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etanercept

2 replies

hogshead · 01/03/2011 23:43

Hi just wondered if there was anyone out there on this medication and what your experiences of it were.

I have just started the the process of moving on to it for severe chronic psoriasis after 2 years taking ciclosporin.

Would be nice to hear of any experiences of it - I know it is a fairly new drug and the long term effects are still uncertain but I am reaching the end of the road using other commonly prescribed treatments and wondered if there might be anyone else in a similar position.

Thanks

OP posts:
trope · 02/03/2011 09:30

Hi hogshead,

Not quite the same position as you, but i have experience with a different Anti TNF drug; Humira (Adalimumab) if that helps at all?

I've been on it twice for inflammatory arthritis (with suspected crohn's). The first time was a disaster; developed Iritis (inflammed irises!) really severe fatigue and saw no improvement in my symptoms. At the time I was on high dose methotrexate as well (by tablet). I gave up after about 4 months as I just couldn't take it any longer.

The second time I was on methotrexate by injection (as we realised I wasn't digesting the methotrexate tablets properly) and it couldn't have been more different; I saw a huge improvement within about a week of starting the humira!

I'm now on daily Azathioprine tablets (they work better for me than the methotrexate injections) and fortnightly Humira injections and have achieved a complete clinical remission; perfect blood test results and no symptoms at all, for the first time since I was diagnosed nearly a decade ago.

I've gone from living on the sofa, tired and in constant pain, to playing squash twice a week!! The fatigue I used to suffer terribly from has almost completely gone as well!

The other thing i've found better about the humira is that this winter I've caught fewer colds than I used to on methorexate - my ability to fight off infection seems stronger with the anti-TNF than it was with other immunosuppressants, although from reading arthritis forums I gather that not everyone finds that to be the case. Obvs it's worse than not being on anything, but it's been a lot more bearable this year!

The long term side effects are a bit scary, but since I first considered (and at the time rejected) anti-tnf treatment (about 7 years ago) they have learnt a lot more about them and have tracked the outcomes of lots of people who have used them and have scaled back the warnings significantly.

For me Humira has been a complete wonder drug; it's no exaggeration to say that it's given me my life back. My partner and I are even hoping to start a family soon (after 6 years of trying and failing to get off the methotrexate and get healthy so we could try and start a family)

I really hope the etanercept works for you! Would be interested to know how you get on / side effects etc as if the humira ever stops working for me etanercept would be the next thing on the list for me to try!

hogshead · 14/04/2011 22:22

Hi Trope I'm back and not with good news. I've have very bad localized reactions at the injection sites but they are going to try me with abadalimumab next!

Hope you're keeping well
Hogshead

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