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I am desperate about my elderly mother's health/domestic situation

51 replies

justlookatthatbooty · 27/11/2010 13:50

I couldn't see where else to post this so it's posted here...

I'll try to cut a very long story short but I'm afraid it will still be long...I'm trying to help my mother and need any advice or experience you can share...

I hope this makes sense, in writing it I realise how much desperation and emotion I feel. It's a life story I've never told , or a fraction of the life story and is very hard to write coherently.

My mother is late in her 60's, but is in poor physical health,with substantial hearing loss (doesn't use hearing aid as apparently none can help herHmm and is therefore very isolated. She has a lot of physical health issues and limps about with a very curved spine. She can barely make it through the day, she is so exhausted. She has the most awful sustained uncontrollable cough and if I stay at her house, I can hardly bear to hear her coughing at night,totally out of control. She laughs it off if I bring it up, or go to her day or night. I've had so many gentle talks, angry talks, tearful talks, she just denies and walks away.

Her saving grace is an iron strength determination and inner fierceness. I have suspected tumours for a long time but she will not have any tests, she becomes utterly deaf if I try to talk about health checks of any sort. 20 years ago I made several appointments with therapists but she either didn't go or walked out. She has had a violent and alcoloholic history but has not been agressive nor alcolholic for about ten years, at least not in action, if in thought.
She remarkably self cured from alcoholism, a process which as a teenager, in the months before my father's death, I witnessed as nothing short of a miracle.
I must say, without wanting to self pity ourselves ( my two great bros and I) , our childhood and teen years were extremely hard going. Perhaps as a teenage woman, I saw, heard and dealth with more then them, and I've never brought certain things up with them, another form of protecting others.

Mum makes it outside most days, and her contact with the world is the community with in she has lived for 45 years but has no friends as such, nor helpful neighbours. The area, once bohemian, is now extremely affluent and she loves the fact that she lives with streetfulls of film star this and presenter that but there is no-one around to help her, no basic decent community help. My father died 20 years ago. She lives alone in our family home which has a high prime location London market value and which is huge, absurdly expensive to run and needs 500k spending on it to become a comfortable home again. She rarely turns the heating on because she can't pay the bills which does not help her repeated bouts of bronchitis ("What smoking darling?" doesn't help either).

I phoned her Dr a couple of years ago to urge him not to just keep giving her repeated prescriptions of antibiotics which she self diagnoses for and which get left on reception but to insist on an appointment with her, to listen to her lungs and heart and make an assessment. I told her she smokes heavily and he said, "Well her file has Ex Smoker stamped on it so that's the truth because that's what she told me". I expressed my horror at his passive attitude and he laughed it off. He told me that he has many patients with suspected tumours and there's nothing he can do if they don't ask for checks. This is honestly what he ACTUALLY SAID. My blood boils when I think about this. As a GP, are you not attending to the communitie's health issues? Are you not responsible for the handing out of drugs and the viability for the treatment? I wasn't asking him to force her against her will, simply to care a little and ask himself, What is going on here? Let's see Mrs *** and have a chat, gently suggest a few good things."

She is totally and utterly broke, no money to buy food or to pay the bills.She's been surviving on scouring the supermarkets at 5.50pm when they mark every thing down to 20p due to Sell By Date. She has grown accustomed and thinks nothing of eating sandwiches etc that she keeps for a week or more beyond the sell by date. I feel so desperately horrified about this. It's awful. She won't listen to any sense and her sense of economy has become lodged deeply in this utterly skint and unpleasant existence.

She's been spending life insurance money from my father's death, living in the totally inappropriate house over the years when it could have lasted a long long time in a nice renovated garden flat, with people to attend to her every need, or to be alone if she prefers. Ok, so it's her choice but she hasn't worked for 40 odd years and is too ill to do so. My two brothers and I are helping her out but with young children of our own we cannot manage to raise the kind of money she needs to stay there and she really needs to face the issue, rather than get rescued from other people's pockets. She wants to put the house on the market in Spring, as she is adamant that it won't sell now, or if it does she will take a 'massive' price drop. She may be right, but the situation seems life threatening to me (she's fallen twice and shattered one arm/elbow/wrist with major surgery and loss of range of movement resulting). She is so utterly utterly stubborn about absolutely everything and has been obviously mentally borderline for most of our lives, though never diagnosed. She's quite sane on many levels (she can think straight) and quite totally nuts on others (imagination goes wild, esp living on own and very obsessive personality (COD), inability to hear, not just on the physical hearing level, totally immersed in herself).

