Hello ladies, can I join you?
I hope you are all ok and the colonoscopy went ok Chocol, i had mine without a sedative, when I was diagnosed i n 2010 and actually found it horrendous! So I suppose we are all different.
I was diagnosed 2010 and suffered a terrible flare up that last for most of a year, I was pregnant for the final 6 months of that. I was better from about June last year and had my dd in sept, I also have a ds who is 2.7.
I've been having a bad flare up again over the last 6 weeks, my consultant and the IBD nurse at the hospital are great, but unluckily for me the IBD nurse was away on hol and her replacement just robbed me off for 2 weeks so things got really bad. I am on 40mg prednisolone and mesalasine foam now. I am weaning onto 30mg of the steroid this week and then hopefully 20mg for a month, or less if things keep improving. I've been on this new regime for a week now and i'm a bit better, my nights are less disturbed and I can feed my daughter her bottle more easily, before the inflammation must have been v bad as holding her in certain positions was agony on my stomach.
Anyway, I have a lot of experience of steroids having been on them for 6 months last year, they cause me to grow a very fetching little lady moustache and my face did get quite round, the weight thing I didn't notice as I was pregnant. I have lost 11 pounds over the last 5 weeks though. They are safe to take in pregnancy, and safer than the terrible effects of uc on an unborn baby. I had to have growth scans every month to check dd's size, as active uc can lead to a small baby. She wasn't a whopper like ds, but she was 50 th centime.
Anyway ladies, sorry for the essay, just wanted to give a bt of background. This is a terrible disease and one I find other people don't really understand, as you can be horrendously I'll and still look fine.
Hope you are all ok