REFLUX

[nathollyandmatthew]

Hi all my son is 14 months and just been diagnosed 2 weeks ago with reflux, he has been put on 3 medicines for it, and also has problems with his swallwoing and also sleep apnea whcih they think is linked to the reflux, hes due bk in hosp in december for a few tests to be repeated to see if the meds have helped the apnea and swallowing, he also has epiosodes which r like seizures caused by the pain

does nayone child here suffer from reflux?
love natalie

Hi nathollyandmatthew.

The part in your post about 'episodes like seizures' caught my attention.

All three of my sons (even though breastfed) suffered with Reflux as babies to varying degrees, although mainly it sorted itself out once they started solids. However, my middle son also suffered (and although now 6, does still have some 'episodes')from a condition which was much later diagnosed as Reflex Anoxic Seizures (RAS), which, although nothing at all to do with Reflux,was probably not helped by him having the Reflux too.

Why? Well, RAS is a condition which can be brought upon by an unexpected pain or sensation. Basically, we now believe that his 'seizures' as a baby were intensified because of the Reflux pain he was experiencing at the same time, although he also had seizures as a result of other pains.

It may not be the same with your son, but please do have a look at the section on RAS on the STARS website and see what you think.

butterfly

hi ya i have looked at that site b4 matthew was diagnosed as the hosp mentioned it b4 the tests where done

tehy havent actauly names these epidoses as they and us where convinced he had epilespy, after alot of tesst not epilepsy could b found only reflux, so that is y they link the episodes 9seizures) to the reflux, hes coming off the epilepsy medicine but still need a close eye on incase they get worse

thnaks for replying

hi ya does ur son have seizres linked to reflux then?
matthew is on a soya diet as he has a diary allergy

hes alos on gavisocn, domperidone and rantidine and slowly coming off the epilim, so only time iwll tell if the siezures r actaully seizures

love nat

RAS is often mis-diagnosed as Epilepsy or even as Breath Holding. Certainly the pain of Reflux could trigger an RAS episode. That is great that your hospital are aware of RAS (and that they suggested the STARS website) as many are still not (although this is improving).

Do give Trudie or one of her helpers at STARS a phone if you need to chat through the possibility of your son having RAS, she/they will be more than happy to give you guidance.

Keep us posted with how things develop.

butterfly

what have they linked the seizurres to then sorry if im asking to many questions just im intrested

matthew has had 3 EEG'S, CT scan and ultrasound and all have come bk clear, hes been on the epilim since april and never really helped the seizues anyway and made him moody and and bad temper which was a nightnare

i not sure it they r not seziures as matthew is uncounios when he has this and the lonegst one has lasted 12 minutes

love nat

thnaks butterfly for ur help
its so hard to know and think what is wrong,

its weird coz mattthew never seemed in any pain b4 he was diagnosed
and since hes been on medcine hes had all the signs he never had b4 very strange

thnaks again
love nat

how old is aaron?
i ahve heard of infantile
12 minutes felt like a lifetime i can tell u, but its still unclear so hopefully one day soon we will know for sure what is wrong

i found matthew to be the worse when hes dose went up
hes dose is coming donw slowly now so hes mood is horrid again, plus a cold on top of that dont help either

hope aaron is ok
love nat

thnak you very much for ur help aww not much older than matthew then, matthew is 15 months on 6th october, he was born july 2004 i also have a little girl holly whos 3

thanks again
all the best for u

love nat

natalie, just wondered how things had progressed?