Please or to access all these features

Add post

Watch this thread

Save thread

Start a new thread

Flip thread

Hide thread

My feed

Active Unanswered threads

Getting started FAQ's

Unanswered threads Acronyms Talk guidelines

Hide shortcut buttons

Talk

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Flip

Original poster

dd has ovarian cancer

21 replies

venusandmars · 28/10/2011 13:45

My dd has ovarian cancer (stage 1 so overall prognosis is good). She and her dp are trying to decide what to do about treatment options in respect of their future chances of having a family (she's early 20's).

Does anyone have any experience of having children after OC?

OP posts:

Elibean · 28/10/2011 13:56

Goodness, how shocking for her, for you, for all of you - I'm sorry to hear it, though very glad her prognosis is so good.

No experience myself, but there is a Dad who posts on MN whose wife had OC years ago, and then had kids - I can't remember his name, but am hoping someone else does.

Bumping for you, and wishing your dd the best with her treatment.

Original poster

venusandmars · 28/10/2011 21:03

bump...

OP posts:

CURIOUSPARENT · 28/10/2011 21:12

I think there are young people with OC/living after OC on this forum

ovacome.healthunlocked.com/

and people who have also had children after treatment.

All the very best to your daughter.

nightcat · 28/10/2011 23:55

Get 2nd opinion!! Not long after Jade Goody I remember reading that in very young women there is a potential for mis-interpreting the test results (and it def wasn't Daily Mail!!)
Do some digging in medical papers/seek experts!! I wouldn't go down treatment route w/o 2nd expert opinion.

RichTeaAreCrap · 29/10/2011 10:13

Sorry I can't help much but just wanted to say that I am sorry to hear about your daughter. What were her symtoms and how have they diagnosed it? A second opinion is always worth having with any illness like that, although I assume that she has had extensive tests for them to diagnose her with cancer.

Great news that it is early stages and the prognosis is good. I hope she is ok and gets enough help/support to make her decisions about treatment and hope that everything goes well for her. Take care too, it must be a very worrying time for you and hard to know your daughter is suffering.

Original poster

venusandmars · 29/10/2011 19:34

Unfortunately it was diagnosed through histology (operation to remove one ovary and fallopian tube after CT scan of adbdominal mass). dd is meeting with consultant next week to discuss next steps in management. At the moment she has one ovary left. Many treatments would recommend removing that ovary too, but dd is in her 20s, in a very stable relationship and desperately wants a family.

It seems quite unusual for a young woman to have ovarian cancer, and we haven't yet found much information about anyone who has had cancer in one ovary and who has gone on to have children.

Clutching at straws in the hope of giving her some comfort over the next few days....

OP posts:

lisad123 · 29/10/2011 23:02

the macmillian site has alot of information and their forums are set up into different types of cancers, so hopefully someone these can help.

Elibean · 30/10/2011 15:29

Can anyone else remember who it is whose wife had ovarian cancer 10 years ago? Is it BetaDad? Or UnquietDad? Aargh, no memory these days.

If anyone can remember, I could PM him and ask him to please post to help if he can/is willing to.

KurriKurri · 30/10/2011 15:51

Elibean I have pm'd you

OP, I'm so sorry to hear of your DDs dx, it's a very difficult thing for such a young woman to have to cope with, and of course for you as her mum to deal with too. I can't offer any advice in this area, but I do wish her the very very best for her treatment and recovery.

Littlefish · 30/10/2011 15:52

It's Beenbeta.

Elibean · 30/10/2011 17:19

thanks both

ledkr · 30/10/2011 18:22

Elibean I have not had this but did have breast cancer when i was 27 so i know how awfull it is to have this so young.
I would say tell her not to be fobbed off re her fertility.I was being treated as any other woman of older years and i had to be really pushy about my treatment optionbs.They wanted to remove my ovaries so i sought a 2nd opinion and found out it wouldnt have even helped me to do that.

I have had 2 children since

Its a terrible shock and very frightening for everyone,but its been 16 yrs now and ive been fine.

Can i ask how it was diagnosed if you dont mind,as im high risk for it and it would be helpfull to know some symptoms.

I really hope it all goes well for you and your Daughter.

Slambang · 30/10/2011 18:32

How awful for you all Venus but there can be life and babies after ovarian cancer.

Someone I know well had OC when young. One ovary was removed. The other was not expected to survive through the chemo. It did. She did and the ovary went on to produce two fantastic children.

Best wishes.

JaneBirkin · 30/10/2011 18:32

Hello, and sorry to hear about your daughter. It does sound like a great prognosis for what it's worth, I mean if you're going to have cancer which obviously no one wants to have.

I have a friend who had early stage OC a few years ago. She had something 'found' when she had an operation for cysts, and had a hysterectomy, I can't remember if they removed both ovaries or not. They thought they had removed it all, but she had to have chemo for a few months which wasn't fun but she said she just felt extremely tired.

She was nervous about any symptoms for a year or two afterwards, that might suggest recurrence but so far she is fine. She is about 44.

I hope this helps. All the best to you and your family x

Elibean · 30/10/2011 19:33

Venus, I have PMed the person who (I think) has personal experience of being in similar situation. Or rather, his wife has.

Wishing you all well,

GColdtimer · 30/10/2011 19:42

So sorry to hear about your dd. My mil has stage 3c ovarian cancer and I know being diagnosed at stage 1 is very rare so the good news is they have caught it so early.

When my friend had leukaemia he had a pretty extensive counselling session with the fertility clinic before he started his treatment. Has this been offered to your dd?

My sil also conceived my dn at age 41 with only one ovary when they told her there would bs no chance so really hoping for the best for your dd.

Original poster

venusandmars · 30/10/2011 19:53

Thanks you so much for your posts, it really helps to know that some people have been through something similar and have had such positive outcomes. I will encourage her to take up any counselling that is offered. She talks to me a lot, but at the end of the day I'm only her mum, and I'm not exactly uninvolved!

OP posts:

JWIM · 31/10/2011 07:04

Venus so sorry for all of you - a very difficult time as each of you come to terms with your DD's surgery and the diagnosis. Can I suggest you try to find out what 'leading edge' fertility units/clinics are researching/offering re threat to fertility by cancer treatment. Also, the Teenage Cancer Trust may be able to signpost you to more specific sources of information - the Trust works to improve the hospital experience for teens/young adults but may know about other charities that focus on treatment/recovery of the same age group.

Ozziegirly · 01/11/2011 04:47

A close friend of mine at school had ovarian cancer at about 21, and she has made a full recovery and has two children since the cancer. Best of luck to your family.

Thumbwitch · 01/11/2011 05:00

So sorry to hear of your DD's troubles and hope her treatment is fully successful. In the meantime, she might want to look at this place for background support - it's designed to work with whatever treatment your DD is having but adds in another side to general health and relaxation. She may be able to talk to others who have had similar experiences through them as well, if she doesn't find them elsewhere.

I hope she and her DP are successful in having DC as well.

algee · 13/03/2012 18:06

Hello. Sorry I know it's probably really bad form to revive a post some months on, but I searched specifically for 'ovarian cancer' today, and recognised you, Venus, from a thread that I used to frequent! I do hope that your daughter is doing well...

I was diagnosed with Ovarian Cancer when I was 29; I'm now approaching my 44th birthday, and still all clear, having had a beautiful daughter since I was ill. The only reason I never had more children was because of various defective bits of me, totally unrelated to the cancer. There is hope, I hope taht your daughter's story will be a long and happy one!

I hope that you are well too, Venus!

Flip

Swipe left for the next trending thread