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Could this be Ulcerative Colitis?

900 replies

Chocol8 · 25/10/2011 22:12

Sorry this is gross, but i am worried and looked online (prob not the best of ideas) and found that most of my symptoms seem to fit UC: different coloured stools which frequently changes but is mostly very loose.
Blood in stools (a lot), if i pass wind, i can pass pure blood but usually mess myself (very unpleasant), stomach churns constantly.
Being sent (eventually) for a colonoscopy to have a look see. Does anyone know what else this could be please? x

OP posts:
funnyperson · 26/05/2012 22:52

mrs pinot I had a fistula 2 years ago. It healed up without an op. Was not great while it lasted. Had to change my lifestyle to be really laid back. Never went out in short. Apart from work which was part time then. The hosp weren't very interested in it which looking back was probably a blessing in disguise. They said fistula was rare in UC but I had one anyway.
chocol8 I hope I haven't upset you too badly.You must be feeling at your wits end. I know you have only been doing what your doctor and poo nurse said. I am sorry. I hope you get better soon.

MrsPinotGrigio · 28/05/2012 20:03

Chocol8 - just wanted to wish you good luck for your appointments tomorrow. I really do hope you get some answers & you can start getting better. Take care & let us know how you get on.

funnyperson · 28/05/2012 20:54

chocol8 good luck with the doctors appointment I really hope they come up with a medication and diet plan which will improve your life.

modelesque · 29/05/2012 22:13

Sorry to jump back into thread after so long. I honestly thought I was overreacting going to gp as I'm not in a flare up nor have I been since december. Anyway had bloods and now gp wants to discuss results. Scared :( its not anaemia, receptionist said level was 13, so what could it be? DS just had colonoscopy, I really don't want to go down that route. :(

funnyperson · 29/05/2012 22:32

white cell count? could be too high or too low.

mine is always high-apparently this goes with long term inflammation

l4k · 30/05/2012 08:41

Chocol8- how did it go?hope you are ok.

model-I have no idea but hope You don't have to wait too long to see gp for results.

plusonemore · 31/05/2012 14:37

hi people, had a quick read as I've got the school run shortly, but chocol8 hope you're feeling better soon

I've had letters finally confirming from biopsies that it is UC, confined to rectum so proctitis. Got appoint next week to see gastro doc, then nurse couple weeks after. Previous consultant had prescribed me 4 weeks of foam enema, used it for 2 weeks but feeling better couple days ago so stopped using it. Today I have got the urgency and frequency back so think I had better go back on before the blood and mucous come back. Feeling tired still too, wondering if it is anaemia, although blood test few months back was OK I think. Noticed whilst googling that irritability was a symptom of anaemia and BLUMMIN HECK have I been a grumpy bitch recently!! Would love to get rid of that!

Hope everyone has a restful weekend and can manage to eat pleanty of cucumber sarnies and cupcakes Grin

spiderlight · 31/05/2012 22:37

Glad you've got confirmation, plusonemore - it's pants but at least you know where you are now.

Has anyone heard anything from Ava or Katy?

plusonemore · 31/05/2012 22:41

ha ha spider that made me laugh- "it's pants" !!! Seems so appropriate!

l4k · 01/06/2012 08:50

Still no word from chocol8?

plus1- at least you know what you're dealing with and it seems that they are keen to see you and get you on the right treatment,so that has to be good.

Hi to spider and anyone else who is reading.

funnyperson · 01/06/2012 23:52

I hope chocol8 is alright- do you think they could have admitted her? Or do you think it all finally got too much?

l4k · 02/06/2012 09:06

I wondered if they have admitted her too.
Hopefully she'll come back and update us when she gets chance.
You are the Crown of the thread chocol8, being the OP!!!

l4k · 02/06/2012 09:14

And it's a good 2 weeks since we heard from Ava,
Are you there? hope you are feeling better.

MrsPinotGrigio · 02/06/2012 12:22

Also hoping that Ava & Chocol8 are getting the care & treatment they both need - was wondering the other day if Chocol8 had been admitted after her appointment - she has been feeling so ill for so long. Hope you are both feeling better if you are reading this.

Plus - glad you know whats wrong although as spider says 'its pants!!!!' hope you can now start to get better.

model - maybe white cell count/inflammatory marker/B12 - all can be related to IBD. Don't worry I'm sure you'll be fine.

Started my new meds last week & also been using the Wella serum & my hair feels less 'fragile'. Think there has also been less in the plughole the last few days so maybe a combination of both has started to sort things ok. Fingers crossed I won't need to have the drastic short cut I was planning although a change may be good. Looking forward to the long weekend & hoping that the weather gets better.

Have fun ladies.

MrsPinotGrigio · 02/06/2012 12:28

spider what is MSM? Is it for skin or hair? I'm still taking the Horsetail & I'm also taking skin, hair & nails vitamins - got fantastic strong nails which need cutting every week but my skin & hair are awful!!!! Skin is slowly getting better though!

spiderlight · 03/06/2012 13:23

MSM - magic stuff. Natural sulphur - it's good for skin, hair, nails, joints, all-round anti-inflammatory. I took it years ago, stopped when I got pregnant and sort of forgot about it, but there's been such a difference in my skin since I started again and my hair is really starting to thucken up (although it's going ot take years to get back to how it was because it's so long and I'm too much of a wuss to cut it short).

motherwifeteacheretc · 03/06/2012 18:58

Hi everyone, just popping in again to say Hi and thinking of everyone, particularly Ava & Chocol8 - But still reading everyones updates which help me no end -

We are going away for a few days tomorrow so won't/can't update but had a pretty grim week feeling ill and quite down - so phoned the lovely consultant's sec and she was so nice I cried to her....anyway she said I am at the top of the pile for review so should have an appointment in about 2 weeks - so fingers crossed I get a date through as I'm struggling to cope with it all - and just found out my baby boy has hip dysplasia so also needs an urgent hospital appointment and most probably surgery so with all this I'm thinking of asking for some anti-depressants as I feel so down, but I KNOW THIS is another self-indulgent moan and hopefully a few days away from it all will help keep my mind of feeling so ill and so down...

