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Positive neurology stories needed if you please.

29 replies

onlyjoking9329 · 11/12/2010 13:43

I've been struggling for a while with what I first thought was a trapped nerve, (have history of back ops and nerve damage)
Over the last week it has got much much worse, I have major whole body spasms ( except my right arm)
If I touch anywhere on the left side of my body it brings on the spasms, I can't put my left foot flat to the floor cos of the pain and spasms. The spasms have been witnessed by my GP and the consultant, GP said it's looked like epilepsy but It's not as I'm totally with it throughout.
My doctor has been fab, saw her twice last week and she's phoned me three times to check how things are.
She got me an urgent appointment with the spinal surgeon which was yesterday.
Consultant says it is not a back problem or a trapped nerve, but is a neurology problem.
They've asked for full MRI scan and for me to see the neurologist, I'm very worried about this but mostly worried about my kids and who will look after them.
I'm hoping that it might be something like a bleed in the brain that they can sort out easily but my head is taking me to very scary places, does anyone have any ideas or stories that may help?
Thanks in advance.

OP posts:
onlyjoking9329 · 29/12/2010 15:13

Spasms are mostly under control with Valium pain is mostly managed by meds right eye still rubbish, but I have those spare eyes in the back of my headWink
Once kids are back to school it's back to the doctors to see what to try next.
It does worry me if I'm honest, I'm more anxious about health things days, Elliot when I got home gave me a big hug and said I'm so glad you didn't die mum cos then I'd have been an orphan and have you seen the films with orphanages on them, I don't they'd be suitable for me! Bitter sweet really I guess.
Thanks and I hope Christmas was kind to you all.

OP posts:
snowmash · 29/12/2010 15:36

Thinking of you OJ. There are neurological disorders that don't show up on MRI (but generally not ones that kill you).

onlyjoking9329 · 29/12/2010 16:20

I'm hoping for something easily treatable !
The consultant was wondering about proprispinal thing, whichbseems to fit except the spasms, it also stars tramadol as being something that makes it worse ( my GP had me on tramadol but after this all started)

OP posts:
madwomanintheattic · 29/12/2010 16:25

so pleased that the scan showed nothing oj. hopefully the new year will bring you an easily remedied answer x

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