Anyone on Clexane and have fibro?

[confuddledDOTcom]

I was recently diagnosed with fibro, just an addition to my growing list of autoimmune diseases and randomness (I have Hughes, it's part of the territory). I'm 19 weeks pregnant and taking Clexane. I've found it harder and harder to get my needle in. My legs are so tight that it hurts, my belly is getting too stretched now and my bum is getting too sore to do it now.

I don't know if it's the fibro causing it so I was wondering if anyone had an experience of the two and if anyone has tips for getting the needle in when it hurts too much anywhere else.

Chatting about fibro or Hughes also welcome.

I was diagnosed with fibro when I was 15 weeks pregnant but I'd been having the symptoms for over 2 years.
I also have a raised ESR level and ANA positive which indicates an auto-immune disease but the rheumatologist doesn't want to see me until october. I was taking diclofenac, cocodamol and amyltriptyline but stopped taking everything when I found out I was pregnant. Was fine for the first few months but now I'm 7 months pregnant the pain is terrible. I also have cervical spondylosis and chronic back problems.
I was also in hospital for 3 weeks in may and june with Guillian-Barre Syndrome which has left me very weak.

tbh I can't wait to have this baby so I can start taking proper painkillers and medication again!

Sounds like you have it all going on too :( Has anyone mentioned Hughes (or Antiphospholipid Syndrome) to you? Sounds like you have enough to make it a potential.

What are your doctors saying about painkillers? Mine have given me co-dydramol but said that it won't touch the fibro for more than about half an hour. I use it when I need the edge taking off - like if I'm going to have to do some walking or to get me to sleep.

Hi i have fibro but never had that issue when given clexane in hospital. Although i have never taken it long term. Speak to your doctor if you're concerned.

Are either of you on Lyrica? Thats safe to take in pregnancy i believe and is sooooooooo good for the fibro when you have a flare it really knocks the head on it.

Ive just been put on arcoxia for facet joint disease (arthritis) which is knocking the swollen feeling on the head too.

Closest i've come to regular injections was a three hour tattoo if that helps lol

Try an anti-inflamatory over an opioid you may get longer lasting relief that way.

Good luck

Nobody has ever mentions that to me at all!

tbh I'm not very impressed at the treatment (or lack of) I have had. I've basically just been left to get on with it :(

However I did see the consultant yesterday and she was brilliant and has arranged for me to see the rheumatologist again and also the neurologist I was under when I was in hospital.
She's concerned about how things will affect me in childbirth, and that also I'm getting weaker during pregnancy.

There is also a query about me being an alpha-thalassemia carrier which was picked up in my booking in bloods but has not been mentioned since!

So I had more blood taken yesterday and hopefully that will be sorted.

I can normally take clexane without an issue, it just seems to be getting harder and the more pain I'm in the harder it becomes to take. Even from my first pregnancy to this one it's got harder. I used to be able to do it anywhere now it hurts to go in and leaves massive lumps that take weeks to go. Did you do your own Clexane or did they do it? It's a totally different experience as they don't prepare the skin in the same way or care where it goes. I remember waking up one day with a MW about to inject my arm - whilst I was asleep! First arms and clexane ain't happening, secondly I do my own and thirdly I believe that's called "medical assault"!

I believe every woman should be tested for Hughes Syndrome in pregnancy and if they lose a baby before they're tested it should be done then. Look it up, it basically causes other autoimmune diseases so anyone with more than one should be tested. ANA is also one of the tests they do for it.

My collection is fibro, Raynaud's, regular TIAs since I was 13, mid-T loss and a host of little niggly symptoms that you tend to ignore until someone tells you they're all linked.