My brothers and I have been trying to get her out of her house for 20 years. She can have everything she could wish for and more if she would only sell. She has 'sold' or nearly 'sold' several times, pulling out due to sellers remorse. I doubt that she will ever move out of the house, or that we would have to take power of attorney in order to take control, which is an awful awful thought.

She is however certain that she will put the house on the market in Spring, but she's been saying that for years, gets everything ready, works like mad on every single perfect little alignment of pots and china (in 22 rooms) before she'll allow the viewings/valuations and then pulls out when it gets really interesting.

I want to help her to release some kind of credit on the house but she has absolutely no income. She also wants to release some credit (enough for a year of living there, to see through the sale and no more).

She is now telling me that it's not possible, no-one wants to lend. She makes up a lot of stuff, down to the detail so it's hard to tell what's happenned and what's a figment of her imagination.

I realise the bit below is perhaps for another section of the forum. I'll go in search of money matters...

Surely there is some kind of mortgage possibility available based on the value of the house for someone without income, especially when it's a tiny tiny percentage of the value? Perhaps her age is the problem, no-one wants to lend? She does already have a loan, which my father was encouraged to take out before he died, but which had no insurance attached so Mum inherited it. Poor financial management. She pays the interest on it every month but has no more money to do so.

If she gave the house to my brother (38, architect, self employed but with successful own start up practice) then maybe he could borrow the money for her? I doubt she would do this because she's so mentally stuck but who knows now that she is finally utterly skint. We all have a close (if painfully exhausted exhasperated relationship) and my brothers and I are resolute in helping her, I must say to great cost on my brother's marriages. I live abroad and see her rarely but we are very much in touch by phone although that is getting harder, now that she can hardly hear. She talks, I listen, then we have to hang up because she can't hear me.

I"m thinking, who, where, what can I contact for help, to get some money released for her on the value of her house. On the health level, I don't know, some kind of assessment was due a long long time ago, but is certainly not welcome by her. I really don't know what to do.

OP posts:
justlookatthatbooty · 27/11/2010 19:00

Hi Quintessential

Sorry to hear... it sounds really hard.
Do you have any siblings to share this with?

I forgot to add that Mum is totally miffed that me and my bros are not able to go around and change the lightbulbs, fix the enormous list of unfixable things in the house, clear the garden every week etc. She refers to this inability of ours as 'abandonment'. Poor love, she really really wants lots and lots of help, like yours Quintessential but when she say, Oh no, help I'm skint and I can't pay my way, and we try to help she can't face any of the choices. So we lend her money that we don't really have and say that in a couple of months it will have run out and we can't lend any more and she says yes yes I'll do something to sell and so on and so on.

It could be an idea to just let her live as she wants to, despite our fears and sorrows to see her doing so, but the point now, is that we are financing it, from our incomes or from our partner's incomes which is shear hard earned money and we are all one income families, ( me and my bros). My brother starts his working day at 0430 and finishes it at 2300, I'm not exagerating. He's been on the brink of meltdown and marriage troubles for several years due to inordinate levels of stress, trying to keep his family of five together on one self employed income in the construction industry during the recession. It's huge. And now he's paying out 500 a month to finance mum's predicament, as we all are, whilst she is unable to move.
So it's not as simple as just leaving her to her own devices and let her live the life she wants. That's what we did before her accidents and before she became financially dependant on us.

OP posts:
justlookatthatbooty · 27/11/2010 19:03

Chatelaine

That's an idea I hadn't actually thought of. I'll reflect on and research it. Thanks again!

OP posts:
lucy101 · 27/11/2010 19:06

I am in a similar situation with a parent... but one thing that I noticed is that although they call and ask for help, they don't actually want it, but asking for help means they get attention, they get more phone calls, concern, they get to have the endless conversations about their situation etc. but they aren't able to (or want to, not always sure which) actually use the help offered.

This is pretty frustrating and can, in a way (at least in our case) seem to just perpetuate the situation: have problem, moan about it, get attention... and the cycle starts again.

We have outlined the help on offer from us but I won't listen to all the moaning about it as it is exhausting. When they are ready (if they ever are) to use that help it is there.

We also keep emphasising how much more time we and the GC would spend with them in better accommodation, trying to give positive reasons to get them to move IYSWIM.

