Meet the Other Phone. Child-safe in minutes.

Meet the Other Phone.
Child-safe in minutes.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

I may be tested for fibromyalgia

39 replies

sorrento56 · 26/08/2010 11:18

Can anyone tell me anything about it please or should I google?

OP posts:
sorrento56 · 27/08/2010 16:30

I have googled and now I am Sad.

OP posts:
tribpot · 27/08/2010 16:34

sorrento there are a number of posters on here with fibromyalgia. My dh has it although he has never been properly diagnosed in my view. I'm not sure how you can be tested for it?

Lots of support and advice available at UK Fibromyalgia but try not to worry. Whatever symptoms you already have will not get worse if you are diagnosed.

sorrento56 · 27/08/2010 16:44

Thanks very much for your post tribot.

My GP has written to my consultant to see if I should be tested for it but that is all I know. It does seem daft but I feel worse now I know there might actually be something wrong. My PIL have taken the children today and I haven't done anything other than a wash load, slept for an hour and MN/TV. I have had the symptoms for a long time and the thought of always being like this just really upsets me Blush.

OP posts:
tribpot · 27/08/2010 17:49

Ah but you could look at it the other way, if you have a diagnosis you can start to look at the right ways to manage the condition to have a better quality of life than you do now.

Obviously the preference would be to become completely healthy again (and that option hasn't gone, you're only being sent for 'testing', what kind of consultant are you seeing, rheumatologist?) but this way you can access support, therapies and techniques to make coping better.

Take it one step at a time. If you do get the diagnosis, we'll be here to help. But for the time being, take it easy.

TheButterflyEffect · 27/08/2010 18:59

This reply has been deleted

Message withdrawn at poster's request.

sorrento56 · 27/08/2010 19:20

I could be wrong, I just heard the GP dictate a letter to the consultant saying about me being tested. Maybe he doesn't know there isn't a test as such?

I have felt like this for so long Sad but yes, you are right, I can take steps to try and manage this better. I have done pretty much nothing today and I can only take so many days of that.

OP posts:
TheButterflyEffect · 27/08/2010 19:25

This reply has been deleted

Message withdrawn at poster's request.

herbietea · 27/08/2010 19:36

This reply has been deleted

Message withdrawn

TheButterflyEffect · 27/08/2010 19:39

This reply has been deleted

Message withdrawn at poster's request.

sorrento56 · 27/08/2010 19:41

FLipping heck, I have also being diagnosed with migraines and have digestion problems though not diagnosed.

The thing I am currently most upset about at the moment is I am finding it really hard to concentrate enough to read.

OP posts:
TheButterflyEffect · 27/08/2010 19:42

This reply has been deleted

Message withdrawn at poster's request.

herbietea · 27/08/2010 20:14

This reply has been deleted

Message withdrawn

TheButterflyEffect · 27/08/2010 20:17

This reply has been deleted

Message withdrawn at poster's request.

DBennett · 27/08/2010 23:00

The NHS webpages is always a good starting point.

sorrento56 · 28/08/2010 13:57

Thank you DBennett. I will take a lot. I am feeling very tired atm and my vision isn't great.

OP posts:
HecateQueenOfWitches · 28/08/2010 14:04

I've got fm. I am on amitriptyline. I take one at night and it's supposed to help me get better sleep.

I had no test for it - as far as I know there is no test for it and they diagnose it be process of elimination. So they test for all the other things that might give those symptoms and if they come up blank they diagnose fm.

sorrento56 · 28/08/2010 14:26

Hi Hecate, I on amitriptyline too and have just been told to take 3 a night.

OP posts:
HecateQueenOfWitches · 28/08/2010 15:06

really? Will ask gp when I go back. Am wanting to ask him about other meds actually.

I've been really busy the last few weeks, physically, and I am so tired now I couldn't get out of bed this morning - literally could not lift my body out of bed - and I hurt everywhere.

Reading about other people's experiences it seems there are meds to help with the pains, which would be really good!

sorrento56 · 28/08/2010 15:12

I was started on 1 a night for 2 weeks and then two a night until I next saw him. This won't be until February as they are so busy. In the letter to my GP he wrote that the dose could be upped if necessary.

I currently have a headache but reluctant to take paracetomol as I don't know how they will react with the amitriptyline or if it is even okay to take both. I will have to do something though as I just can't do anything than just sit on the sofa and MN/watch tv.

OP posts:
sorrento56 · 28/08/2010 15:12

Does anyone else have vision problems?

OP posts:
herbietea · 28/08/2010 17:02

This reply has been deleted

Message withdrawn

sorrento56 · 28/08/2010 17:31

Thanks for that herbietea. The paracetomol has kicked in finally so my head ache has eased. I hope I don't get them every day. My vision feels blurry. I am permanently tired tbh. Normally I just carry on and yesterday MIL had the kids so I would normally have done loads but I just sat and read/mn. Couldn't do anything else.

OP posts:
WillYouDoTheDamnFanjo · 28/08/2010 17:46

I was looking into FM recently as a friend has just been diagnosed, I think there is a test involving the identification of symmetrical sore spots on the body on Wikipedia.

HecateQueenOfWitches · 28/08/2010 19:52

oh yes, you have sore spots, but that's not a test test, it relies on you saying ouch Grin it's not a sample that can be taken away and analysed, iyswim. There are no objective tests.

It's why some doctors don't believe in it.

WillYouDoTheDamnFanjo · 28/08/2010 20:57

Ah, I see, thanks Hecate. I'm sorry to hear that people on this thread are struggling with this.