Please advice on these symptoms

[Wineonafridaynight]

I posted something the other day then deleted it but going to rephrase it as could do with some advice!

My DP is unwell and we do not know what's wrong! He has finally been for blood tests and a chest xray after doctors looking at him like he has been mad when he has come to see them before.

He is constantly tired despite sleeping for 7/8 hours. If he sleeps longer he is still just as tired. He hates going out anywhere fun at the weekend as it knocks it out of him and he knows he will be knackered for the whole week. He struggles to get to sleep at night. His glands are up quite a lot. He is very pale at the moment. He seems to get ill more often than most with flu like things. He says he quite often feels dizzy. His joints ache, his muscles ache.

It all sounds quite basic but it has got to the point where he is falling asleep at his desk at work! He says he has done twice today.

I don't know what to do. The blood tests he had earlier on in the week we hope will shed some light but we haven't heard back yet. He has also had a chest xray. He isn't supposed to go back to the doctors for 2.5 weeks still but what can he do in the meantime? If he goes back then what can he say?

Does anyone have some advice? He is so sad about all of this and it is affecting his work relationships badly.

Hi i may be way off the mark but i had very similar symptoms to that when i had glandular fever 2 years ago.

maybe someone else we be along with more idea.

hope you get to the bottom of it soon.

could be any number of things. When dh was falling asleep alot they tested him for loads of things. blood tests should take no longer than 5 days now days, call them at day 5.

No medical advice I'm afraid but your post reminded me of a friend who had TB.

She'd had the vaccination at 14 but still caught it in her early twenties. Symptoms very much like you describe. Took the doctor a while to diagnose as not something obvious.

She never discovered where she caught it. Once diagnosed had 6 weeks off work and made a full recovery.

Hope you get some answers soon and DP starts to recover.

is it proper sleep, sometimes people sleep badly and this can cause really bad tiredness. perhaps he can have sleep studies?

Thanks for the advice.

Glandular fever and TB are both things that come up when you google the 'related word' the doctor put on the blood test form (not that I have been googling and getting myself in a panic about the various things!!!)

The Dr stupidly said 'I have an idea as to what it is but I'm not going to tell you as it will worry you' What a stupid thing to say as of course we are worried now! Dr also in same appointment said that she didn't think he had glandular fever now but that maybe he did have it and this could be the after effects.

I'm not sure if it is proper sleep tbh. He has always had pretty messed up sleep - it just all seems to have finally come to a head now and he is really worried, as am I. He seems to sleep deeply from what I see but then is just always tired.

He looks really unwell as well at the moment. I haven't told him that but he looks so pale and exhausted. It's not normal for a 27 year old to be unable to do anything at all.

does he have any other signs other than the tireness and paleness? weight loss? night sweats?
poor bloke, hope you get it sorted asap

No weight loss but possibly night sweats I think.

Poor memory ? ends of eyebrows sparse or missing? cold all the time? His symptoms sound like DH who has thyroid deficiency. Has GP ordered TSH and T$ tests? Good luck and I hope you get a diagnosis soon.

when did he take the test?

Tests were Monday. After falling asleep at his desk today he was planning on putting another appointment on tomorrow..although not sure what good it would do if they haven't got the results back!

Trumpton - I'm not sure. She ticked most of the boxes on the form and the word Lympth something or another. Can't remember the exact word but looked it up - some odd things udner it, some scary things and a couple not so serious.

I haven't noticed the eyebrows before but looking now they do almost look like they are plucked at the ends! That made me giggle as he is the least likely man in the world to groom himself! Sounds like it could be something like that. What has your DH had to do for his thyroid deficiency?

And yes - poor memory but he has always had a poor memory and think he has always put it down to his dyslexia and that he sometimes struggles to take in lots of information at once if people tell him things.

Dh is on thyroxine.... forever. Just a pill once a day and that's it. Long haul to get balance right tho'. I will check this thread and can point you in right direction for info if needed. Night night...I was just waiting to see if you came back on tonight as didn't want to leave you unanswered.

I have an underactive thyroid and it makes me feel VERY tired, cold, a bit miserable and achey. Nothing that specific but just pretty unwell. It is treated though and is fine now. If he has an underactive thyroid, then it is totally fixable and he will be well again before he knows it. Did they check his iron levels too? Paleness and tiredness can indicate anaemia.

any news?

Those symptoms sound a lot like mine. I have M.E./CFS. It is only diagnosed through a process of eliminating everything else and you have to have had the symptoms for over 6 months.

I had the blood tests, they showed nothing and I had the chest x ray and it was clear. There are many things with similar symptoms so hopefully they will find something and be able to treat it.

If the test results do come back clear, don't let the doctor fob him off if he says everything is fine. I had to see 3 doctors before I was taken seriously. This was 8 years ago though and it is far more recognised than it was.

Sorry for the delay in coming back.

Test results were all clear. One indicated his white blood cells were low but they have out that down to the flu like thing he had a couple of weeks ago. We are obviously thrilled that it isn't anything serious but still frustrated that they don't know what is going on.

Next thing to investigate is his breathing in the night which they apparently do by making him take beconase a lot! They think maybe he isn't getting enough oxygen during sleep.

Detective Potato - I had considered ME/CFS. In fact I have considered it a few times before for him. I guess like you said it is a matter if eliminating everything before they go down that route now. Can they test for it at all? I didn't think so.

im glad all results were clear, i always worry about those sort of signs as dh had those before he was dx with leukemia but its ruled out by blood tests, so glad his ok. hope u find something out soon x

Glad they didn't find anything, although I always wanted them to find something just so I knew I was ill and not being daft.

No sadly there is still no test for M.E./CFS. I read an article a while ago that said they may be developing on so there could be one in the future. But as they don't know the causes and where it actually affects you in the body, its hard for them to come up with anything that is going to disgnose or cure it.

It does sound like ME to me but like someone said, they have to have had the symptoms for six months before diagnosis.

By the way, wineon, re your mention of 'Lympth something or other' - you're probably talking about Lymphoma, and one of the main symptoms of that is very heavy night sweats. However, the rest of his symptoms don't point to that, and if they did, your doctor would have had him referred to hospital very very quickly.

did they mention sleep apnoea,
quite common to cause extreme tiredness.
fingers crossed tis something sortable.