QuintessentialShadows · 27/11/2010 19:09

Practically, I dont. I have one sister and she lives abroad. I offload to her though. I chose to uproot my family and move from London and home, to help my parents. But I am really regretting this now, due to the amount of crap we are getting from my parents. Emotional blackmail and shit, such as my mum saying "I am going to kill myself if you have to move back". My family and my marriage is beginning to suffer, due to all this, and we are considering moving back, and leave them to their own devices.

THEY are choosing to live in this big house, and I can no longer shoulder the responsibility of their choices.

You shouldnt either.

Can you arrange to travel to your home and meet with your brother and your mum and explain that you will no longer be able to pay her any money, because your families and children are going without due to this? You are suffering financial hardship, so she either must manage without funds from you, or sell the house and move into a flat? This way she can live on the proceeds from the house. Can you explain to her that it is not fair that she shall live in a big expensive house, while your families sponsor this, when you really cannot afford to?

Let her have a choice, then leave her to it.

Chatelaine · 27/11/2010 19:12

It is becoming clearer with the additional info - your mum is being unrealistic, unfair and increasingly demanding. Putting pressure on you and your Bros to support her in some bye gone era that never was? Sounds to me that she does not want to let go of all the memories, good or bad. It comes to us all and the sensible thing is to plan for it. Unfortunately your mother has buried her head in the sand, but this is not your fault. It is so unfair for her to demand to be maintained in a huge house whilst you younger generation are still working and possibly bringing up families.

justlookatthatbooty · 27/11/2010 19:13

lucy101 You've just totally summed it up, to the detail. This is exactly how I experience the situation of wanting and yet not wanting to actually act on help. Very clear boundary drawing re not listening to any moaning but being available for actual help. This has been a take of ours and my SIL recently stated that she's welcome to come and live in the village close to them, outside London but some very clear boundaries need to be agreed because of previous extreme interfering (mum has been known to pull plants out of the garden and reordering the house whilst babysitting her grandchildren in the day when she was capable of babysitting). The unfortunate effect in mum's case was to disappear deeply into a traumatised abandoned state "attacked" state from which she has not really recovered, She is now convinced that my SIL is out to get her and has stated horrendous fantasies of violence towards her (which I know she wouldn't actually carry out at this stage in her life). Anyone can say stuff when they feel very angry so I choose to put that to one side but she isn't encouraged by any sort of boundary setting. Just sends her sort of psycho and she stops contacting us but we know she's sitting there without the heating on and eating mouldy food so we get in touch again of course. Dear mum, what a predicament.

Hope your situation improves Lucy101.

OP posts:
traceybath · 27/11/2010 19:15

What an awful situation but I do agree with QS (awful for you too QS).

I do wonder though if your mum just thinks you will all keep supporting her financially as you have done so far and that you need to make it absolutely clear that this can not go on as none of you can afford it.

Hopefully Age Concern have been a help.

lucy101 · 27/11/2010 19:31

JLATB your situation actually sounds actually much, much more difficult than mine... I really feel for you, I really do... but even if they don't respect your boundaries, you still have to have them to protect your own sanity, families, relationships and finances.

In fact when long-standing mental health problems are factored in (which we have to deal with in another part of the family!) your own boundaries become even more important as their desperation/needs can really drag you down.

If you could easily afford to support her in her situation with no real damage to your own (I know of rich friends who do this) then that is a different scenario.

So many people have offered good advice here which is all relevant because it probably needs a multi-pronged approach: working out your own (and your brother's) boundaries first (you and your own families have to be protected), then age concern, then a discussion of power of attorney and so on.

I also think that these situations often only get worse, not better as the person declines, despite everything you try and do... and if this happens then it is very sad.

It might be that the best you can do is to manage bits of the problem and not solve it...

justlookatthatbooty · 27/11/2010 19:35

I'm just realising how powerful this process of opening the situation up for discussion outside of the family is. I now feel incredibly emotional about the stress to everyone, also mum, but especially to my dear brothers who are so gentle, accomodating and stoic. It's got to change. Just wanted to say a massive thanks to mumsnetters for discussion on this. I'm at least realising that the stress levels are way too high for health and that some kind of assessment for Mum may be in the very immediate offing. I have wanted to get outside help for years and years, but family secrecy pressure etc has stopped me. It's like a bloody curse that's been going on for ever. I can remember the same feeling wanting to call the social services when she was off her head and dad had died when I was fourteen, very grim situations and I didn't dare. Feels like she has the same hold now still all these years later. The fact that I love her and want her to be treated with care and respect despite our troubles makes it very difficult to open it up to ' the system', being healthcare and assessment I guess. There's been a lot of protection involved and I have always felt like her mother, also as a young girl.
I guess somehow I have to come to terms with not being able to fulfill that unrealistic role, which she insisted upon so long ago.

