Alpha 1-antitrypsin deficiency

[roundthebend4]

Just wondered if there is anyone else with children or family memeber with this struggle to find information on it

Have you heard of this support group?

no I have not Ty all sights i have found have been either Us or Australian or deal with the liver in children where its hitting dd lungs already and she is only 7

Where are you baised?

I have Alpha1 and am part of a great foundataion which I found has been excellent in helping me with inftormation and putting me in touch with other similar people although I agree most information does seam to be about lungs where as I am liver effected.

Check out:

www.alpha1awareness.org.uk/welcome.htm

If I can help please let me know x

I used to work for a company that was manufacturing that protein and had a product in clinical rials until carpet baggers bought into the company and forced it into liquidation so they could make 2p a share profit.

Anyway, link cowboylover gave is the best I know of. Prolastin is the name of the drug treatment and there are some useful links on its webpage if you haven't already looked there.

Have you tried the british liver trust website?

Hi old post i know, is there anyone with experience of this i can ask a few questions to?