Could I have [mild] ME?

[Christmastreedelivery]

Hello.

have had a bit of a light bulb moment this week. I am starting to wonder if I might have ME, in a mild form?

I have noticed that I seem to go through cycles of being ok. When I am in a cycle of not being ok, I have the things in my list going on.

Aches. Mainly joints, it hurts to walk up and downstairs. My wrists ache, and I get shooting pains through my long bones. My back aches in a tired muscle sort of way. My pelvis and hips ache like I have been running, even when I am just sitting.

Tired: No matter how I catch up on sleep, or get a normal amount of sleep for me, I feel dog tired. Like jet lag, I feel myself nodding at traffic lights.

Words: I get them mxed up, and use the wrong ones. I start a sentence fine and then it runs away from me and I can't finish it without really concentrating and stumbling through.

Skin: Sore. That's the only way I can describe it, especially over my cheeks and arms.

Sweating: I have days [the bad days] where no matter what I do, I just pour sweat. Only my armpits, but still. Could do without it!

Palpitations: yes. These are there on the down days, at rest. I've had a 24hr tape, it was fine. Naturally I didn't have any during that 24 hrs!!

Treacle: Feels like I am wading through treacle. Not surprisingly on these down days I am grumpy and horrid mummy

The thing is the cycle. That's what got me thinking. Yesterday I was great, baked, did crafts, did some plannning for work, tackled some jobs that needed doing [phoning for appointments and stuff like that]. I thought to myself last night, 'OOO you'll pay for this good day tomorrow' and that rang an alarm bell. I shouldn't be thinking like that should I?

I went to town for a 6 hour shopping trip, and seriously I had to go to bed for 2 days afterwards.

What do you think?

BTW, I am very unlikely to be anaemic, and I have had thyroid checked in the past.

Have Dr's appointment tomorrow. Will he think I'm a moaning bored mum who whould loose weight and get out more? I'm scared of getting the face!

Hello.

Wish I was 29, but am 35. What a lot has happend in 6 years, 2 children , new town, married, house, 2/3 jobs. No wonder I'm knackered!

Sorry to hear that you are feeling so so bad Aly. Maybe a national support group could halp you get more from the GP? There must be some tried and tested treatments that can help with symptoms. I guess if this is pure me symptoms that you are experiencing, then maybe they will regress and decline, and this too will pass. I wonde rif any treatments could hurry that along

It's hard with this condition, I mean, with all these things that plauge us, of course we are likely to be depressed. WHo wouldn't be! Yet there is a fear in me that the depression will be seen as the 'thing', and the expectation that it will all be just dandy once the depressed mood lifts. I'm all for my mood lifting, but you know what? If my wrists.throat.back.head.neck.pelvis.hip.shins and skin would stop being so freaking sore, I bet my mood would be pretty improved all on it's own.

I'm better with online than going somewhere to see people. By the time I'd stressed, arranged childcare and got there, it would be another stressor.
Having said that, a curry night might be very good indeed Sadly am on Yorkshire coast and miles from anyone and anywhere. Or so it feels.

This week I seem to have heavy bags to carry . Yet I have no real problems and nothing at all in comparison to so many. So am conflicted, knackered and feel like I've been totally beaten.

Yes Solo so so lucky to have support online. I have good support in rl too, but at the moment I think online seems to help more.

Must go to GP for bloods, and get this ball rolling. Must get treated for depression and see what that brings. Must must must. It's really hard to plan a fasting blood test and follow up appointment in my life. I don't know why, but I'm buggered if I can pull it off!

I wish I was 35 tree!!!

Yes, you really must get it done. It's the start of getting sorted. Do it :)

Appt Thursday for bloods

Goodgirl! (I can say that as you are a lot younger than me!)

I haven't been yet though, so you'll havegive me stern eyes on Wed night too. Otherwise I'll eat late [as usual] and blow it!

HMMMMMMMMMM!!! you have to get it sorted tree...

I'll go, I'll go

totally agree with your longer post tree. that you wouldnt be depressed ,but for a,b,c,d,.....z. and it is the fear that Gps will just see it as depression. give you AD's and bundle you home.

took DS2 to the eye hospital this am and asked if i could be seen too. My eyes are really killing me.

The opthalmologist said i was not producing normal tears. Just water and not much of that.

They asked me if i had Rheumatoid arthritis or sjogrens syndrome because my eyes were so bad.today i can hardly open them.

This disease i have developed is sounding really awful. I know its probably TMI but also i have had recurrent thrush for no reason. Just googled sjogrens syndrome and nearly all my symptoms except for the dry mouth are there(except i have been drinking more)

feel like giving up glum

Oh Aly :( sounds horrible for you. I'm so sorry.

aly my neighbour had a small op for similar sounding eye problem.i am pretty convinced she has (mild) me as i have it and she developed some symptoms soon after i became ill although don't really have a full story of how she has been etc.a relative of mine became ill 6 months before me too.I think cases can def be cluster type.

I could of written several of the earlier replies myself, so not much to add, bar stressing the importance of educating yourself & making sure your Doctors are thorough in their testing, too many aren't & need prompting,

I know several people who have gone on to eventually get other diagnosis after finding out about & pushing for tests, Thyroid been a common 1.

I just wanted to add the following link here, as it might be relevant to some of you, I thought I was well versed in possible alternative DX & dealing with M.E. & FM, but this is a new one on me & I found it when searching for what I thought was a completely unrelated problem (recurring gland problem in my neck pressing on nerve) ....it certainly looks like another one that needs ruling out or better still diagnosed with, as its curable :)
parathyroid.com/

after finding out about & pushing for more thorough tests (ggr, damned fingers got a mind of their own, bad enough when our mouths do it "

Can I ask YeButerfleorgeEffete did you have the Adenoma of a parathyroid gland ?? (from reading that seems to be the usual PT problem) & if so did it cause pain problems itself by pressing on nerves & causing massive facinal & neck pain??......I'm just going through this now, my ENT specialist is taking it seriously & is arranging a scan for me, but so far, but my showing high blood calcium has been mentioned to me before when I've had surgery, I just didn't realise it could cause similar problems & its not been checked for by GP

PS...My Vit D is fine, my GP did check that as she knows low D is linked to M.E/FM.....though apparently it can still be okay with parathyroid problems, its the Calcium & Hormone levels that cause the M.E/FM like problems

Trust me, you WOULD remember it, its had me crawling up the wall this last week or so & in the past too.......previously been diagnosed as a lymph gland infection, swelling & pressing on a nerve junction....but I'm doubting it now, as its a very rare infection, so makes no sense that I keep getting it ......googling images of where the lump is, brought me to the site above, & reading the symptoms list wasa bit of a "urika" moment......might be another dead end, but worth following up as the high calcium & parathyroid hormone levels cause the same symptoms most of us live with, & its curable

I should add, the lump I have behind my Thyroid is quite large, grape-walnut sized, from reading around the net it doesn't sound as if most people are aware of the actual adenoma itself, just the CFS & pain symptoms, including sore throats etc & its apparently under diagnosed, so worth looking into

have made a massive list of symptoms for rheumatologist. when i read the list, it is horriffic.

tried to trowel over one of the borders in my garden. literally lasted 2 minutes before i had to stop.

tried to do some cycling on my bike to get muscle tone back. feel as though heart is going to burst with he effort.

oooh i hate being like this.

love the spelling of eureka rockinhippy

damned fibro fog I knew it looked wrong, more MS Johnsonn {grin] just couldn't for the life of me think why, so thought...sod it its understandable

good luck with your Rheumy....hope you get a good 1 :)