Sorry about the psycho ramble, Blush oops.

OP posts:
moondog · 27/11/2010 19:37

Poor you.
For all that you love her, it is not right if her actions make more people suffer when it could so easily be avoided.
Your brother sounds on the verge of a breakdown.

It's got to stop.

justlookatthatbooty · 27/11/2010 19:39

Thanks Lucy. Very wise re:

" It might be that the best you can do is to manage bits of the problem and not solve it...

shall remember that when it all feels like too much.

OP posts:
justlookatthatbooty · 27/11/2010 19:47

my lovely DP is giving me time off to be with this thread and putting the urchins to bed! So helpful, folding laundry and brainstorming this!
My poor bro's indeed. Jesus. It's really alot worse than I've been admitting.

It's got to stop indeed. I think the wisdom of putting my own needs first, setting my own boundaries in order to protect myself and my immediate family and my brother's family's comes first. But how does that actually work in practical terms?

Perhaps write mum a letter? She can't hear on the phone, especially not if I'm trying to say something poignant or that she doesn't want to hear, suddenly comes over completely deaf.

WRite in letter how it has to be for me and my bro's to remain in healthy relationships, and to remain sane at the least and happy at the most? and leave the rest to her? Outlining her options? Like, sell, we do all the production of selling itself to take the practical weight of packing up stuff and co-ordinating the whole thing but only once shes sold? the problem is that she is already incapacitated to some degree because she is not capable of receiving offers on the house due to hearing prob. So one of us has to accompany her or be present on many occasions. She is adamant that the hospital is wrong when they say they have come up with a special new hearing aid for her condition. She is reluctantly going to try it but is already saying it won't work.

Letter writing is obviously the most effective choice, due to hearing issue and going suddently totally deaf when presented with info she doesn't like. Now I have to focus on what to write.

OP posts:
PacificDogwood · 27/11/2010 19:49

justlook, my heart goes out to you, your brothers and your mum - what a very difficult situation for you all.

From your OP however, it appears to me that your mother is doing all the things some other posters have already stated: does not face up to the reaslity of her situation, is not amenable to what is realistically achievable (by you or anybody else) and is putting you in particular under enormous emotional pressure.

She may not be drinking anymore, but is displaying a lot of the utterly self-centred traits of alcoholics; the inability to see how her actions affect others, even (or particularly) those closest and dearest to her.

I think it is absolutely and crucially important that you can come to accept that NOONE (not you, your brothers, nor your mum's GP) can change her behavious or what help she is willing to consider acception. Assuming that she is not demented or mentally ill, it is entirely up to her to want to make changes. There is nothing but heartache for you in it if you continue to try to make her see reason (sorry for the bad grammar - DH is doing bathtime, I type in a great hurry).

I think contacting Age Concern or Help the Aged is a good idea, also contact SW and ask for a community assessment. Some services (assuming your mum would accept them) are means tested and the fact that she lives in what sounds like an expensive piece of real estate may mean she'd be expected to pay - and would have to sell the house. Get good legal advice. Look after yourself - you sound exhausted, sad and exasperated. I have been through it all with my gran and my mother, who was driven to the brink of what she could take by a similar situation.

Here is another thought: consider goind to one Al-Anon meeting - just to see if they have anything to offer to you. Apologies and ignore if this is totally inappropriate or you have already been.

Must dash.

moondog · 27/11/2010 19:50

Letter an excellent idea.
Set out a few options os she feels she has some choice and control and tell her you are giving her some time to pick one and will be in touch in a week.

lucy101 · 27/11/2010 20:03

A letter is an idea... but you might not get the reaction that I think you want if you actually send it as it seems her mental health is so vulnerable.

She may well behave very badly (from what you wrote about the situation with SIL) so it could make things seem very much worse (and I expect you would find this very difficult after being the 'mother' yourself for so long as you say).

It just doesn't sound like she will be able to make use of the kind of help you might propose (she seems to have a strong personality and a history of manipulating situations for her own, even if very sad, needs)

It might be good for you to write it though so you are clear about what you need to do: the letter is probably more useful for you than for her.

