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Cycle of illness & work. What am I going to do?

4 replies

AliSheedy · 05/04/2011 10:29

This is going to be long, sorry.

I have just found the thread on ME / CFS and have spent the last few minutes crying my eyes out because it is like finding the missing part of a jigsaw Sad. I'm sorry if this is long but I am just trying to work out what is going on and find some answers.

I have been going through the same cycle of illness/exhaustion for years now, and I am at my wit's end.

In my 20s - pre kids - I worked in a very full on job, involving long and unsociable hours. I was very successful and capable, and rarely ill, but looking back now I was holding the illness and exhaustion at bay by getting a lot of sleep at weekends. I used to spend at least one day - sometimes both days - each weekend in bed all day recuperating from the week. If I didn't do this, I was prone to cystitis and kidney infections and would completely lose my appetite and rapidly lose weight, so I sort of instinctively knew (without ever verbalising it to myself or anyone else) that I needed more rest than most people in order to function normally.

After having my first child, I got PND. I went back to work about the time the PND fog was starting to lift, but I was plagued by 'minor' infections and illness (migraine, chest infections etc). I also had a very stressful and horrible experience with bullying at work and eventually left my job (which stunned everyone, as I had always been such a dynamo and career-driven person).

From this point onwards (almost exactly 5 years ago) I have been going through this depressing cycle which is ruining my career and having a major effect on my relationships Sad.

I take on a job or a course, I am functioning well and doig really well at whatever the project is...then I get ill. Really, totally wiped out ill and exhausted.

I left one job when the initial 6 month contract lapsed (even though they would have happily renewed it) because I got tonsilitis followed by flu and then had some sort of post viral exhaustion (the whole thing went on for about 6 weeks) and just lost all energy and heart to do the job. I then embarked on retraining, which I just about completed, despite having to take 8 weeks off mid year because of recurrent tonislitis.
I then got pregnant with my second child and spent most of the pregnancy with flu, colds, sickness, aching body etc.

Since she was born I have had two short contracts which I have chosen not to renew because towards the end of each contract I have become so exhausted and ill.

I have been in my current role (again, a 6 month contract)for 2 months and have been off sick with some sort of flu virus for a week. This is the first day in seven days that I have been able to lift my head off the pillow. I am sure that my boss is not impressed Sad.

This is doing my head in. I am scared that I am going to make myself unemployable Sad, not to mention sick to the back teeth of being ill.

One thing that really struck a chord on the ME thread was when someone said that if they had a busy day they thought to themselves 'I am going to pay for this tomorrow'. That is my life Sad.

What should I do? The GP says he is going to refer me for an op to get my tonsils out after I got a Quinsies (sp?) at Christmas, and that I need to take vitamin supplements, but he was sniffy about ME/CFS and I don't know if I have the energy to push for a diagnosis, or what I would really be doing it for.

I am just at a loss, really, and feel so alone. I feel like nobody understands and that people just think I am a flake Sad.
Btw, when I am well, I exercise moderately (pilates and aerobics and swimming), I eat fairly well, don't smoke, drink moderately and, touch wood, have never had any serious illnesses.

OP posts:
CFSKate · 05/04/2011 10:51

I'm so sorry you're having such a rough time.

When I saw the title "Cycle of illness & work" I thought "that sounds like the push crash cycle - I wonder if it's about ME?" and your post does sound quite typical.

Please join us in the main ME thread that treedelivery started, we can't promise an answer but you won't be alone there, we understand exactly what it's like.

What vitamin supplements did your GP suggest for you and why?

AliSheedy · 05/04/2011 10:57

Thanks for taking the time to read, CFSKate. I'm heading over Smile

OP posts:
BreastmilkDoesAFabLatte · 05/04/2011 14:34

I'm in a similar position, not with ME/CFS but with heart problems which mean that I spend at least half my life completely wiped out with exhaustion. So yes, I understand the problems it causes for work and career prospects, and how unsympathetic people can be.

As much I don't find having a diagnosis helps me in daily life, it has got me officially recognised as disabled, and the legal weight that carries has on occasions been helpful. If you have a diagnosed medical condition likely to last six months or longer you are legally 'disabled', and any employer has a duty to make 'reasonable adjustments' and not to count against you sick days related to that condition. And they're not allowed to be 'sniffy' about ME/CFS, either!

The other thing which has really helped me has been working part-time. Would that be an option for you?

CFSKate · 05/04/2011 16:01

To add to the thoughts about diagnosis, if you don't know for sure that you have ME, it's worth finding out - what if you don't have ME - what if you have something else instead that's easily treated?

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