Diabetes Insipidus in children

[beebuzzer]

Can anyone tell me more.

I am worried about my one year old's fluid intake. She is even waking up at night time now and once I give her a drink she seems to settle again. She drinks so much water all day. I have ruled out type one diabetes as this has always been a thirsty girl and people have commented on it (just seems to be getting worse) and the fact that she is still very active,alert and energetic.

She has lost weight over the past year (she is on the 9th percentile now,born on 25th but has been up to 50th for a while too)and
has very very dry skin due to her eczema. She has always had problems sleeping throught the night too.

I am now wondering about DI and what other signs might be present.

May thanks.

Surely if you are concerned about this you should be talking to your health visitor or doctor? Don't look for other symptoms. Go with the fact that you feel she is drinking excessively and they will do the tests.

I agree. Book an appointment asap with your dr, take a sample of your Childs urine. Just because t1 was ruled out once doesn't mean it isn't presenting now; it goes through a honeymoon phase . Dont leave it; it can become dangerous if it is t1.

Drinking, excessive weeing, dry skin, weight loss - just like my son on diagnosis with t1.

I can totally understand why you are looking for opinions here before speaking to your GP. Diabetes Insipidus is very unusual and no-one seems to know much about it. I imagine the average HV wouldn't know what you were talking about.

DD2 has the same issues and as my BIL (a GP) has dismissed Diabetes Mellitus I'd put it to the back of my mind. But, her voracious thirst is still provoking comment, so I am planning a GP visit as we speak.

Interestingly DD also has dry skin/ eczema, but she is a solid lass, tall and around average weight.

Tiger she has been drinking alot for a long time and I have mentioned it before. She also sees a paediatrician who she has seen a few times and I have mentioned it to the HV. My Dr is pretty useless so that is why I am asking if anyone had any experience with it.

Thanks Niggle it does seem to be quite rare

ps I am not talking of Diabetes melitis, I am talking diabetes insipidus. They are quite different.

Its difficult when they have so many other issues going on (allergies eczema ect)

All the best with it. I was out with a friend last night and she was explaining to me how her daughter's t1 had been misdiagnosed 3 times. My son was under the consultant for 6 months for investigations due to our concerns before his was picked up - we also had two emergency dashes to the gp with tummy pains before the third one where it was actually picked up - I had bought some urine test strips and it turned them black.

Let us know how you get on and wishing you well.

Thankyou bramble. It literally is a case of going to the GP though and saying `can my daughter be tested for diabetes insipidus?'
My Gp has sent my daughter home before and we ended up in the hospital the same afternoon with aheart rate of over 200. The same thing has happened to myself chest pain so I dont have a lot of confidence in them.

Has she lost weight or just dropped percentiles?

You do need to take her to the doctors, explain the symptoms, why you think it is DI, and get a referral to a consultant.

There was one time between 45-45 weeks she went from 8.10 to 7.90 but otherwise Just dropped percentiles belgo (and not putting on as much as she should)
I did talk to the HV on these occasions and they didn't seem worried at the time. (I think she had had a bit of a cold as well that week and I had been worried about it hence why I took her 2 weeks running for weigh in.)

She has seen her paediatrician since then who said about 2 words to me and dismissed us. She also sees a Dermotologist and dietician but they just always seem to pass the buck.

Can I just add that she has quite a few food allergies namely dairy which was eliminated from her diet until recently (she was on special formula from about 4 months, called Nutramigen) We are now starting to introduce cows milk and she seems to be doing well with it. So there were quite a few foods we were not giving but would make up with other things. She has also had asthma type symptoms (although they said it was 'asthma' they will not officially diagnose it in such a young child.)

Otherwise she is very active and alert, was walking at ten months and walks around everywhere now at 12 months.

TBH there doesn't really sound much to go on. In fact she sounds very much like my ds who is now two years - also walking at ten months, dry skin, eczema, dairy allergy which has now gone, and drinks loads. Also an 'asthma' type attack of croup. He still drinks milk (bf) at night, and drinks loads of water, range juice and cow's milk during the day.

And he went from 75th centile at birth to the 2nd percentile - simply because he is so active and burns up all his energy, like his older sisters.

A drop from 25th percentile to 9th is for many babies perfectly normal.

I am still not sure exactly what makes you think of DI. Maybe you should be taking reassurance from the paediatrician?

I guess it was just the excessive drinking belgo. Does sound very similar to yours though. Maybe I shouldnt be getting worked up is she is ok in other respects.

and also the fact that others had commented on it including my mum (of 5) and her nursery carer.

How many times does she awake in the night to drink? if it;s just one time, I wouldn't have thought that was anything to worry about.

You say that you have ruled out DM; has a doctor ruled this out?