It might be easier just to work out your own boundaries and put them quietly in place rather than discussing them with her e.g. you work out for yourself a set number of telephone calls a week (only what you can manage), a set time for listening to problems, and then a polite end to the call. Then you can do some of the other things you need to do (and will have the energy to do so).

Sadly, I think PacificDogwood is pretty much spot on in many ways....

Chatelaine · 27/11/2010 20:06

Do not be ashamed of asking for outside help e.g social services for an assessment for your mother. It is a one off and does not put your family "on a list". That is a common fear with long standing, self sufficient families. For what it is worth, timing is everything. IMHO leave the writing of the letter to your mother until you know what social services/Age Uk etc,(if you chose to contact them) advise. Otherwise this will add to her distress.

PacificDogwood · 27/11/2010 20:48

Sorry for running away - I x-posted with you earlier.

A letter is a good idea for you to focus your thoughts and lay out in front of you what can and cannot be done and what changes you would like.

I am not sure about sending it though - sometimes things sound much harsher in writing than they would when said face-to-face (one of the problems of internet fora Wink).

Your mum's refusal to listen or go 'more deaf' when you try to discuss anything remotely uncomfortable/controversial with her is very much passive-aggressive behaviour and very, very difficult to deal with effectively.

Have you considered some RL counselling for yourself, just to get some support and to be able to vent to somebody who has no vested interest in the situation?

WRT your mum's GP: You could make an appointment with them in your mum's name, go on your own and tell them your concerns. They will not be able to discuss any of your mother's health problems with you due to confidentiality, but it will certainly flag up the fact that there is a problem. Alternatively, and much better: would your mum agree to see her GP with you? Then things could be discussed with everybody concerned in the room. Of course, this only works if your mother agrees...
GPs cannot assess or treat anybody against their wishes although there are some grey areas and I have been known to ring somebody's door bell 'as I was just in the neighbourhood' to check out a neighbour's/family member's concern (yes, I am a GP in RL).
If you (or rather your mum) is unhappy with her GP's practice, is there the option to change?

justlookatthatbooty · 27/11/2010 21:22

Wow, I'm just processing this. Thanks for the posts dog, lucy, chatelain and Pacific. There is some really spot on stuff being said here and it all makes total sense.
What is RL nad WRT Pacific? Yes to passive agressive in enormous amounts and very very manipulative/ blackmailing to tremendous emotional detriment to my brothers, also to myself but I've had a lot of therapy over the years. Very good idea to take this sole issue to therapist and work on boundaries and sense of safe space. Thankyou.
Very sad at prospect that there's nothing I can really do to help mum, but I guess I've known it all along and was saying this to my brothers on several occasions. Neither have had any sort of therapy and are quite unacknowledging therefore of the extent of this over the years. They are still immersed in the pain have never experienced time away in another country as I have and the normalising of her behaviour because it's been present all our lives, and was our upbringing if you like, it's hard for them to see that it's really really unhealthy and very unacceptable. And yet they can sit with me and be in floods of tears and sobs after a terrible fight with mum which goes nowhere but on deaf ears, an urging pleading conversation to stop tormenting their marriages with her heavy dragging awful grimness and they keep on going and going. When I told my brother some time ago when he brought up the What are we going to do with mum question that I expect mum to never leave the house of her own volition and that she is really really sick, he just said "That's Awful, I'm not going to accept that. We have to keep trying to help her." And somehow my boundaries have become blurred again in the flow of effort, the we there are a team, I can't leave them with it, so I'm jumping in too. But as I write I realise that I"m not helping and that in setting clearer boundaries despite my awful guilt complexes when I do so, I would be hopefully helping everyone.

Gosh, i am aware this has become quite a ramble and I apologise for the offloading.

Thanks again for so much great awareness and advice on the topic.

I am feeling so much enlightened on the subject for airing what have been tightly held secrets for so long and having such experienced people share their wisdom.

Going to lie on my yoga mat and appreciate all that is wonderfully functional in my life.

OP posts:
QuintessentialShadows · 28/11/2010 10:18

When my sister and I realized that mum was developing alzheimers, it took a while to pinpoint definite "proof". When we had this, we wrote a letter to her gp, explaining the situation and giving examples, and telling him we felt she needed an assessment at the geriatric unit at the hospital. We followed this letter up with a phone call, to discuss the matters with the gp.

