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Hair loss post operatively in ds :(

10 replies

MABS · 27/09/2010 11:25

As some of you may know my ds aged 9 had major bladder surgery nearly 3 weeks ago. He is starting to recover but it will be a long haul with him off school til mid Nov at least.

He seemed to 'cope' with it all well outwardly, but who know what goes on in his head, particularly as we know the op may have been a waste of time :( won't know for 3 months really.

At the weekend i noticed quite a large bald spot, around 3 cm diameter on back of his head and I am terrified. Does anyone have any advice/experience of this?

It was defo not there 3 weeks ago, I should also add that my own sister lost all her hair to alopecia aged 10 and then it all grew back when she was 13, this was many years ago. As you can imagine, i am very worried and confused.

OP posts:
Cakesandale · 27/09/2010 13:02

Oh I am not sure MABS, so sorry to hear this. But I have noticed with myself that hair always suffers post operatively (I call it hospital hair). Not sure if it is the drugs or the shock to the system or what. But it could be that.

MABS · 27/09/2010 14:35

thanks Cakes, am just v concerned :(

OP posts:
sandripples · 27/09/2010 16:41

MABS - I lost my hair this year due to chemotherapy. I can't comment on the reasons for your DS's hair loss, but in my experience, getting my hair cut really really short - about half an inch, felt more comforable and nicer. Before it feell out altogether. So wahetever the reason you could encourage your son to go for a very short cut if it bothers him, or gets worse. Until it recovers. If he's at school you might need to brief them (our school restrcits boys hair cuts to a certain shave number - can;t rememebr what it is)

herbietea · 27/09/2010 16:49

This reply has been deleted

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MABS · 27/09/2010 17:14

thanks Sandripples, so sorry you had to go through that. good idea re school, he won't be well enough to go back til mid Nov we think.

You may well be right re the headrubbing Herbie, but wouldn't i have noticed it before? sorry you had to have surgery :(

OP posts:
blake11 · 27/09/2010 23:59

Hello MABS. I am a trichologist (specialist in hair and scalp problems), so I hope I might be able to reassure you. I'm sorry to hear your son's been going through a tough time.

Obviously without actually seeing him, it's not possible for me to make a firm diagnosis, but what you describe sounds almost certainly like a condition called alopecia areata. This is a very common problem, particularly amongst children, and I have seen it many times at the clinic where I work.

Just to clarify, the term 'alopecia' is just a general term for hair loss, and not a diagnosis (this is a very common misconception). The condition 'alopecia areata' is literally patchy hair loss, and is an auto-immune condition, where the body attacks the hair as foreign. In the majority of cases this happens due to stress, so it is highly likely that in your son's case this is due to the operation etc., even if he seems to be coping well.

This type of problem virtually always resolves itself, so I would urge you not to worry. Children tend to take these things in their stride, but sometimes in adults, the stress of the hair loss can create a vicious circle, so I would suggest trying not to make an issue of it to your son. The use of such treatments as steroid creams is not necessary, should this be suggested to you.

If you look at the bald patch, if the skin feels smooth, it is likely the hair loss has stopped, and the body is at a point to grow new hair. If you see small, stubbly hairs round the edge of the patch, which can be extracted easily, this is a sign the patch is enlarging. Please don't panic if you see these, as it may not get much bigger. Indeed, it is possible for hair to be regrowing whilst other hair is falling. Sometimes when the hair regrows, it comes back white, or pale, but usually returns to the original colour in time.

Make sure he continues to wash his hair as usual, ideally every day, as this will not cause more hair to fall out (other than normal daily shedding).

I hope this puts your mind at rest, do let me know if you have any other questions.

MABS · 28/09/2010 08:05

blake - thanks so very very much for that. The patch appears rather red today, that normal? no discomfort though.

So am i wrong in thinking this could be hereditary? my sister went bald to alopecia at aged 10,lost every hair on her body, and then her hair grew back totally at aged 13. The thought of this terrifies me for ds :(

OP posts:
blake11 · 28/09/2010 09:18

The redness is not a feature of the condition, more likely it's just from him laying on it. The condition can run in families, and the condition you describe in your sister is a widespread form of the same condition, known as alopecia universalis. However, I would stress that it is very rare, so try not to worry. Some people have a tendency to these patches when stressed, in the same way others get headaches or stomach problems. The key thing with this condition is that the hair follicle always retains the ability to regrow a hair, hence your sister's hair regrowing. Sadly it's not a condition that can be prevented, and it's not understood why the body suddenly decides to reject hairs in this way. However, the vast majority of these patches in children regrow and do not recurr. Hope that reassures you.

MABS · 28/09/2010 17:40

thanks blake, that's very reassuring :)

OP posts:
blake11 · 28/09/2010 18:51

Happy to help :)

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