Anyone else agree with me that bleeding every damn day for 3 1/2 years is a problem?

[DevonDumplin]

Need nice MN people advice on how to kick the gynae dept in the

Basically I have been bleeding every single day for the past 3 1/2 years, have had numerous referrals that have all come to nothing, no-one seems to think this is a problem!!!!

Out of the blue I started bleeding where it literally pouring out of me, TMI sorry. When the pain started I was convinced I was miscarrying (hadn?t know if I?d been pregnant at the time, but doubt it now).

GP at the Uni was a cow and told me I had obviously got a STI because I am a slut despite being with the same lovely frustrated man for the last 4 ½ years. Had a three week wait for a STI test with a slightly kinder nurse who offered a smear too. Everything came back totally clear so nothing more was done despite no change in symptoms.

Referral took 7 months, despite me hassling (I was working in the same hospital and went down there every bloody shift to pester). Saw a doc who didn?t have a clue, very painful and pointless examination later (which I have separate issues with ), she said there was nothing wrong with me .
Had to go back 6 months later. Was still bleeding and in pain every bloody hour of every day. Still nothing wrong with me apparently. By now was getting a bit and demanded a ultrasound at least, have scar tissue from ?endometriosis/cysts . They refused to do any further tests, hysteroscopy or laparoscopy etc as I can?t have this done awake ( issues) and ??it?s not worth a GA?? .

Then moved and apparently instead of transferring me my new hospital they discharged me [losing all hope emoticon]

So there?s me waiting in my nice new flat for an appointment that was never coming. But now have a lovely understanding gorgeous GP who nearly fell of his chair at my little rant and pathetic cry but still cannot get me an appointment with anyone decent for another 3 months.

So damn about the whole thing.
We have sex about one a month at most and it?s crap very careful not to hurt me, bless him. If it is endometriosis this can make me infertile !!
I bloody work in the damn bloody crap useless NHS (nothing to do with gynae though) and still can?t get it to work!!

Is there any hope?

Sorry about the ?'s, not sure what happened there

Why has your GP not referred you for an ultrasound to rule out any fibroids/cysts etc?

You don't need to see a gynae to get a scan - your GP can get that sorted. Oh, and I have never known a laparoscopy being done any other way but under GA.

And no, that amount of bleeding isn't normal and the people you have seen and done nothing are tossers.

Dear Devon

OMG you poor thing!!..
Can you just clarify one thing for me-if you have had an ultrasound what did the results say??
I am a bit unclear as you are obviously very upset and I had a bit of difficulty following your post-apologies for my slow understanding-it' not the 1st time I have had trouble following things!! :)
Minnerva
xx

Sorry Minnerva, you're right it doesn't make much sense i was rambling.

I have had an untrasound via my new GP which showed i have scar tissue round my uterus and ovaries which they think may be from endometriosis and/or cysts.

This is where things have ground to a halt again. They do one thing then never follow it up or use the results to actually try to understand/fix anything.

LilyPickle - you're right, they are.

Ring the hospital and ask for a private consultation, or look up a private gynacologist, you can self refer to a private consultant.

I did this when I had problems and it was the best £140 I ever spent.

How awful for you:( It's dreadful you've had so little help.

I agree with Miggsie if you can afford to, try and see a private gynaecologist as you need this investigated asap.

I had problems with my periods six months ago and was fortunately able to go private as I had BUPA. I had a laproscopy under GA and was told I had endometriosis and a large cyst. The gynae was brilliant.

I really hope you can get some help soon x

I have had no end of gyne problems Devon but it was all made slightly more bearable by me having a wonderful doctor and gyne.

I am due back in hospital on the 20th Dec for my (hopefully) last major abdominal operation.I am 43 and due to my heavy bleeding was sent to the hospital (like you) for an ultrasound-this was approx 18months ago.I knew that I had endometriosis and polycystic ovarian syndrome but the scan showed several large cysts attatched to my ovaries.As I had such heavy bleeding-abnormal smears and had finished my family I was told that a hysterectomy and an oopherectomy (removal of one ovary)was the best thing for me.I decided to keep a remaining ovary to stop me going into a premature menopause but this was a mistake as less than a year later I am back to the hospital with an aggressive bleeding cyst on the remaining ovary with all sorts of complications involvedincluding possible cancer and a temporary stoma.

The reason that I tell you this is not to scare you but to impress upon you how important it is that you ask for a second opinion (if private medicine is not an option for you)and get it sorted.You have no idea what is going on until you have been properly assessed.If your medical experiences have been bad up until this point you need to be strong and start to push your medics into some sort of action.You have to look after yourself as nobody else will.

One of the most important things to remember here is this is possibly your reproductive system that we are talking about here-if it all goes belly up and you have not had your children yet....well you can see what I am saying.

As another mumsnetter says your gp can send you for another scan and the results of that should then lead to an appointment with a gyne-but please remember Devon that sometimes you have to really push and insist upon what is rightfully yours which in this case is the best medical care that the system can provide.

Please don't lose heart-I am sure it's nothing anywhere near as drastic as my problems but in order to stop it possibly becoming as problematic as mine 10 years down the line you must insist that you are taken care of properly.

Wishing you lots of luck Devon. xxxxxx