Open heart Surgery

[forestfly]

Has anyones child had a major operation on there heart? I find out at the end of October if the procedure he had (operating through his thigh and up to his heart) worked. If it hasnt he has to have a huge op. and im starting to C*p it! Has anybody had the threat of this too, and it never happened? Just wondering how common it is and how you coped! Thankyou

Hi forestfly, my daughter had open heart surgery last december (can't believe it was almost a year ago!) to repair the hole in her heart. She was almost 18 months at the time. It was alot easier than I expected...and you do just cope (no alternative I guess )
Have you found out yet whether he needs surgery? I hope it is good news.
I am new to these boards, so I would love to hear more about your son.

take care
Jessie

forestfly, hope everything is okay. If your ds has had to have surgery I hope it has gone okay for you all. Have been thinking of you as we haven't heard from you for a while....lots of love

Just wanted to say that i took my son for a check up. His operation worked, at the moment he doesn't need another. They don't need to check on him for one whole year. Happy Days

oh thats great news. u must be jumping for joy.

I was shocked not what i was expecting!!!!! I look at him now without feeling sad

i bet. i'm waiting for the day they say dh will be ok and wont need a transplant. (i know that day is highly unlikely to come)

I'm sorry i didn,t realise misdee. Are you o.k?

yeah, always there in the back of my mind, but it doesnt rule our lives. just waiting for next appointment to come thro. must be one soon either with his consultant or at papworth.

Good luck, i know about the always there feeling. You just get on with it don't you. I hope everything goes as well as it did for my son x

misdee my sister had a heart and lung transplant at papworth

so pleased your little boy is doing well forestfly, that must take a bit of pressure off you

thanks. the deadline for 'improvement' in his heart is april, if by then nothing has got better then transplant becomes a real possibility. atm he is stable on drug therepy and just tking things easy. he misses beer tho, says that alcohol free stuff is just nasty and not the same to watch the footy with.

Thanks fio x, good luck misdee, you never know what can happen. I'd even got new pyjamas for the hospital. I wish you all lots of luck. Take Care