Anyone with Vitiligo ?

[Poshwellies]

Just seeking some advice and tips for dd whose just been diagnosed with vitiligo at the age of 15.
She's not greatly concerned atm as it's appeared on her torso and hip area but the gp has informed us it could spread.

She's awaiting blood tests and referral to the dermatologist and camouflage nurse.

Anyone have children also suffering ?

bump

I must admit I don't know much about this condition. But I am sure it is an autoimmune thing where the body's immune system attacks it's own cells, in this case your DD's skin pigment cells. (A cousin of mine has it which is how I know a little bit). So I am wondering why she has been referred to a dermatologist as opposed to an autoimmune consultant (if they exist?)

Unsure Abit.I think Gp will refer her if her bloods show anything out of the ordinary?

hi, i have a 9 year old with vitiligo - he was diagnosed 3 1/2 years ago.
after much hard work inc trip to london hospital - we live in cornwall - he is now undergoing a trial of UVB radiation.
his vitiligo is extensive and i do worry about the time and work he misses from school - at present i ask for the work and we do it at home
would love to keep in touch with other parents as mu hubby says i am obsessed about protecting his skin - ned a riendly ear
luv pboro66

DH has this

It doesn't cause any trouble at all, and really the only time it is noticed is when he gets a tan - he puts sunblock on his 'areas'

Tends to be on the extremities (hands, feet etc)

Didn't know there was anything even in the pipeline to treat it, so interesting Pboro.

His mum also has it

I did have this around a beauty spot mole on my face. I was really self conscious about it and did the camoflage cream, rather badly IIRC. Once I grew up, got to about 22 it didn't bother me. It did go away, along with the mole oddly enough.

I have it a little on extremities. I am white so it isn't really noticeable except when I have a tan. I don't know what ethnic group you are but I know it is obv a very distressing condition for dark-skinned people.

It certainly isn't a problem at all for me. The only possible issue is that it does sometimes feature alongside other autoimmune conditions, so if you ever suspected that your dd might have another autoimmune condition it would certainly be worth mentioning the vitiligo to the docs investigating.

I have it a bit too - so did my grandmother, so perhaps it is hereditary?

It only shows up noticeably in the summer.

I also wonder if I accelerated the process by being a fiendish 'tanner' in my teens and early 20's?