I do hope you are all ok and thank you for your support so far..... :)

spiderlight · 03/06/2012 22:14

Oh motherwifeteacher - that's a lot to be coping with :(

Meant to say earlier - if anyone can face watching it, last Tuesday's 'Embarrassing Bodies' had an item about faecal transplant.

IVotedSaxon · 05/06/2012 16:02

DO you all mind if I join you all?

It isn't me, but my fiance, who has been diagnosed with an IBD, most likely to be Crohn's. She has suffered with stomach pain on and off for a couple of years and kind of took a head in the sand option.

I am currently 4000 miles away from here (heartbreaking enough as it is) and she is now back in hospital again, after being released a week ago. They plan on starting her on some meds for the Crohn's, which I hope will help, I am going to see her in two weeks time for the first time since October!

Naturally, she is scared, I have accepted the diagnoses, and have reassured her as much as I can that nothing has changed for me.

funnyperson · 05/06/2012 18:30

IvotedSaxon you are most welcome. This is actually chocol8 thread but she isnt around atm.
Have you read the information on the NACC website ?www.nacc.org.uk/downloads/LanguageCD/English-understandingWeb.pdf

There is lots of very sensible stuff.
I think having a diagnosis is always great because then at least you know you can get the correct treatment. One of he things the doctors and pamphlets dont really tell you is how tired these conditions can make a person feel and how one learns to cope with long term pain which in itself is tiring.
But it doesnt affect fertility as far as I know.

IvotedSaxon · 05/06/2012 19:55

I have been reading of lot of stuff on there, thanks to this thread.

It has been very helpful I have to say, as has this thread.

Children aren't really on the cards for us right now, I have two girls from a previous relationship, and we both lack certain parts to have one of our own ;)

She has been in a lot of pain, and for quite a long time, this current episode, she was in pain for over three weeks before giving in and going to the hospital. She lives in the US atm, and has no insurance, so that put her off, but luckily, her local hospital does charity care, which means she can get help.

I guess this will explain all her tiredness, she has been tired for ages now, sleeping loads during the day when not working.

Thank you for making me feel welcome FP ♥

funnyperson · 06/06/2012 06:41

Had cupcakes and went to the pageant and had friends over and now, unsurprisingly, I have a flare up ..............Sad Not a really bad one but enough to be very uncomfortable, tired and running to the loo (on 3rd pair of trousers in 24 hours as didn't make it in time)
So back to the fizzy water and pentasa regime.
Its so exhausting and it makes me feel inadequate and rather stupid.

MrsPinotGrigio · 06/06/2012 15:53

motherwifeetc - I take anti-d's & have done for a few years. I think they helped me cope with the last few months to be honest. You're poor little one - how old is he? Hope you get an appointment soon for both of you.

ivotedsaxon I must admit the support of my partner & family did make all the difference when I was first diagnosed. DP isn't great with illness (he'll admit that himself) but he was great with all the practical stuff which is what I needed when I was admitted and then later at home. Hopefully your partner can now get all the help & care she needs. Having been in hospital in Florida last year I can sympathise over the insurance business - first question they ask is 'how are you paying?' Luckily for me we had great travel insurance who took over & sorted all the bills but when I was first presented with the bill of around $5k I was absolutely Shock

funny hope you're feeling better soon - I also overdid it a bit at the weekend (too much wine) & felt a little delicate on Monday. I'm not in full-on flare but I intend to take it really easy this week as I'm going away at the weekend with DP & don't want to spoil it!!!

My consultant's appointment for Friday has been postponed til next week as he's not in the clinic this week & likes me to see him so I won't know my fate til next week. Will update when I know whether I am to be sliced open or not!!!!

Also still hoping Chocol8 & Ava update soon.

spiderlight · 07/06/2012 20:09

Hello Saxon. Sorry your fiance's been so unwell and I really hope the meds help. It must be frustrating for you being so far away from her when she's in pain :(

funnyperson, there's nothing stupid about wanting a bit of normality. I hope your flare passes quickly.

Ava, Chocol8, where are yooooooooooou? I hope they're both OK and that the radio silence means that the doctors are keeping them in until they're properly sorted. I hated being stuck in hospital but it was absolutely the best thing for me at the time.

motherwifeteacheretc · 08/06/2012 19:05

Hello Saxon, sorry to hear your fiance is suffering :(

MrsPinot - I feel I need the antid's but going to wait for some answers, apparently my appointment should be within 2 weeks but they said that 2 weeks ago...but I THINK once I get answers I can explain a bit more how I feel mentally about it all, but answers for the physical symptoms I need (as we all do)- I can't cope with nearing 3 months of pain, diarrhea/bleeding and feeling so sad/unattractive etc.... but focusing on my son has helped take the spotlight of me, he is 10 months so it is quite a late diagnosis and has been frustrating as I have been aware of a problem for a while but he didn't get a scan till now....but another of life's hurdle for us to clamber over.....

Looking out for updates from Ava/Chocol8 -