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any chronic kidney disease people out there?

6 replies

CantWont · 24/03/2011 16:41

Just starting tests for this but appear to have many symptoms....or not?!

Excessive clear urine
Dry skin
Flank pain constantly for past week, intermittently prior to this
Hair loss..approx 50%
Extreme fatigue
Puffy face
Headache
Foul taste and ammonia breath
Nausea

Was told it was viral til Monday, now waiting for results......nervous.

OP posts:
JasHands · 24/03/2011 18:48

Hello CantWont. I'm assuming the tests you refer to are blood tests to assess your kidney function and maybe an ultrasound? Hopefully the results should be back to your doctor within about a week and they will be able to tell you if your kidneys are affected. If there is any sign of renal impairment, you will probably require a biopsy. Sorry this is such a worrying time for you.

tammy2k11 · 24/03/2011 23:30

hi my hubby has ckd he had a transplant 9 weeks ago, when u get ur results the main one too look for is the creatinine- this is a wate product that is usually cleared by the kidneys, usually a womans creatinine is around 60ish , hubbys went up to 900 but now hes had the transplant its around 95,

the next one is urea, again this is a waste product, not sure what the urea levels should be though,

if i can be of any help when ur results come through give us a shout x

CantWont · 26/03/2011 02:09

Hi and thanks so much for replies. Urine tests are abnormal I've been told over phone but not git blood yet. Seeing GP first thing Monday, I'm in soooo much pain :(

Hoping its an untreated uti despite few uti symptoms......

OP posts:
tammy2k11 · 26/03/2011 18:49

cant wont well when you have bloods done let me know the results, what did they find in ur urine test??? did they tell u x

JasHands · 26/03/2011 22:10

If your pain is increasing, would suggest that you visit your nearest A & E or walk in centre (are you in the UK?) for them to have a look at you instead of waiting until Monday.

SoftKittyWarmKitty · 26/03/2011 22:41

I've got CKD. I was diagnosed about 18 months ago after having a biopsy. Apparently it's quite unsual to have a lot of symptoms as the kidneys are good at working at less than 100% capacity which can 'disguise' disease, and most people are diagnosed by accident during routine blood or urine tests rather than after presenting symptoms. However, I actually had some symptoms - the first ones I had that made me approach the GP were a rash on my legs and an aching wrist - sounds bizarre but apparently that was part of it, however they had no idea what it was at the time and I wasn't given any tests/treatment. A few weeks later this went but then I started to develop peripheral oedema (sp) which made my feet, ankles and legs so swollen that I couldn't get my shoes on and I could hardly walk up and down stairs. As the weeks passed, it got worse and my stomach, arms and face started swelling. I gained over a stone in weight from the excess fluid that my kidneys couldn't flush away. I was also extremely exhausted and used to fall asleep on the sofa in the evenings after work, which wasn't like me at all. Urine and blood tests showed I had a problem with my kidneys and the biopsy diagnosed the actual disease that I have.

So, in short, my symptoms were a rash (which only lasted maybe 10 days), swelling and exhaustion. As you have a lot more symptoms, it sounds to me more like something along the lines of a UTI, kidney infection or thyroid problem, possibly underactive. I'm not medically trained though! But your symptoms sound remarkably like a friend's who was diagnosed with thyroid problems. Did they tell you in what way your urine sample was abnormal?

Let us know what happens at the GP on Monday. If they say it is kidney problems, ask what your eGFR is as this will tell you what stage it's at (1-5). You'll also be referred to a renal unit for more tests to fully diagnose it. But let's hope it doesn't come to that.

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