Fibro seems likely imo.If i list my symptoms could anyone give me their opinion please?
I am feeling like a lost cause at the moment and fed up of the pain i am in everyday.

18m-2years ago TMJ developed(consultant has passed me to a pain clinic as he says my joint is healthy)
Constant muscle spasms throughout my body(on Baclophen due to this) I get spasms in my face both sides but left side is worse.My jaw aches and is rigid .My face swells slightly at times.My neck ,shoulder and arm spasm more or less constantly.
I get nerve pain in my wrists and sometimes my elbow(nerve conduction tests clear)
I get tingling and numbness and twitching in my face.
My outer ears are swollen and ache most of the time.
More recently i have started getting a sprained type pain in my chest and ribs and side.
My feet hurt and i occasionally get nerve pain in my left inner ankle.
my sleep is disturbed and i am getting night terrors quite regular.
I have had full blood tests which were fine apart from my b12 level which was low but the G.P said i am not anemic so they took bloods for the intrinsic factor.

Can anyone help?

Sad
OP posts:
HecateGoddessOfTheNight · 02/11/2011 21:41

I've got fm.

My problems are pain! pain pain pain pain pain. I hurt everywhere. All the time. I don't mean agony - that only comes if you touch me on one of my trigger points! - I mean, well, the only way I can describe it is that I am aware of my body. I can feel it. And not in a good way!

I get a lot of pain in my legs. They are quite weak. I have to use a vehicle with hand controls.

If you touch me on one of my trigger points, I will cry and it will hurt for ages.

I feel like I am trying to think through treacle! I can't think clearly at times, I often forget what I am saying when I am halfway through a sentence. I use the wrong words. Like, I'll mean where's the remote, but I'll say where's the table Hmm

My short term memory is non existant. I can't remember whether I've had my pills (my husband has to give me my meds), can't remember what I've said, or what's been said to me.

I have an underactive thyroid - now, some drs say they are seperate, but others say that fm is itself symptoms of an underactive thyroid, from what I read.

I suffer from really bad mood swings and low moods.

I have restricted muscle range - I can't touch my chin on my shoulder, or my chest, for example. I have a 'biting point' beyond which it is tight and painful.

I am weak. I can't lift heavy things or hold onto them. I can't even lift a full kettle on a bad day. Can't drain a big pot of potatoes.

My sleep is awful. No matter how much I sleep, I never feel like I've slept.

So, if this sounds familiar, it probably is fm.

Fo0ffyShmooffer · 02/11/2011 21:50

Jesus Hecate that sounds dreadful and I say that having been diagnosed with FM a few years ago and having exactly what you described but to a lesser degree.

pelvic yes it sounds like it to me. It helps just to be able to put a name to what you are feeling I find. It sounds very familiar to me.

Fo0ffyShmooffer · 02/11/2011 21:56

I recognise the TMJ and Neuralgia
Also the nerve pain in wrists fingers ankles. Also the chest and rib pain which I have been told is Costochondritis. Thought I was having a heart attack at one point.

Sorry for disjointed posts. Am on my phone and can't refer to your posts.

Beauregard · 02/11/2011 22:44

Thanks for the posts
Hecate sorry you are in such pain

How do i get my G.P to listen?Hmm

OP posts:
HecateGoddessOfTheNight · 03/11/2011 08:05

You have to be lucky enough to have a GP who believes in fm, for a start.

If you have one who dismisses it, thinks it doesn't exist and it's all in the mind, then your only hope is to change GP. Cos you'll never change their mind.

Go to them with the symptoms. Describe them and insist that they take you seriously. They might refer you to the hospital to rule out other conditions. fm diagnosis is really process of elimination from what I can see! Once they've ruled out anything else your symptoms could possibly be - like MS or rheumatoid arthritis, you're left with fm. They look at how much pain you're in. The bastards may try to prod you. The dr tried to touch me and I leapt back and roared NOOOOO don't touch me. Blush Pretty much sealed it.

Beauregard · 03/11/2011 22:28

Thanks hecate i hope i get some answers soon

OP posts:
HecateGoddessOfTheNight · 04/11/2011 13:42

I hope you do too.

It's the not knowing that's worse.

Particularly with the fibrofog Grin I thought I was going nuts. Practically convinced myself I had some sort of early onset dementia.

Even being told this is what it is, and tbh, it's tough shit cos there's bog all we can do about it (only in slightly more medical terms Grin ) was ok. Because I was believed.

HecateGoddessOfTheNight · 04/11/2011 13:43

When I say practically, I actually mean completely. Blush

New posts on this thread. Refresh page