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B12 supplements;side effects?

38 replies

KatyMac · 21/06/2011 23:12

It has been suggested (by my dad of all people) that I take a vitamin B12 supplement

Does it have any side effects?

I am considering quite a high dose one

OP posts:
KatyMac · 25/06/2011 20:22

I think I need to see someone who will look at me "all of a whole" rather than the GP looking at individual bits

In fact I might go off to start a thread about how to see someone who will look at "all of me" iyswim?

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TruthSweet · 25/06/2011 20:41

Katy - I just took the test you linked to and scored 62!

I have Folate Anaemia at the moment according to my latest blood tests though I had B12 anaemia in my last pg (DD3 is now 20m) and needed injections as the tablets didn't work.

My last blood tests came back fine for B12 but low for folate so I am back on 5mg a day folic acid (I have epilepsy so take 5mg when TTC/PG) as I started getting breathless when going up stairs, having heart palpatations, feeling tired and depressed all the time.

I really hope you get some answers not fobbings off soon. It's so frustrating when you get brushed off at the Drs.

KatyMac · 25/06/2011 21:06

I only got 58; so it can't be that bad

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noddyholder · 25/06/2011 21:43

I scored 80

TruthSweet · 25/06/2011 21:50

noddyholder - get thee to a dr! Unless of course you are already being treated for it Wink

KatyMac · 25/06/2011 22:57

& I thought mine was high!

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KatyMac · 20/04/2014 22:03

I'm revisiting this; mainly as I had no memory of starting it (which is one of the symptoms)

I need to get my test results from 2011 & compare them with my current test results

I redid the test & scorded between 48 & 75 (depending upon how confirmed my symptom was - iyswim)

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Lonecatwithkitten · 20/04/2014 23:08

Katy I would not rely too heavily I just I'd the questionaire using my original symptoms and only score 15, but yet I have pernicious anaemia and self inject every 8 weeks.
My biggest symptom is not listed there, insomnia despite exhaustion.

KatyMac · 20/04/2014 23:38

it's on this one Wink

My B12 is 151 & my folate is 2.2 & I need to bring it up with my GP

I don't have insomnia (well half a dozen times a year) - but I can sleep for England & wake up tired

OP posts:
RoobyMyrtle · 21/04/2014 00:02

Katy, with hypermobility and CFS I'd be looking into dysautonomia/PoTS xx

KatyMac · 21/04/2014 08:53

Possibly, but between 2011 & 2014 I have 2 low B12 readings & my symptoms are similar; so I think PA is worth a shot

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Rachhorses · 25/06/2020 05:38

Katy did you get this sorted this is definitely PA I have advice for myself from a qualified doctor about this who once went to parliament about how the NHS need to recognise PA as more of an illness and effectively continue a persons treatment even if their levels were to rise. I have read books on it, you can not overdose on b12 and people with PA need regular injections regardless if their levels begin to rise they must not stop with injections. The term ‘pernicious’ reflects the fact that if not treated PA is eventually fatal. My mam was diagnosed with fibromyalgia last year however she was lucky to find this fantastic doctor who recognised her PA symptoms she now has to inject herself twice a week and takes daily sublingual solgar tablets as her levels were 260 just above the NHS recommended ‘low level’ my levels were 650 but I still have symptoms of b12 deficiency so I take 5000ug sublingual tablet everyday. It’s frustrates me that people on here tell you to be careful before taking and get levels tested as really your better off self medicating for this one as even if NHS were to treat you if your levels go up they stop administering this life saving treatment and you go back to square one. It’s lack of medical knowledge on the subject. The dr we saw dr Chandy describes b12 and all it’s functions as important as water your body can’t live without it. If you need anything let me know and please be in touch

andyoldlabour · 25/06/2020 13:47

I had chronically low B12 levels six months ago after a blood test picked it up. I have taken tablets ever since and the only time I feel bad is if the tablets run out and I don't use them for a week.

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