The next time she came in, he brought it up with her, ever so gently, so she agreed to have him refer her.

Speaking about the problems to the outside world, was another hurdle. We did not want to announce to all and sundry she has alzheimers, we wanted to let her talk about that when she was ready. So now she is open about it.

But it is a bit of a process, from realizing something is wrong, to getting help, and also accepting what is actually happening.

Social workers and health care professionals are used to dealing with situations such as these, and vulnerable and elderly people. My mum has been met with nothing but care and respect. She has been able to keep her dignity, so far.

The next step is to be able to persuade her to accept her place at daycare, which will be good and stimulating for her.

Would your mum want something like that?

PacificDogwood · 28/11/2010 10:51

Sorry about the acronyms - here is a useful list Smile

RL = real life
WRT = with regard to

I hope you find a way through this.

QueenofWhatever · 28/11/2010 11:50

The others have made some good points. I very much agree with speaking to social services and her GP. Pacific describes it well, I recently did something similar with a bipolar friend on the advice of GP colleagues. It felt weird and scary, but it was the right to do and got her sectioned which even she is now starting to realise.

There are two parts to this - the practical and the emotional. I would take some practical steps - it is in the best interests of all your family. I would write the letter but not send it, it's for you to be clear on what is acceptable and realistic etc.

A useful book to read is Toxic Parents. The shame you feel of involving the outside world is very common in such families (I'm a world expert, but for different reasons). Also the Stately Homes threads in the relationships section go into a lot of this stuff.

Catkinsthecatinthehat · 29/11/2010 15:41

OP, you have my sympathies, as your are in a very difficult and upsetting situation. Do you and your siblings consider that your response to your mother is actually enabling her behaviour and that in a peverse way her passivity and weakness gives her a lot of power over you and allows her to carry on as she wants?

She neglects herself physically and eats mouldy food, so you rally round and look after her. She refuses a hearing aid, so you have to be present to interpret for her. She lives in a 22-room mansion, so you all have to contribute to her £2k per month outgoings at the expense of your own young families, marriages and health. She waves the stick ('abandonment') and carrot ('I will sell') to get what she wants - the next visit or the next cheque. She keeps your brothers hanging on by putting the house on the market so they hope their need to financially support her is temporary, then constantly pulls out of selling at the last minute.

You are all trying to do your best for her, but it seems like she's manipulated you into maintaining the status quo - which suits her, but damages her children.

What would happen if you and your siblings presented a united front and stated that you could no longer afford to support her financially? Emotional support yes, money no. Your mother is actually asset rich (if she's in the area of London I think you've indicated, she's probably living in a £2.5m+ house). She cannot keep asking your brother to pay for her, his three children and wife, on a single salary when he's feeling the effects of the recession. It's unnecessary as well as unjust.

whitecloud · 29/11/2010 17:22

Justlookatthatbooty
Thought I would share my experience, as it might help. I have two brothers and I found that when my Mum was getting more frail and difficult they were a lot more inclined to stick up for her, even when she was being unreasonable. In latter years she would never come to mine for Christmas but would make remarks about how it was too much for her if dh, dd and I visited. It was OK, however, for my brothers to go there at Christmas (they were both single at the time). I was incredibly hurt by this, especially as dd was quite young then, but they kept saying that it was too much for Mum and she couldn't help it, not really seeing why I was feeling so hurt. That was hard to take at the time, but I think men tend to make more excuses for their mothers and find it hard to stand up to them. That might be happening here and it might be why your brothers are finding it harder to deal with this. You are able to be more objective.

It is hard not to resent your mother but she really isn't well. My mother got very depressed and it was that which made her difficult and unable to see how her behaviour was hurting others. That does not mean that you should put up with paying for her to stay in that house when you can't afford it. It is such a difficult situation.

Think others' suggestions are very helpful, especially Age UK, who must have heard about many similar situations. It is so true that the family norm may be to keep on coping and never ask for help, but unfortunately we are only human and can only take so much. Thinking of you.

noarguments · 30/11/2010 13:50

Sorry, not read whole thread, but wanted to signpost you to a website called first stop care and advice or similar - google it - all sorts of useful stuff on there, especially about the financial stuff - they do "A guide to Equity Release".
I agree that you need to get all this stuff out in the open - has family counselling been mentioned - might be worth thinking about. And maybe advocacy for your Mum - having someone completely impartial, with none of the family history baggage, who will represent her views in any discussion.